new information for me from dr today - My MSAA Community

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new information for me from dr today

pamgarner profile image
6 Replies

I went to my neuro today,and we were discussing how I felt terrible at 5 months after infusion of Ocrevus and I thought I needed it at every 5 months not 6 mo.He said that is possible and I would have to have a blood test at 5 months and see if ocrevus is still active in my system.then we can prove to the insurance we need it earlier.It is a large neuro dept and he said they have several patients that have infusions at 5 months.between that 5month and 6 month is pretty rough for me.hope this is useful to someone.

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pamgarner
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rjoneslaw profile image
rjoneslaw

thanks

mrsmike9 profile image
mrsmike9

Hopefully they can get it figured out so you don't feel so bad!

IFwczs profile image
IFwczs

I am hoping to switch to 5 months myself. There was actually a study showing B cells start to come back up after 5 months. My neuro wants to see my blood test first.

kdali profile image
kdali

Awesome!

carolek572 profile image
carolek572CommunityAmbassador

That sounds wonderful, pamgarner and hopefully, it will work for you. :-D

RoyceNewton profile image
RoyceNewton

interesting thank you very much

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