I just want to thank everyone for the very warm welcome. I feel as though I'm meeting long lost family members for the very first time and it's very comforting. I am pretty much isolated where I live...very, very rural. Lots of trees, etc. and as the years have gone by since the diagnosis of ms 6 years ago, my ability to work and to walk have drastically declined. Although there is still snow on the ground, with more in the forecast for this weekend, I have determined to start walking again. I'm able to do short walks with my little dog Emma Jean, and even though it looks like I've had too much to drink because of my imbalance and uneven gait,we go anyway regardless of what anyone might think. It helps to break up the monotony of just sitting all day and that's where YOU ALL come in! With the connections made here in this community it has done more for my morale than anything else has throughout the last few years. I just wanted to let you know and encourage each and everyone no matter what you're going through it sure seems to me like reaching out here is one of the best decisions you can make because you've made me feel like I belong! Love to all...💖
A Lot Less Alone: I just want to thank... - My MSAA Community
A Lot Less Alone
you DO belong! Lol about the looking like you’re drunk! I had to make it across the street to give my mail carrier mail. She said “have one for me”. I wish that’s what it was! It’s invisible. She didn’t know. Much love, joy, happiness to you too!
😂😂All the members should get together and walk en masse through your neighborhood.😅😅😂
Love that idea.....only remember to wear your parka!
I was thinking of wearing my worst bathrobe as it would add to the impression.😂
Hahahaha!
We must be twins! I walk like I'm drunk, too! Have for years, so I'm used to it by now, and most of the people I see around are too. If I notice someone sort of sneaking those sideways glances at me, I'll give them a big grin and ask " Want to Race?" I live out in the country too, although I had dug up my portion of it, and planted flowers there! Stop by any time, you are always welcome! Linda
Aww thanks Linda! We are way out in a national forest...lots of bear, wolves, eagles, coyotes, badgers, etc. We are on a tertiary road with campgrounds dotting it for miles so it makes me nervous when I hear a car coming either way. I have to actually stop Emma so I can stop until the car(s) pass. I don't know why it bothers me so much, maybe because I know that I "weave" on and off the road. My right knee would buckle violently almost causing me to fall but since my husband bought me a knee sleeve advised by my neuro, it has never buckled since. It's tried, but the sleeve has stopped it. I used to do face plants all the time before starting on my dmt after my diagnosis!
so happy to know you're enjoying reaching out to everyone. it does make a difference emotionally, since everyone understands your struggles. i'm glad you're walking again, too. how did you decide on the name emma jean for you dog? it's cute.🤗
Hi BlanketTime1,
Emma Jean is a 7 1/2 pound maltese shihtzu mix. We actually named her after my husband's grandmother...Emma, and my mom Jean. (Who unfortunately never got a chance to meet her.) 🙁
i'm sorry she didn't get to meet her namesake, but it's a lovely idea.
At the end of the day you are all that matters. Walk as long as you can, even if you look drunk. You deserve happiness everyday ☺️
Your feelings of acceptance and gratitude match mine, explaining why I come here every single morning without fail. If it weren't for this warm, supportive forum family, I would be (and feel) totally alone. There's an old adage about a bundle of sticks: one alone is easily broken, a bundle, bound together, becomes strong enough to support a roof. Together we too are stronger.
might some form of walker help. I am finding my upright walker very helpful for balance.
Hi Royce,
hope you're having a great day so far! Yes, a walker probably would help. The problem comes in the topography where I walk. It's all downhill one way and all uphill the other. Going down is actually pretty easy since I've started wearing my knee sleeve, it's the uphill that's tough and it takes sheer determination and a lot of rest stops, to make it back home. No problems inside the house since I'm a consummate "wall walker!"
keep i upt, remember wee are all in this for the long long haul.
What about two walking sticks?
So very glad you found us!
Glad you joined the group and keep writing I don't know if we can all make it to your house but going for a walk sounds good
Tuckernut, yourt post is such a joy to read. I am so glad we were able to reach out and touch your life in such a positive way. It is our mission in this chat room to be able to do just that and to help many who have MS figure out they're not alone. Now can I ask one favor of you and that is to pass the torch along and reach out and find others in your doctor's office or anywhere around you that have MS and pull them into our circle. Let them experience the love, compassion, and caring that you did when you joined our chat room. Thanks for the wonderful post. Fancy59.
This group was such a lifesaver to me when I was first diagnosed, but it's still wonderful. So glad you're here and get lots of support.
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