Brand new here: Hi everyone, so far having... - My MSAA Community

My MSAA Community

9,019 members β€’ 20,711 posts

Brand new here

β€’39 Replies

Hi everyone, so far having a difficult time trying to post and navigate, but then when you have ms sometimes you can expect difficulties sometimes! Will keep trying to get used to things here.... πŸ€”πŸ˜Š

39 Replies
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kdali profile image
kdali

Welcome!

in reply to kdali

Thanks very much kdali, I appreciate it!

Xvettech profile image
Xvettech

yes welcome!

in reply to Xvettech

Thank you very much Xvettech!It feels good just to be warmly welcomed!

Xvettech profile image
Xvettech in reply to

this is a good place! For everything! You can also message me anytime you need to talk πŸ™‚

in reply to Xvettech

How do I go about messaging? I just learned how to post a picture, not sure how to message though! I'm sure it looks like I've never seen a computer before! Lol!

NorasMom profile image
NorasMom in reply to

Make sure you start from "My feed" at the top left of the screen. To the right of your user name, you'll see blue print saying "What's your question?". Click on that, then select "My MSAA Community". You'll have to give it a title of some sort, then move down to type the main body of your message. That's where you can also add photos, emojis, etc. Then just click on the blue "Post" button.πŸ˜€

Xvettech profile image
Xvettech in reply to

press chat at top and then choose name. I don’t know how to post picsπŸ˜‚ it doesn’t work for me

carolek572 profile image
carolek572CommunityAmbassador

Welcome to the forum, Hidden ! As with everything new, it takes some practice before you feel comfortable with replies, posting, etc, but if I can do it, you can do it! In the meantime, look at mymsaa.org for more resources. I look forward to hearing more from you! Happy Trails! :-D

in reply to carolek572

Thanks for the helpful tips carolek572! 😊

Elizt3 profile image
Elizt3

welcome! Glad you found us. I think this is a great group that mixes discussion related to MS along with other fun in our lives.

in reply to Elizt3

It sure sounds like it will be an interesting journey here for sure, as well as fun!

falalalala profile image
falalalala

Welcome!:)

in reply to falalalala

Thank you so much!

Sandydemop profile image
Sandydemop

Glad you found us!

in reply to Sandydemop

I am too Sandydemop!

Mollyabigail profile image
Mollyabigail

Welcome, Tuckernuck! Are you newly diagnosed? I am just over 2 years in, and I am still learning. πŸ˜€ It gets better, I promise!

in reply to Mollyabigail

Hi Mollyabigail, no,not newly diagnosed...going on 6 years now. Started dmt right away and have been sticking with it all this time. 3 weekly shots of glatiramer acetate.

Thanks so much for the warm welcome!! 😊

twooldcrows profile image
twooldcrows

welcome to our group of people of all stages of MS and all ages and of course men and women ...so just join in any where that sounds interesting or having any questions for we all are learning to live with MS and have our own questions ...we show pictures of family ,pets ,vacations and of course some good and funny jokes...we also have our crying days and to complain about everything and anything that is bothering us ...don't be afraid to scream and holler ...it is okay we all have had our tantrums ...ahhahahhah...all in good fun or what we eat and the vitamins we have tried or doctors or videos or books it is all okay to discuss....love and happiness and lots of laughter ....

in reply to twooldcrows

Thank you SO much! I'm glad that after all this time, I at long last joined this group. Sounds like a great bunch here! I would love to share a picture from time to time, but not sure how to do that?

NorasMom profile image
NorasMom in reply to

Under the block for typing a reply or post is a row of icons for Bold, Italic, Underline, etc. Click the last one, and it'll open a window for you to load a saved photo from your computer.

blossoms on a hawthorn tree
in reply to NorasMom

thanks for the tip! I had to practice...easy! ( The picture ofEmma looks like a godzilla version! Huge!)

Slowgoat13 profile image
Slowgoat13

Welcome πŸ€—Hope you enjoy it here. It's nice to have people that know what you go through.

in reply to Slowgoat13

I'm sure I will Slowgoat13, you're absolutely right...it is so reassuring to know that others "get it!" Hope you're having a great day! πŸ’–

jimeka profile image
jimeka

Hi and welcome, enjoy, join in and have some fun or vent. No one will ever judge you here, blessings Jimeka 😊

in reply to jimeka

This is sure refreshing news jimeka, thank you for the encouragement!

mrsmike9 profile image
mrsmike9

Glad you found us!

in reply to mrsmike9

Thank you mrsmike9, it'll take me a bit to find my way around, but hopefully I'll get used to it quickly! πŸ€”

Tazmanian profile image
Tazmanian

Welcome

in reply to Tazmanian

Thank you Tazmanian!

Fancy59 profile image
Fancy59CommunityAmbassador

Welcome Tuckernuck to the MSAA family! There's no right way or wrong way to post so don't sweat the details. Just ask questions and we'll be happy to share common experiences with you. Simply jump in and find topics that you are interested in. That's the easiest way to take off in here. This chat room is full of some of the most kind, compassionate, and positive positive people I have ever met.. So don't worry about negativity or being made to feel inadequate because we will never do that. We're glad you have found us. Please take care and remember together we are stronger. Fancy59.

in reply to Fancy59

Thank you for your very kind words, they are very much appreciated!

starlight5 profile image
starlight5

Hello and welcome! hope you are having a good day! 🌞🌼🌺🌼🌞

in reply to starlight5

Thank you so much starlight5. I love your username! Yes, it's a cool, crisp day here so to me it feels refreshing. I can't believe that years ago when my husband and I would go on vacation, we would go to the hottest, most humid places...then came ms ugh!

starlight5 profile image
starlight5 in reply to

I became quite heat/cold sensitive with ms too. I like it best when the sun is hot but the air still colder in the 40-50's. April and May are usually good for that type of weather here but the sun hadn't been out much lately, which is getting depressing. We're supposed to get snow the first part of next week😣

in reply to starlight5

Good morning,

Snow here starting Saturday through Tuesday. Significant accumulation supposedly. At least it will keep the mosquitoes and woodticks at bay for a little longer! It's interesting you mentioned heat AND cold sensitivity. Me too. Sometimes it feels like someone dumped a bucket of ice water on me. It goes from my hands, arms, through my core down my legs.

I know I will end up paying for it, but the only way to get warmed up is by taking a very warm bath. Puts me out of commission for an hour or so, but it helps me.

bxrmom profile image
bxrmom

Welcome to the group Hidden ! Looks like you have figured out how to post to the group and reply! This is a great group to be a part of, glad you found us!

in reply to bxrmom

Thanks bxrmom! I'm learning! 😊

BlanketTime1 profile image
BlanketTime1

welcome!πŸ€—

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