I wish,

[Jesmcd2]

What about you? 🤗💕🌠

[kdali]

Yes, it's mostly to inform. I'm not having a stroke and I'm not drunk, just a little brain damage 🙃

[carolek572 CommunityAmbassador]

Same here,  Jesmcd2 , however I am still very much guarded when it relates to my health. I feel like I will share on a need to know basis, and most people know to mind their own business. I do let my medical professionals know about every little issue that I may have because it is their job to know.

[DM0329]

Amen! Your post is preachin' to the choir! I've been so distraught as my only sibling has been so estranged from me these past few years. Ever since my parents death (mom 2006 & dad 2008) he has been a real S.O.B.

I guess he doesn't have to "fake it" anymore with me? We were so close growing up too; or maybe that was just an act too? When he found out that "my family" and he's the only one left would have to "open a special needs trust" for me to "hold" the proceeds from the sale of our family home, as he rushed home six months after my mother's passing to get both his name and my name on the deed of the house. He then went on to say, "you'll have to buy me out."

Well, my "medical retirement" by going on SSDI at the age of 45, after working over twenty years with a definite diagnosis of MS at the age of 26; two weeks prior to his packing up his car and moving to Florida when he got the job as a United States Marshall for the S. District of FL in 1994. We've always had this "anniversary date." Both of our lives changed over Memorial Day weekend 1994.

Thanks for always letting me vent out "my poison" or toxins. It's only other MSers who get it, right? Family is family, but people change and it's heartbreaking at times. Your .GIF speaks so eloquently to so many things I would like to say to him! Blessings! 😇🙏🙂🤞

[falalalala]

Same here.

[Morllyn]

Same here lady!

[Tazmanian]

Keep on keeping on

[hairbrain4]

Same here🤗

[Kit10]

I wish people would take me seriously when I say I'm overheated and not react as if I'm just chatting about the weather.

[kdali in reply to Kit10]

💯

Heat

[mrsmike9 in reply to Kit10]

Or say, "oh, I get hot/tired/etc., too." It's not the same.

[ahrogers]

I rarely discuss it but when I do it is pretty matter of fact. It is usually because some asks why I am limping.

[Cwright170994]

I remember meeting a woman in a pub's toilets, and she asked me why I used my stick. This woman was about 45-55, and when I told her I have MS, she told me of her husband. Her husband has MS, and often couldn't go out for drinks for fear of being thrown out because the bar staff would see his wonky gait as the man being drunk. She cried, and I hugged her. My husband sent our female friend into the toilets to make sure I was alright because I had been in there a while. I did tell the woman my story, and how I've become stronger each day, with the help of DMTs.

I met my husband in 2015, and I was given my clinically definite diagnosis of RRMS a few months later. I think he looked into it himself, as he's been my rock ever since! I was doing a nursing degree, had to drop out at the end of year 2, but the things I learnt have stayed in my mind (miraculously!) I remember us moving in together, and went out for a drink with his best friend. We were walking home (it wasn't a far walk) and a few houses away from the friend's house, he had a generalised seizure. We had diverted as we were going back to our home. Husband heard something drop behind us, turned to look, and told me. I went instantly from "drunk Charlotte" to "nurse-mode Charlotte". We ran to the friend, and I got the friend into the recovery position, whilst at the same time instructing husband to start a timer. The friend didn't need an ambulance. On our way back home, when everything had calmed down, I told husband why I did everything I did, and how to get someone into the recovery position. He's definitely remembered that, as a year or so after, I had a generalised seizure one evening myself! It was only us 2, as it was in our home, and the generalised seizures are a new symptom. It certainly helped when I was open and honest at the beginning of our relationship, sharing all my medical information and giving him short lessons. He's still with me, obviously 😂 sometimes, it's good to be honest and wear it on your sleeve. If I were to ever need to be hospitalised, like I first did in April 2021 after having 3 seizures in a row, I know he's there to fill me in on what happened during my seizures. However, I don't want to discuss it with a random person on the street. I let my MS Awareness tops do that for me, just so I don't get mobbed by people.

[Cutefreckles72]

I agree. If anyone ask I will definitely educate them. 👍

[mrsmike9]

Very well put.