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All posts for April 2019

First full dose of Ocrevus

Yesterday I had my first full dose of Ocrevus. The only thing different was a slight headache that evening & feeling like my heart was beating hard which I'm...

Yesterday I had my first full dose of Ocrevus. The only thing different was a sl...

hairbrain4

•5 years ago

6 Replies

SPASMS! What to do???

Woke up this glorious morning screaming with the worst whole gastrocnemius muscle spasm of my life. I thought it might separate bones from tendons. Pulling...

Woke up this glorious morning screaming with the worst whole gastrocnemius muscl...

Bodega1939

•5 years ago

12 Replies

MS Attacks getting, less severe?

Ive been getting about one relapse a year, but my recent relapse was so soft it cured itself without treatment. It was much softer than my previous relapse,...

Ive been getting about one relapse a year, but my recent relapse was so soft it ...

Lulzy

•5 years ago

6 Replies

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This is Me

So true 🤪

TracyBelle

•5 years ago

7 Replies

Long term

Long term, let me say that again. Long term. Your entire life, at least the rest of your long life. Until the day “YOU” are pronounced dead. Your heart...

Long term, let me say that again. Long term. Your entire life, at least the ...

RoyceNewton

•5 years ago

4 Replies

For Falalalala

These are about 3" wide. I bought several so that I may adorn all my hats with one. So no matter which hat I am wearing when I go through the gate where the...

These are about 3" wide. I bought several so that I may adorn all my hats with o...

goatgal

•5 years ago

15 Replies

Getting Insurance to pay for Ocrevus in children

Does anyone have any tips on how to get our insurance to pay for Ocrevus in our 13 year old daughter? She was just diagnosed last month with MS (blurry vision...

Does anyone have any tips on how to get our insurance to pay for Ocrevus in our ...

LorenzoOilMom

•5 years ago

11 Replies

Mental Health Doctors

Hi Guys! I am finally finished with my work position and fully retired now. Well, I don't work any more without any retirement benefits, haha! I am catching...

Hi Guys! I am finally finished with my work position and fully retired now. We...

jodigirl750

•5 years ago

21 Replies

Failure

Failure, certainly not something that I like to do, but something I am very familiar with, in this my long life with Relapsing-Remitting ms (RRms). How I...

Failure, certainly not something that I like to do, but something I am very fami...

RoyceNewton

•5 years ago

1 Reply

Accredo really can't make up their mind

I had told them in January to take me off their list because I fill my Tecfidera through my mail order pharmacy (Express Scripts). Feb and March they kept...

I had told them in January to take me off their list because I fill my Tecfidera...

bxrmom

•5 years ago

2 Replies

Easing back into my life

Once again, I was greatly disappointed with a neurologist who purports to specialize in MS. When I moved across the country, I left a very good neurologist at...

Once again, I was greatly disappointed with a neurologist who purports to specia...

goatgal

•5 years ago

8 Replies

Fear

Long long ago I read a book for the first time, I have read it several times since. In the book was a line, Fear is the mind killer. Probably not the...

Long long ago I read a book for the first time, I have read it several times sin...

RoyceNewton

•5 years ago

5 Replies

"Planning for Your Future" - Read the Latest Edition of The Motivator

MSAA is proud to present the newest edition of The Motivator! The cover story for this edition is "Planning for Your Future" and defines the legal and...

MSAA is proud to present the newest edition of The Motivator! The cover story fo...

MSAA_Staff

•5 years ago

1 Reply

Side photo Turbomed AFO

Another photo of AFO

Kenu

•5 years ago

Be the first to reply

Deedeedah reply to AFO’s.

The blue one was my first Turbomed afo for outside of shoe 👞. Turned out Great 👍. Will work on all my shoes and allowed my calf and achilles to strengthen to...

The blue one was my first Turbomed afo for outside of shoe 👞. Turned out Great ...

Kenu

•5 years ago

12 Replies

Just relax I got you covered.

It was a request and the first time I've done animals. It is a 16 by 20 oil painting I hope it's okay I just need to tighten it up a little to finish it. It...

It was a request and the first time I've done animals. It is a 16 by 20 oil pain...

mhansenm1

•5 years ago

13 Replies

Old Timers

Old timers, I’m reaching out to you because I want to know about your experience with CAMS (complementary alternative medicines) what makes you feel good or...

Old timers, I’m reaching out to you because I want to know about your experience...

Lhallgrigsby

•5 years ago

18 Replies

Albino Robin!

First one I have seen 👍😉Ken 🐾🐾

Kenu

•5 years ago

23 Replies

Look for a pot of Rubies.

Rubies are worth a lot more than gold or diamonds. What we have my family is a chronic incurable debilating condition. Every time something negative...

Rubies are worth a lot more than gold or diamonds. What we have my family is a...

RoyceNewton

•5 years ago

3 Replies

Game of Thrones

Game of Thrones, Thursday to Sunday night binge watching, I have to get a life. My Dragon flag the neighbors gave me was up as was there's. My bum is sore...

Game of Thrones, Thursday to Sunday night binge watching, I have to get a life. ...

RoyceNewton

•5 years ago

3 Replies

Orthotics for running? I've been seeing many AFO's coming out of the VA for people with drop foot. Do you like yours and why?

Post a pic of your AFO Did you use an orthotist to be fitted? How long has it lasted? Your pros and cons?

Post a pic of your AFO Did you use an orthotist to be fitted? How long has it la...

deedeedah

•5 years ago

9 Replies

SPASTICITY/SPASM REDUCTION

GOOD MORNING ALL! I'M NEW TO THIS FORUM BUT NOT TO MS. I WAS ORIGINALLY DIAGNOSED SOMETIME IN EARLY '98 BUT SYMPTOMS HAVE PAGUED ME SINCE 1980. PRESENTLY, I'VE...

GOOD MORNING ALL! I'M NEW TO THIS FORUM BUT NOT TO MS. I WAS ORIGINALLY DIAGNOSE...

chairbear

•5 years ago

62 Replies

I, too, am new but older than dirt!!

I, too, am a new MSAA member living where I know no one coping with or acknowledging their problems of fatigue, weakness and incoordination. Brief history: my...

I, too, am a new MSAA member living where I know no one coping with or acknowled...

Bodega1939

•5 years ago

19 Replies

Leg exhaustion

I’ve noticed that when I over do it or push myself to much I end up with my legs feeling very exhausted. I am able to walk but at a very slow (very slow) pace....

I’ve noticed that when I over do it or push myself to much I end up with my legs...

Eveliz

•5 years ago

13 Replies

Aubagio

I messed up took my last pill this morning going to be a week before I will have my prescription. Not concern about just thought I was keep!g up with my...

I messed up took my last pill this morning going to be a week before I will hav...

Hidden

•5 years ago

3 Replies

JumpStart—free one-day program from Can Do MS

These are already underway but perhaps there’s one coming to a city near you. Check out the link and apply for a spot! There was a Jumpstart program near me...

These are already underway but perhaps there’s one coming to a city near you. Ch...

Lilith08

•5 years ago

4 Replies

more advocates coming out with MS

I'm not a big "star" follower but it's good news to see famous people going public with their MS diagnosis. It will help on many fronts: awareness so that new...

I'm not a big "star" follower but it's good news to see famous people going publ...

anaishunter

•5 years ago

5 Replies

MS hug Fairey visited me, I think.

I awoke to the feeling of intense pain in the center of my chest, as if a hand had reached in and was squeezing my ribs together. It felt like intense acid...

I awoke to the feeling of intense pain in the center of my chest, as if a hand h...

Juliew19673

•5 years ago

10 Replies

Neuro outcone

Hi everyone so I went to neuro and he said I had a slightly exaggerated knee jerk and no abdominal reflex. I've never heard of this or knew it was a reflex!...

Hi everyone so I went to neuro and he said I had a slightly exaggerated knee jer...

VwPoppie

•5 years ago

12 Replies

How are you supposed to know the difference???

I just love questions from people in preparation for a dose of your medication. I’ve mentioned it a few times...I’m on Tysabri. Today was supposed to be my 5th...

I just love questions from people in preparation for a dose of your medication. ...

Gessika

•5 years ago

11 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for April 2019

First full dose of Ocrevus

SPASMS! What to do???

MS Attacks getting, less severe?

This is Me

Long term

For Falalalala

Getting Insurance to pay for Ocrevus in children

Mental Health Doctors

Failure

Accredo really can't make up their mind

Easing back into my life

Fear

"Planning for Your Future" - Read the Latest Edition of The Motivator

Side photo Turbomed AFO

Deedeedah reply to AFO’s.

Just relax I got you covered.

Old Timers

Albino Robin!

Look for a pot of Rubies.

Game of Thrones

Orthotics for running? I've been seeing many AFO's coming out of the VA for people with drop foot. Do you like yours and why?

SPASTICITY/SPASM REDUCTION

I, too, am new but older than dirt!!

Leg exhaustion

Aubagio

JumpStart—free one-day program from Can Do MS

more advocates coming out with MS

MS hug Fairey visited me, I think.

Neuro outcone

How are you supposed to know the difference???

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