Posts - My MSAA Community | HealthUnlocked

My MSAA Community

9,019 members • 20,711 posts

All posts for September 2023

Any suggestions to keep walking?

Hello Everyone 👋, any suggestions to my legs working. I walk short distances with a walker, however, now my legs feel as though I have 2 bricks on each one....

Hello Everyone 👋, any suggestions to my legs working. I walk short distances wi...

•8 months ago

Everyday Is A New Day

I have learned that everyday is a New Day... It can be a good day... Or a bad day... But MS is going to be part of it... There is no running from it......

I have learned that everyday is a New Day... It can be a good day... Or a ba...

CommunityAmbassador•8 months ago

20 Sept 2023 Only an OPINION

G'day ms family, I hope all are as well as can be. As often this is for your newbies(Newly diagnosed). I do NOT know YOU personally and I am not your...

G'day ms family, I hope all are as well as can be. As often this is for your n...

•8 months ago

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Broken Rollator

One of the legs of my DRIVE Rollator broke! I am now nearly helpless without it, but I am having trouble finding somewhere to order a replacement. I have seen...

One of the legs of my DRIVE Rollator broke! I am now nearly helpless without it,...

•8 months ago

New Member Caregiver

My brother was diagnosed with MS in 2019 after being misdiagnosed with a stroke in 2013. Right now he is in the second year of Mavenclad and has not had any...

My brother was diagnosed with MS in 2019 after being misdiagnosed with a stroke ...

•8 months ago

Cog fog..?

Do you think cog fog can improve? 🤔 If so... why? And... What do you do help improve your cog fog? 🙃🤗💕🌠

Do you think cog fog can improve? 🤔 If so... why? And... What do you do help...

CommunityAmbassador•8 months ago

19 Sept 2023 Smile

G'day ms newbies (newly diagnosed). It is OKAY, YOU will be OKAY. There is no answer to the questions you ask. Believe me, I have searched for over 20...

G'day ms newbies (newly diagnosed). It is OKAY, YOU will be OKAY. There is n...

•8 months ago

Could use a few prayers

I wasn't going to ask, but I'm scared. The son who shares my kitchen and bathroom has Covid. So far, he's doing well with OTC meds, and I'm the same as...

I wasn't going to ask, but I'm scared. The son who shares my kitchen and bathro...

•8 months ago

NEW HERE - Caregiver Support

My wife was diagnosed with MS four and a half years ago, right around the same time I began a new career with the federal government. That first year was...

My wife was diagnosed with MS four and a half years ago, right around the same t...

•8 months ago

18 Sept Sometimes 3

G'day ms family. Sometimes it is about YOU, ME. Yes, I know very well that some have it differently. All I need to do is look at the scars on my mother's...

G'day ms family. Sometimes it is about YOU, ME. Yes, I know very well that s...

•8 months ago

18 Sep 2023 Sometimes

G'day ms family. Sometimes it just feels like it is just too much. Nothing is wrong, and everything is wrong. The tunnel is long, the future is a long...

G'day ms family. Sometimes it just feels like it is just too much. Nothing i...

•8 months ago

Cog Fog, Brain Fog..

Whatever you call it, you feel like your losing it... at least l do. 🙁 I think the worst for me right now is taking in new information. I have asked my...

Whatever you call it, you feel like your losing it... at least l do. 🙁 I think...

CommunityAmbassador•8 months ago

Others have it worse off

I’m sure you’ve heard people say it. It’s been said to me a lot over the years. I worked as an RT at home for the most physically and mentally challenged...

I’m sure you’ve heard people say it. It’s been said to me a lot over the years. ...

•8 months ago

Vumerity

I just started taking Vumerity a few months ago. Just curious if anyone has been taking it, and if it has helped.

I just started taking Vumerity a few months ago. Just curious if anyone has been...

•8 months ago

Balance Exercises!

Recently I found out about Tik Tok.com MS Balance Exercises. I've done it the past few days. Check it out and let me know what you think. Leslie

Recently I found out about Tik Tok.com MS Balance Exercises. I've done it the p...

•8 months ago

17 Sep 2023 Good Morning

G'day ms family. How are YOU this fine, hot Sunday morning? I hope very well, if not stable and content.Today I wish that no matter your circumstances...

G'day ms family. How are YOU this fine, hot Sunday morning? I hope very we...

•8 months ago

Kenu.....are you okay?

Kenu, we miss your humor, we miss your presence. Just checking to make sure you're okay. Fancy59.

Kenu, we miss your humor, we miss your presence. Just checking to make sure you'...

CommunityAmbassador•8 months ago

New Here, but 30-ish Years with MS

Howdy Y'all! 👋 I'm new here. I actually came here for the prostate cancer group and saw the MS group. The PCa was a very recent diagnosis - this past June...

Howdy Y'all! 👋 I'm new here. I actually came here for the prostate cancer grou...

•8 months ago

MS center appointment!

Guys!!I got an appointment at UCSF MS & Neuroinflammation Center! So happy and so grateful!

Guys!!I got an appointment at UCSF MS & Neuroinflammation Center! So happy and s...

•8 months ago

The Ekmans' Atlas of Emotions

I thought l would share this with you, as it is a pretty good tool in regards to figuring out, and vocalizing your emotions! (The right way) Its also supported...

I thought l would share this with you, as it is a pretty good tool in regards to...

CommunityAmbassador•8 months ago

Now This Is A Flare!

This is a solar flare of 2 sunspots that connected by a magnetic filament, erupted yesterday! Spaceweather.com I really think l will leave this kind of flare...

This is a solar flare of 2 sunspots that connected by a magnetic filament, erupt...

CommunityAmbassador•8 months ago

Mid 60's and my MS is still active. So much for the theory that as you age your MS becomes inactive...

It's been a couple weeks of non-stop hospital testing regime's and doctor visits. I know everyone has gone through similar weeks and I don't have to tell you...

It's been a couple weeks of non-stop hospital testing regime's and doctor visits...

CommunityAmbassador•8 months ago

MS VACCINE?!

Has anyone else seen this?!? How wonderful would it be to feel GOOD again????...

Has anyone else seen this?!? How wonderful would it be to feel GOOD again????...

•8 months ago

Something cute to say:

A smart man knows what to say. A wise man knows whether to say it.😀 Leslie

A smart man knows what to say. A wise man knows whether to say it.😀 Leslie ...

•8 months ago

Truth!

Im tellin ya!! Whos with me? 🤗💕🌠

Im tellin ya!! Whos with me? 🤗💕🌠

CommunityAmbassador•8 months ago

good morning

At least i think it is still morning. I just wanted to wish you all well and that you have a good day (by whatever standards you use to rate a day as......

At least i think it is still morning. I just wanted to wish you all well and th...

•8 months ago

My Neuro PA appt...

This about summed it up! Oh, and what about?... Cant... PML😐 Although my Neuro is pretty happy about O, ugh. 🤗💕🌠

This about summed it up! Oh, and what about?... Cant... PML😐 Although my Neuro...

CommunityAmbassador•8 months ago

I wish,

What about you? 🤗💕🌠

What about you? 🤗💕🌠

CommunityAmbassador•8 months ago

11 Sep A Sad Day

G'Day ms family. Yes, today is a sad day. A recent glaring example of how horrible humans can be to each other. At this time try not to look at the...

G'Day ms family. Yes, today is a sad day. A recent glaring example of how h...

•8 months ago

Nonsensical letters

I have just received 2 letters which make no sense. I had an appointment for a phone call with the MS nurse at 10:30 on 3rd Nov. The 2 letters say: a) my...

I have just received 2 letters which make no sense. I had an appointment for a ...

•8 months ago

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