Hi All

[elle3054]

Feeling pretty bad after not tolerating piqray twice then ibrance not working and hormone blockers not working I have more lesions on my bone and will be starting taxol. Is anyone taking this and how bad is the hair loss, feeling miserable

[Thatflowerlady]

Hi Elle ( I am assuming that your name is Elle ?) Are they suggesting and other medications to go with the taxol ? I did Paclitaxel ( a taxol ) last year and herceptin & perjeta which I continue to take with exemestane ( hormone blocker )

I did loose my hair but it has come back after I finished the 12 treatments of Paclitaxel.

If this is similar to yours ask away.

Luann 🇨🇦

[elle3054 in reply to Thatflowerlady]

Hi thank you so much, Ellie is my name thank you for asking, No just taxol for now he said a light dose

[Thatflowerlady in reply to elle3054]

Other than loosing my hair I felt pretty good Elle . I had a bit of fatigue . I felt much better than I did on ibrance . Luann

[elle3054 in reply to Thatflowerlady]

Thank you

[8576]

I marched right through thrude drug list and was thinking it was IV Chemo or do nothing. So don't lose hope. My daughter came up with the suggestion of trying Verzenio. The doctor had not suggested it because of the cost and I had already had help with Ibrance but low and behold, (don't know where that expression came from) it was approved by the drug company. It has worked very well.Always get a second opinion if in doubt.

Cheers, June S.

[TammyCross in reply to 8576]

Yes, I get Verzenio free from Lilly Foundation. As I did Ibrance from Pfizer. These programs are great (Verzenio had better be working, because it has unpleasant side effects for me).

Can't help myself, as a former linguist, responding to your expression. It is "Lo and behold." "Lo" basically means, "Well, look at that, will you?" Lo - there it is. So look and behold -- look and see. Hope that isn't irritating. Fun for me to think about.

[8576]

Thanks for the answer and the explanation of Lo. As a linguist I can understand your need to correct. The English language is very difficult at times. Correct away. For me at least.

Cheers, June S.