MS VACCINE?!: Has anyone else seen this... - My MSAA Community

My MSAA Community

9,440 members21,224 posts

MS VACCINE?!

cassielynn71 profile image
24 Replies

Has anyone else seen this?!? How wonderful would it be to feel GOOD again????

scitechdaily.com/new-vaccin...

#MSCURE

Written by
cassielynn71 profile image
cassielynn71
To view profiles and participate in discussions please or .
Read more about...
24 Replies
NanciG profile image
NanciG

That would be wonderful. My MS specialist is at UC, so guess what we are going discuss at my next appointment!!!

cassielynn71 profile image
cassielynn71 in reply toNanciG

Please keep us updated if he has any further info on this!!!❤️

NanciG profile image
NanciG in reply tocassielynn71

Absolutely!! If they just finished Phase I clinical trials, we have several years to wait.

kycmary profile image
kycmary

That would be wonderful if they have. I wonder how much it will cost?

cassielynn71 profile image
cassielynn71

I’ll save up for 10 yrs if I have to! 😝

I was in getting my Ocrevus infusion when I shared this. Naturally I shared it with them as well. The consensus was that it won’t pass because Big Pharma and other Health industries will lose too mush money.

I mean, I was at an MS Clinic. What would they rely on for income/profit? Think of all the other industries that benefit from our bad health. And this is for Crohn's, Type 1 Diabetes, and almost the entire scope of autoimmune diseases. Those industries will lose billions if it works.

I will hope with all my heart, but I won’t be shocked if it’s “proven” not to work 😞

starlight5 profile image
starlight5 in reply tocassielynn71

That was my first thought too, how did it get this far without being squashed by big pharma and the medical industry as they stand to lose billions. Hopefully the trials continue and are not interfered with 🤞

Also that SciTechDaily is a reputable site

cassielynn71 profile image
cassielynn71 in reply tostarlight5

Agreed! When my Aunt sent it I didn’t believe it until I read the article myself. There’s another one in the works as well that she sent me last mos.

My Mom called it too. We have a local morning new anchor that has MS. She has brought so much awareness to MS in our area with major MS Walk plugs on air and she’s got a team as well. When my Mom saw this she said,”Now we need somebody in the Senate or Congress to get dx’d because THEN things will happen!” And you know what? Exactly that happened 3-4 years ago. I’ll have to Google it to see if it’s them personally or their wife, hubby, sibling or child. And we’ve had a few new treatments and way more breakthroughs than ever before that.

Now we wait. Let’s see how far it gets.

ahrogers profile image
ahrogers in reply tocassielynn71

Mitt Romney's wife has MS

carolek572 profile image
carolek572CommunityAmbassador in reply toahrogers

Don’t hold your breath, ahrogers , as he is retiring from politics and is not running for reelection.

ahrogers profile image
ahrogers in reply tocarolek572

There may be others but that doesn't mean anything. We can hope for the best I guess. Of course the vaccine has to pan out as well.

ahrogers profile image
ahrogers in reply tocarolek572

trahan.house.gov/news/docum...

You inspired me to research a little and discovered there is a MS caucus in congress. I had no idea but I am happy about it!

carolek572 profile image
carolek572CommunityAmbassador in reply toahrogers

Didn’t know that about Lori Trahan, and I used to live in her district,  ahrogers ! Thank you for teaching me that! :-D

ahrogers profile image
ahrogers in reply tocarolek572

We learn something new everyday 😊

mrsmike9 profile image
mrsmike9 in reply tocassielynn71

True. That makes me think about electric cars and how all the industries yelled about them. Hopefully they'll find some other way to get their money.

Greentime profile image
Greentime

wow! I had never heard of anything like this before! Wouldn’t that be amazing!

BettysMom profile image
BettysMom

I've been reading about inverse vaccines. It's interesting, but I don't find it that exciting. If it can eliminate the immune response that causes MS, it will be the holy grail of DMTs. But to say it will "completely reverse MS" is a misstatement. While it might allow for remyelination, it won't replace all the nerves and brain tissues that have been destroyed over the years in all of us. Of course, it would be a godsend for those early in the disease process.

goatgal profile image
goatgal in reply toBettysMom

Thank you. It may someday be possible to prevent MS before it begins, but there is no cure that will restore us to before MS .

cassielynn71 profile image
cassielynn71 in reply togoatgal

No, I agree, sadly it won’t. I’ve got a “Black Hole” that won’t ever see repair and I’m sure many of you have multiple Black Holes and severe irreversible damage.

I’m only seven yrs in and have had AFO’s, a walker, canes, many relapses and 4 medication changes, all in that short period of time. I’ve recovered 100% in a most. I’ve been lucky. I would likely respond wonderfully to something like this.

Sadly, I am sure it would only work to stop further progression in many who have severe and permanent damage. But to have a one or even three shot deal that would stop ANY further damage forever would be AMAZING.

dianekjs profile image
dianekjs in reply toBettysMom

⬆️⬆️⬆️ This. I don’t want to be a buzz kill, but this news aggregator uses irresponsible and overstated headlines for click-bait. It IS potentially exciting and legit research, but claiming “complete reversal “ is sensationalized and preys on a vulnerable and desperate patient population. Complete reversal would include reversal of existing damage, which hasn’t been demonstrated anywhere in the research. Also realize that this looks promising in a lab but still has a long way to go before we’ll know if it translates to humans and to what degree. Med/sci background and in medical research here; this is intriguing early stage research that looks promising but can’t ethically make the claims this publication made in the headline. Always refer to the actual resource and source, not the various aggregator sites and apps that need to drive traffic to their platforms. The actual research is still only available by subscription through the research institute, but here’s a link to a more responsible interpretation. It’s still overstating somewhat but is an improvement. insideprecisionmedicine.com...

Sleepy01 profile image
Sleepy01

I did see it! I was like Woahhh! Yaayyyy for so many!! I wonder how long it will take for it to be available and if we can all get it?!! Exciting news for sure! Asking my neurologist about it…

lbenmaor profile image
lbenmaor

That would be amazing! Please keep us updated..

Leslie

Elizt3 profile image
Elizt3

I’m not counting on it having any impact on me. I am 27 years in now. But I do think of my two daughters who are in their 20s. They have a grandmother and then me with MS. I know this is something that weighs on their mind. Perhaps if it’s ever needed, it might be available for them? Who knows? I just know that we are incredibly lucky compared to what was available in the 1970s and 80s for my mother. Basically nothing.

mrsmike9 profile image
mrsmike9

WOW! I had not heard of this. What a breakthrough!

rgdickson10 profile image
rgdickson10

Wow! I just read the article! It seems to be only a few weeks old! This looks very promising!

I am 57 and am feeling more effects of my MS as I get older. To be able to stop and even reverse progression would be huge!

Not what you're looking for?

You may also like...

Covid-19 vaccine & MS

Has anyone here, with MS, had the Covid-19 jab yet? How do you feel? Better or worse? Ta.
ekelks profile image

COVID vaccine and MS

Has anyone with relapsing/remitting MS who is not on DMT had the COVID vaccine? If so, I am...
Donna5658 profile image

Shingles Vaccine, MS & DMT's

Hi All, How many of you have had the Shingles Vaccine? My PCP encouraged me to get it (the newer,...
DM0329 profile image

MS, Ocrevus And Timing Of Covid Vaccine

This article from Neurology Today was really helpful....
Midsomer1 profile image

Has anyone with MS had the shingles vaccine?

My sister recently got the Shingles even though she had the new vaccine. Her physician told her...

Related Posts

Moderation team

See all
johnMSAA profile image
johnMSAAPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.