I'm new here. I actually came here for the prostate cancer group and saw the MS group. The PCa was a very recent diagnosis - this past June actually. 😟
Anyway, I've been diagnosed with MS for awhile. It was long enough ago that I was in the lottery to go on Betaseron. I turned it down the first time, and took it the next time my number was called. I didn't stay on it long as I had a true allergic reaction. I've sampled a couple of the other DMTs.
Currently I'm on Ocrevus and just had my most recent infusion last week. I've been on it for several years now. The last three have been on the 2.5 hour infusion plan. Even though I've had them at home, it's nice not to be connected to an IV.
Chronic pain and fatigue are my most common MS symptoms. Fighting through them I've been trying to walk daily in hopes of improving my surgical outcome.
I'm a "retired" computer guy. I fish when the weather is nice. And I'm an amateur woodworker.
Tight lines!
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Angler_Eric
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Hello and welcome Eric, we're glad you found us! We're always here to share our common experiences with you and to help you through the ups and down that MS throws your way. Make sure you give us your birthday. That way, we can sign you up for a birthday club. Then on your special day the family here can join together and wish you a Happy Birthday. Fancy59.
Welcome to the club none of us wants to join! But you do realize that part of your "dues" will be to provide us with lovely photographs of your fishing spots and your wood projects? 🤪
I happened across the top while scrolling through Etsy. I initially didn't buy it. I told my wife about it and the cost, she said, "why didn't you buy it?" Now I just need to 'happen' across another book matched set. After I finished the one we figured out we really needed a pair.
The base is dimensional material, also black walnut. While I can find it around, this material I also found on Etsy.
I don't know that I have the patience for an intarsia project. But I am planning one. I have other projects underway that I should finish first. Actually progressing depends on how I'm feeling.
It's funny. When trying a new technique I always plan on starting with something simple. But somehow my projects seem to grow. Maybe in size, more often in complexity... 🤔
Not everything turns out, but I have fun. Plus there is knowledge in failure. At least in woodworking I can reuse materials in other project.
Welcome to the group Angler_Eric ! Glad you found us! This a great group to ask questions, vent, and share accomplishments. Love the woodwork you have done!
welcome to the forum, Angler_Eric ! You’re a busy person! Hopefully, you can find a bit of time and go to mymsaa.org for any information on everything ‘ms’. I look forward to hearing more from you, and in the meantime, Keep Smiling!
Glad to have you here! My husband is a woodworker. If he ever finishes the things on our house, he'll get to play. After numerous years we finally have closet doors!
Home infusions have been available for awhile. 15+ years ago my wife was the nurse manager for a local home infusion company. But the availability seems mostly tied to weather or not insurance will pay.
It's a bit more nuanced than that. Some doctors aren't comfortable with at home infusions. You might have had a reaction in the past, or maybe concern that you'll be alone afterwards. But mostly I find it's limited by insurance companies.
Back around the time I was diagnosed and I was prescribed five days of steroids, my wife actually did the infusion. But after one particular course I had a very bad reaction and wound up in the ER. Because of my reaction my neurologist will no longer allow me to have steroids at home.
In the case of Ocrevus that was normally done in my neuro's office. Until the hospital bought the practice. Due to major miscommunication the hospital couldn't accept all the infusion patients. After many, many phone calls I was and to get an exception from my insurance company and have my infusion at home.
That was 18 months ago. I don't know if the hospital got things sorted out. Hopefully they haven't and I can continue getting infusions at home.
My best advice is to check with your insurance company first and then you doctor.
If you have other questions I'll try my best to answer them?
Hi, Angler_Eric! Welcome. The table is lovely. Good job! I am also on home infusions of Ocrevus. Just shy of 3 years into this disease, still working full time, and tired as you-know-what. We are glad you said 'hello.' I look forward to seeing you around.
Eric,nice to see someone like me with 30+ years with MS. I am almost at 40 years since my December 1983 diagnosis. You know there was no DMTs when I was diagnosed and I'm getting ready to start my 4th DMT, Rituxan
Oh yes, I'm well aware. None were available when I was diagnosed in '91. I was in the lottery for Betaseron, twice. Due to a true allergic reaction I had to switch to Copaxone. Switched to Tecfidera and stopped it because of "tomato face." (Not my description, but one I saw, appreciated, and connected with.) Now I'm on Ocrevus.
I was also on Rituxan for a time but not for MS. I'd been diagnosed with thrombocytopenia (ITP). This helped my ITP and my neurologist thinks it helped my MS as well.
Eric,nice to see someone like me with 30+ years with MS. I am almost at 40 years since my December 1983 diagnosis. You know there was no DMTs when I was diagnosed and I'm getting ready to start my 4th DMT, Rituxan
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