Anyone experienced episodes of red, hot, itchy face lasting up to 4 hours?

[Iguanaf]

Hello! MBC (lungs, bones) for 1 yr and on Letrozol and ribociclib since. Recently frequent episodes of red/hot and itchy face lasting up to 4 hours. No sweating at all, no bumps. Has anyone else experienced this? Started Googling and worried might be carcinoid tumour 😩Thanks very much.

[8576]

No, I haven't experienced this. It makes me think itis something else besides the meds. Your Oncology nurse can answer this for you for sure.

Cheers, June S.

[Iguanaf in reply to 8576]

Thanks for your reply!

[PJBinMI]

If it were me having this, I would suspect an allergic reaction and would call one of my docs right away to find out what I needed to do........ allergic reactions can be very serious,

[Iguanaf in reply to PJBinMI]

Thanks for the suggestion. Will do!

[susiemarmite]

Go get bloods done and check liver counts. AST and ALT. could be allergic reaction to the ribociclib. I had full body rash with liver enzymes 10x and 11x above top of normal range. Now off all drugs waiting for liver to calm down.

[Iguanaf in reply to susiemarmite]

Thanks very much for sharing your experience. Will definitely have it checked out. Forgot to mention that is usually way worse with exposure to sunlight (even indirect). Thanks!!

[Threadsgirl]

I am on the same meds, occasionally experience itching on my thighs, very itchy and gets red but not a constant thing so I do not think it is related to any type of progression. I searched the net and others have had this, the greatest consensus is that it is from the Letrozole. Some people only had episodes for a few months and then it stopped. My episodes seem to be getting less and less.Creams to keep the skin from getting too dry seem to help, but if it is a really strong reaction it wouldn’t hurt to get it checked out.

[TammyCross in reply to Threadsgirl]

Yes, Letrozole. Almost everything I have taken or been given for mbc causes a rash of some sort -- bumps, itchy or not, eczema once -- but it is only with Letrozole that I had what seemed to be a real allergic reaction. My legs (one side of each), my face in splotches, and my feet turned bright red. It was frightening but harmless. Looked and felt like a sunburn. (I got off Letrozole and went on Anastrozole instead; now just the usual itchy rash on torso.)