Posts - My MSAA Community | HealthUnlocked

My MSAA Community

9,405 members•21,193 posts

All posts for September 2023

Ocrevus

I am 76. I have been on Ocrevus for 6 years, after being on copaxone for 5 years. I use a walker and need to self cath. Two years ago I was diagnosed with...

I am 76. I have been on Ocrevus for 6 years, after being on copaxone for 5 year...

Linda3579

•1 year ago

26 Replies

Ocruvus

So, what do you do when you dont get the answers you want? 🤔 Call and make another appt, and tell them... Im NOT a quitter! And what is the strongest thing...

So, what do you do when you dont get the answers you want? 🤔 Call and make anot...

Jesmcd2

CommunityAmbassador•1 year ago

27 Replies

10 September 23 Good morning have a great day

G'DAY ms family. Have a great day today. You have survived another rotation, be happy about that. Give it a smile and enjoy whatever the day holds in...

G'DAY ms family. Have a great day today. You have survived another rotation...

RoyceNewton

•1 year ago

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MYMSAA.org

FYI:...

sashaming1

•1 year ago

1 Reply

Improving?

Official SPMS Dx on March 14, 2023. No active lesions on MRIs, only scars of past activity. iPhone tracking an avg of 2300 steps and just over a mile a day....

Official SPMS Dx on March 14, 2023. No active lesions on MRIs, only scars of pa...

irhunter

•1 year ago

4 Replies

Anybody else deal with this?

I am rr moderate. 10 years roughly. I am fortunate in that I do not yet need a cane. When I’m not ( walking with a shopping cart) my gait is off. The best way...

I am rr moderate. 10 years roughly. I am fortunate in that I do not yet need a c...

Mark1499

•1 year ago

9 Replies

9 Sep 2023 I fell over the is not normal

G'day ms family. Thinking more about it as we do, why did I fall over? That is not something I normally do when I think hard about it. Be unsteady, well...

G'day ms family. Thinking more about it as we do, why did I fall over? That is...

RoyceNewton

•1 year ago

9 Replies

Speech issues

Hi Guys I wondered if anyone else has experienced what's been happening to me a lot more recently as when I read MS information it only states slurred speech....

Hi Guys I wondered if anyone else has experienced what's been happening to me a...

Loveducks

•1 year ago

36 Replies

FDA Approves Tyruko, Biosimilar to Tysabri, for Relapsing Forms of MS

Received this in an email today:...

bxrmom

•1 year ago

1 Reply

My MS family!

I hope and pray that everyone has a great weekend! As for me it’s Alabama Texas on Saturday so I’ll be stretching out then sitting in my recliner enjoying the...

I hope and pray that everyone has a great weekend! As for me it’s Alabama Texas ...

Mark1499

•1 year ago

8 Replies

MS support group

Good morning MS WARRIORS. Is there anyone in the Baltimore area living with multiple SCLEROSIS? I am the president of a support group for people living with...

Good morning MS WARRIORS. Is there anyone in the Baltimore area living with mul...

Terrytyler

•1 year ago

2 Replies

So tired and emotional!

Prior to approximately a month ago when my first symptoms started and my diagnosis I was so different. I woke up feeling good and happy. I had tons of energy...

Prior to approximately a month ago when my first symptoms started and my diagnos...

Szs3eb

•1 year ago

36 Replies

7 September 2023 YOU are going to be okay

G'day my dear ms family. This is for YOU newbies (newly diagnosed) out there. Relax, do not panic, YOU ARE GOING TO BE OKAY. I understand the fear, the...

G'day my dear ms family. This is for YOU newbies (newly diagnosed) out there. ...

RoyceNewton

•1 year ago

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7 Sep 2023 Thankyou all

G'day ms family. Thank you all for your good wishes, it is much appreciated Just goes to show, do NOT take ms for granted. It will bite YOU WHEN LEAST...

G'day ms family. Thank you all for your good wishes, it is much appreciated J...

RoyceNewton

•1 year ago

3 Replies

6 Sep 2023 We all fall but the bounce-back counts most

G'day ms family, all is well I hope today, try to keep it that way. We all have a VERY long way to go in this ms journey we are all on. Remember there is...

G'day ms family, all is well I hope today, try to keep it that way. We all ha...

RoyceNewton

•1 year ago

1 Reply

September's Artist of the Month

"Photography is my escape from stress and my MS. It allows me to be in the magnificence of nature, move, and breathe, doing as much as my body will allow that...

"Photography is my escape from stress and my MS. It allows me to be in the magni...

MSAA_archived

•1 year ago

4 Replies

Tecfedira as first DMT?

Hello you amazing MS warriors.I was just diagnosed with RRMS and the neurologist prescribed tecfidera. I haven't gotten it yet because of the whole specialty...

Hello you amazing MS warriors.I was just diagnosed with RRMS and the neurologist...

Szs3eb

•1 year ago

28 Replies

Newly diagnosed

Hello MS peeps. I recently got my PPMS diagnosis in July. Think I've had the symptoms for a couple of years. Going to be starting Ocrevus soon and was...

Hello MS peeps. I recently got my PPMS diagnosis in July. Think I've had the sym...

ShayWelch

•1 year ago

12 Replies

5 Aug 2023 Ouch

My Dear ms family I hurt, Yesterday's fall still hurts. Nothing was broken, just some light bruising and more scars on my battered knees. This ms thing...

My Dear ms family I hurt, Yesterday's fall still hurts. Nothing was broken, ...

RoyceNewton

•1 year ago

11 Replies

Broken Bones

On 4-4-23, I stood up & broke my foot. No one really believed that so I started saying due to my MS, I was unbalanced & rolled my foot. Broke my R. 5th...

On 4-4-23, I stood up & broke my foot. No one really believed that so I started...

SandraKOE

•1 year ago

15 Replies

MS Caregiving

Hello Everyone. I am asking MS caregivers to share their voices by participating in this important online survey study. Survey link:...

Hello Everyone. I am asking MS caregivers to share their voices by participating...

JackieMerc

•1 year ago

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RLS with much more

I am exploring beyond just my having RLS. Any sharing from others that have/had RLS that was later labelled MS would be very welcome. I know and feel there...

I am exploring beyond just my having RLS. Any sharing from others that have/had...

Wanted-sleep

•1 year ago

4 Replies

Dag gone!

We switched internet providers because they kept raising the price, now I keep getting knocked off line that is why there are some posts then it's a few hours...

We switched internet providers because they kept raising the price, now I keep g...

kycmary

•1 year ago

4 Replies

Life update

Hi friends! Wow, it has been quite awhile! So sorry, but I’ve had a lot going on this year. Just wanted to stop by and say hello to everyone. Long post, but...

Hi friends! Wow, it has been quite awhile! So sorry, but I’ve had a lot going...

Jer29-11

•1 year ago

6 Replies

Troll

Johnnyrichard has been sending me messages and wants to connect outside of this chat area. Has this person done this to other people on this group? Make me...

Johnnyrichard has been sending me messages and wants to connect outside of this ...

Curlygoats

•1 year ago

9 Replies

Thank you

Thanks for the suggestions and the support. It helps to talk to other people who know what I am going through. I have an appointment with my doctor next week...

Thanks for the suggestions and the support. It helps to talk to other people wh...

Caste19

•1 year ago

1 Reply

Just ranting...

I'm supposed to start on DMT. Generic tecfidera was called in to Walgreens. Two Rx's as you need to titrate up in dosage. First the app said it was out of...

I'm supposed to start on DMT. Generic tecfidera was called in to Walgreens. Two ...

Szs3eb

•1 year ago

15 Replies

Pharmacist denied medication

Hesitant to post this. Opinions run strong on subject. My regular (+1yr) pharmacist called to tell me she was denying my regular pain med fill due to increased...

Hesitant to post this. Opinions run strong on subject. My regular (+1yr) pharmac...

Wtfisup

•1 year ago

27 Replies

MS Treatments

Hi. I was diagnosed with MS in 2011. I can get around but suffer with leg pain and have balance issues. I work full time but it is getting harder and harder...

Hi. I was diagnosed with MS in 2011. I can get around but suffer with leg pain...

Caste19

•1 year ago

13 Replies

I had my first (hoping the last) pity party yesterday...

After my first symptoms started 3 weeks ago and diagnosed with MS two weeks ago, I was being so positive and yesterday just sucked so I sat in my bed and felt...

After my first symptoms started 3 weeks ago and diagnosed with MS two weeks ago,...

Szs3eb

•1 year ago

19 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for September 2023

Ocrevus

Ocruvus

10 September 23 Good morning have a great day

MYMSAA.org

Improving?

Anybody else deal with this?

9 Sep 2023 I fell over the is not normal

Speech issues

FDA Approves Tyruko, Biosimilar to Tysabri, for Relapsing Forms of MS

My MS family!

MS support group

So tired and emotional!

7 September 2023 YOU are going to be okay

7 Sep 2023 Thankyou all

6 Sep 2023 We all fall but the bounce-back counts most

September's Artist of the Month

Tecfedira as first DMT?

Newly diagnosed

5 Aug 2023 Ouch

Broken Bones

MS Caregiving

RLS with much more

Dag gone!

Life update

Troll

Thank you

Just ranting...

Pharmacist denied medication

MS Treatments

I had my first (hoping the last) pity party yesterday...

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