Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,607 members • 8,142 posts

All posts for January 2022

A month of normality!

I'm on my way home after spending a month on North Uist with my ( now not so ) new partner. I've learn to feed the sheep, manage the peat stove, control a...

I'm on my way home after spending a month on North Uist with my ( now not so ) n...

Beryl71

•2 years ago

32 Replies

UK members- travel insurance advice please

Hello. Do any UK members have any experience of buying travel insurance and can you offer any advice please? I understand there are different levels...

Hello. Do any UK members have any experience of buying travel insurance and can...

wendle3007

•2 years ago

7 Replies

Ibrance/cold

Has anyone gotten cold while taking Ibrance?

Books48

•2 years ago

4 Replies

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Help??

I need to be talked off the ledge that I am on and about to jump off of . At my three month scan everything was great my tumors were shrinking some not...

I need to be talked off the ledge that I am on and about to jump off of . At my...

Gibby21

•2 years ago

28 Replies

Covid

Has anybody had leg pain having Covid. Both my legs ache so much. I don’t no if it is faslodex ibrance or now Covid. This has never happened to me before....

Has anybody had leg pain having Covid. Both my legs ache so much. I don’t no if ...

marianne88

•2 years ago

8 Replies

6 month follow up scan

So I had my first six month scan done after diagnosis and the start of treatment. The scan results were pretty awesome to say the least. I had my follow up...

So I had my first six month scan done after diagnosis and the start of treatment...

Starrfish77

•2 years ago

17 Replies

ErSO update from the research

The Facebook group “ErSO activism and breast cancer “ just received an update from the researchers. See photo below

The Facebook group “ErSO activism and breast cancer “ just received an update fr...

Cureforever

•2 years ago

4 Replies

Stable scan results 3 years in

I realize it is important to share positive news so that we don’t only read discouraging news. In that spirit, my December bone and Ct scans were stable. My...

I realize it is important to share positive news so that we don’t only read disc...

Hidden

•2 years ago

34 Replies

Catch Up on the Latest MBC Research!

If you or a loved one has MBC, take a look at the summary of cutting-edge MBC research disclosed at the San Antonio Breast Cancer Symposium (SABCS) in Dec....

If you or a loved one has MBC, take a look at the summary of cutting-edge MBC re...

Bestbird

•2 years ago

9 Replies

Phew !

I had a meeting with my Consultant today and after my CT scan and bloods, I’m stable !

I had a meeting with my Consultant today and after my CT scan and bloods, I’m ...

Otis123

•2 years ago

24 Replies

Jumpy legs/arms

Hi. Does anybody get jumpy legs and arms at night? Some nights I’m good and other nights it just won’t stop does anybody have a cure for this ?

Hi. Does anybody get jumpy legs and arms at night? Some nights I’m good and ot...

cancersucks2

•2 years ago

4 Replies

Testing

Testing to see if my post posting

Barb5

•2 years ago

8 Replies

Can you continue medication if you get covid

I have Covid in the house but tested negative myself. Likely to be omicron. Have others who’ve had it come off medication? I’m on letrozole and...

I have Covid in the house but tested negative myself. Likely to be omicron. Ha...

Rosiero

•2 years ago

8 Replies

Tingling nerve pain

Anyone experiencing armpit tingling after surgery?

Cecelina911

•2 years ago

8 Replies

After three months is it normal to be switch from faslodex to xeloda I don’t understand why not try

After three months is it normal to be switched so soon from faslodex to xeloda

Rego-park

•2 years ago

3 Replies

Alcohol and Ibrance/Letrozole

I’ve heard that you should not drink alcohol at all. Is this true? I know someone through a friend who drinks all the time with treatment?!

I’ve heard that you should not drink alcohol at all. Is this true? I know someon...

cancersucks2

•2 years ago

17 Replies

Oral SERD

I am in my 8th cycle of an oral SERD in a clinical trial. It is amazing. I have never felt so well, at least not in the past decade, since well before I got...

I am in my 8th cycle of an oral SERD in a clinical trial. It is amazing. I have ...

TammyCross

•2 years ago

22 Replies

Happy New Year

Hi everyone and Happy New Year. I hope everyone had time with loved ones this season. One quick off topic question. Does anyone know if Barb's grandchild...

Hi everyone and Happy New Year. I hope everyone had time with loved ones this se...

Arisgram

•2 years ago

20 Replies

Ruth (BangorBelle) has passed away

Hi everyone, not sure if I am posting in the correct place but I wanted to let you all know that my wonderful Mum Ruth (BangorBelle) passed away on 28th...

Hi everyone, not sure if I am posting in the correct place but I wanted to let y...

BangorBelle

•2 years ago

43 Replies

I’ve recently completed my third round of IV chemo. I have Mets in my liver and bone. I’m going to start Faslodex / Piqray . Any suggestions

Faslodex or Piqray experiences

Rubyln15

•2 years ago

13 Replies

Ibrance vs fatigue

Does the fatigue and being tired from Ibrance ever go away??

cancersucks2

•2 years ago

21 Replies

Taking D-mannose whilst on Ibrance and Letrozole

Prior to my secondary 2 years ago I was recommended to take D-mannose to prevent UTIs . I take Ibrance and Letrozole and not sure whether D-mannose can be...

Prior to my secondary 2 years ago I was recommended to take D-mannose to prevent...

Gramat

•2 years ago

2 Replies

Liver cancer support suggestion for my brother

Hello all. One of my older brothers was diagnosed with liver cancer summer 2021. Unbeknownst to his siblings, he was drinking heavily the past few years. It...

Hello all. One of my older brothers was diagnosed with liver cancer summer 2021...

Hidden

•2 years ago

10 Replies

New to Ibrance and Letrozole

Hi I’m new to this site have read many of your blogs and find it really helpful and educational! My question is can I dye my hair on these meds? I really...

Hi I’m new to this site have read many of your blogs and find it really helpf...

cancersucks2

•2 years ago

9 Replies

Second line treatment after Ibrance, letrozole and monthly zoladex.

I live in the south east of the U.K. previously someone posted the U.K. second line treatment from NICE after Ibrance / letrozle. I can not seem to find it,...

I live in the south east of the U.K. previously someone posted the U.K. second l...

TE53_67

•2 years ago

3 Replies

Ibrance and hair loss

Yes, I had hair loss with Ibrance and Laetrazole. I am now off that combination and my hair is coming back. I hope Ibrance continues to help you for a long...

Yes, I had hair loss with Ibrance and Laetrazole. I am now off that combination ...

Sejj

•2 years ago

2 Replies

Falsdox

My sister is on faslodex for three months after ibrance stopped working and her markers are through the roof ???

My sister is on faslodex for three months after ibrance stopped working and her ...

Rego-park

•2 years ago

12 Replies

Alguien con alpelisib

Alguna esta tomando alpelisib?

Leonardogodo

•2 years ago

4 Replies

Thank all for replies to my questions. It is very reassuring to hear of others experiences. Prior to COVID we had in person support groups

Much gratitude and good health in 2022

sonycamera

•2 years ago

Be the first to reply

COVID Omicrom

So, my question this New Years Eve is: Have any of you with metastatic disease on IV chemo gotten COVID? If so, how did it go and what did or are they giving...

So, my question this New Years Eve is: Have any of you with metastatic disease ...

blms

•2 years ago

5 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for January 2022

A month of normality!

UK members- travel insurance advice please

Ibrance/cold

Help??

Covid

6 month follow up scan

ErSO update from the research

Stable scan results 3 years in

Catch Up on the Latest MBC Research!

Phew !

Jumpy legs/arms

Testing

Can you continue medication if you get covid

Tingling nerve pain

After three months is it normal to be switch from faslodex to xeloda I don’t understand why not try

Alcohol and Ibrance/Letrozole

Oral SERD

Happy New Year

Ruth (BangorBelle) has passed away

I’ve recently completed my third round of IV chemo. I have Mets in my liver and bone. I’m going to start Faslodex / Piqray . Any suggestions

Ibrance vs fatigue

Taking D-mannose whilst on Ibrance and Letrozole

Liver cancer support suggestion for my brother

New to Ibrance and Letrozole

Second line treatment after Ibrance, letrozole and monthly zoladex.

Ibrance and hair loss

Falsdox

Alguien con alpelisib

Thank all for replies to my questions. It is very reassuring to hear of others experiences. Prior to COVID we had in person support groups

COVID Omicrom

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