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My MSAA Community

9,405 members•21,193 posts

All posts for September 2020

I have a question

What is TN?

RoyceNewton

•4 years ago

29 Replies

Newbie here, recently TN diagnosed, awaiting MS diagnosis

Just wanted to do a quick introduction-I was recently diagnosed with TN about 2 weeks ago, but I have read a frequent amount of TN being a warning sign for...

Just wanted to do a quick introduction-I was recently diagnosed with TN about 2 ...

Hidden

•4 years ago

5 Replies

New and looking for support groups

Hi! I'm new here and I am just trying to get information, understand more and be of support to my best friend who has been struggling with MS. She was once...

Hi! I'm new here and I am just trying to get information, understand more and b...

Kace

•4 years ago

13 Replies

Want to take advantage of all our features? Just log in!

Why?!

Why is it that on the hottest day of the year (110 degrees) my central air decided to take a rest?!? Looks like it will be a really long weekend. Right now...

Why is it that on the hottest day of the year (110 degrees) my central air decid...

2littletime

•4 years ago

21 Replies

Trigeminal Neuralgia and MS overlap?

I was recently diagnosed with Trigeminal Neuralgia but I have a lot of MS symptoms not yet explained. I am going to revisit my dr soon but my understanding is...

I was recently diagnosed with Trigeminal Neuralgia but I have a lot of MS sympto...

Hidden

•4 years ago

4 Replies

Understanding Symptoms of CIS/MS - Please Help

Do you still get flares in Clinically isolated syndrome ? I had right facial & tongue numbness 3 months back, The tests showed Non enhancing T2W1/Flair...

Do you still get flares in Clinically isolated syndrome ? I had right facial & t...

FindingAnswersMaccy

•4 years ago

9 Replies

Finally got home late last night!

And I don't even know what happened! Yikes! Except that I had 3days of prednisone, then saw my neurologist. Then the next day he wants me in the hospital.😐 He...

And I don't even know what happened! Yikes! Except that I had 3days of prednison...

Jesmcd2

CommunityAmbassador•4 years ago

50 Replies

Cleaning Help

House cleaning I was reading a post the other day about someone who received help with house cleaning do you have to be on Medicare or Medicaid to get...

House cleaning I was reading a post the other day about someone who received hel...

4432

•4 years ago

9 Replies

Post 683 Wake up and look around 4 Sep 2020

Wake up, open your eyes and look around. “YOU” are alive, a new day awaits “YOU”. No matter how last night was “YOU” have an opportunity to see today as a...

Wake up, open your eyes and look around. “YOU” are alive, a new day awaits “YO...

RoyceNewton

•4 years ago

1 Reply

Unnumbered post My superpower 4 Sep 2020

Good Friday morning my beloved family. I actually slept all night and only got up once to visit the toilet (bathroom), so it was a good night for me, and I...

Good Friday morning my beloved family. I actually slept all night and only got...

RoyceNewton

•4 years ago

14 Replies

Alternative/complementary treatment?

Has anyone ever heard of or tried the Tao Patch? I came across it online. $250 for 3 patches smaller than a button that adheres to your skin. Not FDA approved...

Has anyone ever heard of or tried the Tao Patch? I came across it online. $250 f...

Sandydemop

•4 years ago

24 Replies

blurred vision

i was diagnosed with ms in 2012,and never had a problem with my eyes,well last night i was watching tv with hubby and my vision got so blurred and I got...

i was diagnosed with ms in 2012,and never had a problem with my eyes,well last n...

pamgarner

•4 years ago

17 Replies

Voice issues

Does anyone have issues with their voice? Prior to my MS diagnosis, an ENT diagnosed me with muscle tension dysphonia. My symptoms were, and still are, a...

Does anyone have issues with their voice? Prior to my MS diagnosis, an ENT diagn...

Tulip77

•4 years ago

20 Replies

Unnumbered post. There is no cure for ms 3 Sep 2020

Sisters and brothers. There is NO cure for our condition. Unless "YOU" look at death as a cure. There are treatments. These are Disease-Modifying...

Sisters and brothers. There is NO cure for our condition. Unless "YOU" look ...

RoyceNewton

•4 years ago

3 Replies

1st Ocrevus treatment done!

I had my first Ocrevus infusion yesterday. 3 1/2 hours for the infusion and fortunately no reactions other than being a little tired and an expected blood...

I had my first Ocrevus infusion yesterday. 3 1/2 hours for the infusion and for...

BCMTN

•4 years ago

4 Replies

Funny Joke.

Diner! Kids eat free if you share your meal with them! Warm Wishes, Leslie

lbenmaor

•4 years ago

7 Replies

Tecfidera #11

I am day #11 of Tecfidera and everything seems to be going good. Just wanting a nap around noon time. I try to continue to be active daily with taking a walk...

I am day #11 of Tecfidera and everything seems to be going good. Just wanting a ...

JSSimp

•4 years ago

12 Replies

Unnumbered post a surprise 3 Sep 2020

Good morning my beloved ms family, I hope as always "YOU" are well and last nights sleep was better than mine. Okay enough Pussyfooting around. The surprise...

Good morning my beloved ms family, I hope as always "YOU" are well and last nigh...

RoyceNewton

•4 years ago

3 Replies

thanks for all your anwers

I want to thank everybody that answered my few posts thanks again.

Hidden

•4 years ago

7 Replies

A Bouquet for You

But I’m keeping it! This is my first collage quilt. I learned a lot and hope to get better. I was glad my arms had the strength to do it. It also gave me an...

But I’m keeping it! This is my first collage quilt. I learned a lot and hope to ...

greaterexp

•4 years ago

41 Replies

2nd Ocrevus done!

Hi Everyone, I hope your having a good day. Just a quick update. I had my 2nd dose of Ocrevus on Monday. This time they gave me lots of pre meds iv( Benadryl,...

Hi Everyone, I hope your having a good day. Just a quick update. I had my 2nd do...

Ladybriars

•4 years ago

17 Replies

Unnumbered post ms is lifelong 2 Sep 2020

Good Morning family. All are well and pain-free I hope, or at least as pain-free as we can be A quick reminder. Do NOT be tired. This IS a LIFELONG...

Good Morning family. All are well and pain-free I hope, or at least as pain-fr...

RoyceNewton

•4 years ago

2 Replies

Just wondering

I'm so very tired how many catch alot of hell for no reason except your the patient the thing is getting old to me

I'm so very tired how many catch alot of hell for no reason except your the pati...

Hidden

•4 years ago

8 Replies

Morning silliness

Irina has decided I need her supervision to brush my teeth in the mornings. She usually has her tail in the sink and, of course, it gets wet. Today I used it...

Irina has decided I need her supervision to brush my teeth in the mornings. She ...

cindyrn68

•4 years ago

22 Replies

I’m 52!

Thank u for all your lovely messages xxxx ❤️

janetb1968

•4 years ago

4 Replies

Just sharing again....

I had an interview today with “help” coming in my apartment to do some chores... It breaks my heart, to not be able to do some things safely. I wanna...

I had an interview today with “help” coming in my apartment to do some chores......

Hidden

•4 years ago

44 Replies

Post 682 Take responsibility for yourself 1 Sep 2020

G’Day family. I hope everybody is well today. I was going to go to the gym, but changed my mind. It is to hot outside and with all this China virus...

G’Day family. I hope everybody is well today. I was going to go to the gym, ...

RoyceNewton

•4 years ago

4 Replies

avonex

I meant avonex: sorry for the typo.

Hidden

•4 years ago

Be the first to reply

anonex?

I have been taking avonex for close to two months. I get sick for 3 days. I take tylenol the first day. Then I have feelings like hot flashes/menopause for...

I have been taking avonex for close to two months. I get sick for 3 days. I ta...

Hidden

•4 years ago

26 Replies

more research...

interesting read. Maybe a time will come where there is a treatment that is much more targeted and only depletes the types of B-cells that are troublesome...

interesting read. Maybe a time will come where there is a treatment that is much...

anaishunter

•4 years ago

10 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for September 2020

I have a question

Newbie here, recently TN diagnosed, awaiting MS diagnosis

New and looking for support groups

Why?!

Trigeminal Neuralgia and MS overlap?

Understanding Symptoms of CIS/MS - Please Help

Finally got home late last night!

Cleaning Help

Post 683 Wake up and look around 4 Sep 2020

Unnumbered post My superpower 4 Sep 2020

Alternative/complementary treatment?

blurred vision

Voice issues

Unnumbered post. There is no cure for ms 3 Sep 2020

1st Ocrevus treatment done!

Funny Joke.

Tecfidera #11

Unnumbered post a surprise 3 Sep 2020

thanks for all your anwers

A Bouquet for You

2nd Ocrevus done!

Unnumbered post ms is lifelong 2 Sep 2020

Just wondering

Morning silliness

I’m 52!

Just sharing again....

Post 682 Take responsibility for yourself 1 Sep 2020

avonex

anonex?

more research...

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