Alternative/complementary treatment? - My MSAA Community

My MSAA Community

9,441 members21,224 posts

Alternative/complementary treatment?

Sandydemop profile image
24 Replies

Has anyone ever heard of or tried the Tao Patch? I came across it online. $250 for 3 patches smaller than a button that adheres to your skin. Not FDA approved as a medication but some claim that it helps people with MS balance, walk, etc.

thanks,

San

Written by
Sandydemop profile image
Sandydemop
To view profiles and participate in discussions please or .
24 Replies
greaterexp profile image
greaterexp

I think someone posted about this not long ago. You might try the search button to read what was said. When I looked into it, everything pointed to a lot of hype, but it might work for someone.

Sandydemop profile image
Sandydemop in reply togreaterexp

Thanks greaterexp for your wisdom here. Probably not worth trying.

Frances_B profile image
Frances_B in reply togreaterexp

greaterexp - seems like you saw the same pigs flying past that I did...

One of the pieces of so called "evidence" being cited on their website by the sellers of this 'device" actually referred to studies that had been done on plants FFS - which really proves beyond all doubt that it will work with MS - not! Yes, I'm being a tad sarcastic, but is it any wonder..........

There is a never ending supply of people ready to prey on the vulnerable and gullible and desperate, and having looked at some of the stuff on this patch, it seems like it's just same old, same old yet again.

kdali profile image
kdali

Was it an ad on Facebook? I saw a patch thing, but I thought it was for pain. Of course they had lots of positive comments, but you don’t know of those are real.

CV97 profile image
CV97 in reply tokdali

Yes, ads all over Facebook. You can also attend online webinars with the creators. Uses Low Level Light Therapy, which sounds like a promising therapy if you look it up.

I'm not sure if I really believe such tiny things can do so much.

kdali profile image
kdali in reply toCV97

I have a habit of setting money on fire in the name of self-research, but I just got the vibration plate and forget to use it because it’s in the basement 🤦‍♀️

CV97 profile image
CV97 in reply tokdali

Same. I justify it a lot. Well, IF it works it's only $4/ month over the 2 years. And if it doesn't (or I stop using it), I'm only out a hundred bucks.

It's not terribly rational, but makes me feel better about trying it.

kdali profile image
kdali in reply toCV97

I would rather try something than sit around grumbling about how nothing could possibly improve my situation, but it is costly. I wish I could have back all the money I’ve spent on supplements 😬

Sandydemop profile image
Sandydemop in reply tokdali

We never know what the road not taken looks like but I get it. Trying to get in more exercise myself. Also spoke to a nutritionist recently. He made a few supplement type suggestions so I'll let you know.

CV97 profile image
CV97 in reply tokdali

Last thing I took a chance on was the inversion table. That has been worth every penny for me.

Sandydemop profile image
Sandydemop in reply toCV97

Ok, i don't like being upside down myself but if it works for you, great! what does it do for you?

CV97 profile image
CV97 in reply toSandydemop

It has a strap to limit how far you go. Never actually been upside down.

I use it to stretch out my back, sides, and shoulders.

Sandydemop profile image
Sandydemop in reply toCV97

Have you ever done me yoga?

CV97 profile image
CV97

I bought it for $99 when they launched on indiegogo in July. I had been researching it since early June. The price was low enough I didn't mind trying it (especially if it works for 2 years). It arrived late August, just after I went back to work. I had it on for about half hour the other night to do the before/15 minute video recordings that they want you to do when starting. It's hard to tell if it helped much by 15 min without seeing the videos side by side.

Hoping to start the step up tomorrow with 4 hours per day for a week, then move up to 8 per day the next week.

jimeka profile image
jimeka in reply toCV97

Please will you let us know how you go on, it sounds intriguing 👍 😊

CV97 profile image
CV97 in reply tojimeka

Will do.

I'm not looking for a miracle cure. I'm hoping it just improves my balance a little bit so I look less like a drunkard walking the halls at work.

I'm all for trying a small, noninvasive device before putting more chemicals in my body.

Sandydemop profile image
Sandydemop in reply toCV97

I'm all ears. I do not like looking like a drunken sailor either.

CV97 profile image
CV97 in reply toSandydemop

2 things are certain at this point.

1. I cannot pass a sobriety test based on my lack of ability to walk heel to toe.

2. The tape that came with the taopatch is not strong enough to survive Illinois' summer humidity. Patches did not stay on well for the 4hr trial.

Sandydemop profile image
Sandydemop in reply toCV97

So sorry that it didn't work for you. Can you try a type of medical tape? there is the kind that comes in a first aid kit. And yes, i would not like to have my sobriety questioned based on my walking. Take care

CV97 profile image
CV97 in reply toSandydemop

I'll figure out something to use. I have plenty of tape here to try tomorrow.

rjoneslaw profile image
rjoneslaw

I just searched the web and the people on the site didn’t have good reviews about it

Here is the link below to the site

msconnection.org/Discussion...

goatgal profile image
goatgal

Ah, the power of wishful thinking,,,if I spend 250 dollars on something I would want to believe it was working...and maybe I could fool myself into thinking it was money well spent

greaterexp profile image
greaterexp in reply togoatgal

That placebo effect can be just as powerful as any drug. But I'd rather pay $1 for a 1000 gelatin caps I fill with sugar to get the placebo effect than make someone else wealthy off my desperation. Of course, I'd have to get someone to fill them for me so I wouldn't know they were placebos!

Sandydemop profile image
Sandydemop

Thanks everybody for sharing your experience. I have decided not to try it. :( I'm open to non drug alternative or complementary treatment but this just doesn't pass muster. I don't want to be desperate. However, if anyone has a good experience, please share. thanks again.

Not what you're looking for?

You may also like...

Alternative/complementary treatments for MS

https://www.verywellhealth.com/cam-for-ms-2440488 i found this article interesting so i thought i...
Sandydemop profile image

non medication alternative/complementary methods to feel better

Hi All, I discovered this music therapy website and wanted to share it with you if you haven't...
Sandydemop profile image

Treatment plan

Well; today was the day..... the DMT talk with my Neurologist. He’s a bit concerned to report that...
4krobh profile image

new treatment

My neurologist has let me know that I have an “aggressive and advanced” MS based on my age (28) and...
LakerLi14 profile image

Stem Cell Treatment

Has anyone done Stem cell treatment for their MS and had success in reduction of their daily...
nicoly3467 profile image

Moderation team

See all
johnMSAA profile image
johnMSAAPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.