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My MSAA Community

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All posts for April 2019

New focus group on the MyMSAA community!

MSAA and HealthUnlocked will be running an online focus group about your experiences of MS treatments and also navigating the healthcare system. This will be a...

MSAA and HealthUnlocked will be running an online focus group about your experie...

HelenHU

•5 years ago

53 Replies

tell people everyday you care

I had a girlfriend of 25 years commit suicide this week and it has made me think,we really don't know the dark places people are in,we need to tell our love...

I had a girlfriend of 25 years commit suicide this week and it has made me think...

pamgarner

•5 years ago

21 Replies

what if?

What if one of my many mornings with Relapsing Remitting ms (Rrms) I woke up, opened my eyes and decided today would be a good day. No, not a good day a very...

What if one of my many mornings with Relapsing Remitting ms (Rrms) I woke up, op...

RoyceNewton

•5 years ago

8 Replies

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Cynical old me

Okay twenty plus years in this game. The game of Relapsing Remitting ms (RRms). It is a game, I refuse to take it too seriously. Nobody gets cured,...

Okay twenty plus years in this game. The game of Relapsing Remitting ms (RRms)...

RoyceNewton

•5 years ago

14 Replies

In a hurry got podiatrist appointment

Having said that, G'day (Hello) I hope you whoever you are, wherever you are have a nice day. Royce

Having said that, G'day (Hello) I hope you whoever you are, wherever you are hav...

RoyceNewton

•5 years ago

2 Replies

I Feel So Isolated

It's a rough day, and I'm feeling whiney. My MS symptoms keep me from getting out much. I can handle three days a week, but am also hampered by the fact that...

It's a rough day, and I'm feeling whiney. My MS symptoms keep me from getting o...

Mickle13

•5 years ago

30 Replies

Changing to Ocrevus.

I have been on Aubagio since 2013. Now it's causing my blood pressure to stay too high My neurologist has suggested Ocrevus . I have not made a decision yet .

I have been on Aubagio since 2013. Now it's causing my blood pressure to stay to...

Clynnkir

•5 years ago

6 Replies

Swelling

Does anyone deal with swelling in their legs and feet?? I have had swelling since I had a bad reaction to lyrica. I have been to the doctor several times and...

Does anyone deal with swelling in their legs and feet?? I have had swelling sinc...

doveflyfree

•5 years ago

10 Replies

Hair loss

How many girls have had there hair falling out, I called my neurologist and spoke to her nurse and she stated it’s from the steroids they give before the...

How many girls have had there hair falling out, I called my neurologist and spok...

Horse714

•5 years ago

9 Replies

Hi all this post is not to scare anyone ❤️🙏 I know my mums ms was a bad case

Hi all I wonder if you can help me at all I seem to keep drawing a blank. This all started in September last year 2 months after my mother passed (47) from...

Hi all I wonder if you can help me at all I seem to keep drawing a blank. This...

Buckley123

•5 years ago

27 Replies

hope but ACT

Hope for great treatment, but act like there is going to be a need to be eligible for that treatment. It is okay to hope but in reality are “YOU” actually...

Hope for great treatment, but act like there is going to be a need to be eligibl...

RoyceNewton

•5 years ago

1 Reply

Hi all this post is not to scare anyone ❤️🙏 I know my mums as was a bad case

Hi all I wonder if you can help me at all I seem to keep drawing a blank. This all started in September last year 2 months after my mother passed (47) from...

Hi all I wonder if you can help me at all I seem to keep drawing a blank. This...

Buckley123

•5 years ago

Be the first to reply

Cough/Resp Infection

Has anyone had bronchitis or pneumonia on Ocrevus? I'm seeing a doctor today but I went to a walk in clinic on Saturday and they didn't do anything for me....

Has anyone had bronchitis or pneumonia on Ocrevus? I'm seeing a doctor today but...

sski1

•5 years ago

5 Replies

Back on site

HI I have been away too long far too many to mention cant wait to get back in the swing of things and keeping up with everyone kerry0915

HI I have been away too long far too many to mention cant wait to get back ...

kerry0915

•5 years ago

9 Replies

Ocrevus Issue?

Hello to you all! I had my first two half doses of Ocrevus last month. I had previously been on Aubagio but it was discontinued due to cardiac issues...

Hello to you all! I had my first two half doses of Ocrevus last month. I had pr...

jsb0410

•5 years ago

28 Replies

OHSU doctors part of 'breakthrough' research on treating multiple sclerosis

A friend sent this and thought I would pass it along. The link was sen to me via Facebook but the research looks promising....

A friend sent this and thought I would pass it along. The link was sen to me via...

chairbear

•5 years ago

6 Replies

Hospitalized

4 days ago I was hospitalized by 102.6 temperature when that happens my body shuts down and I can't move and I've been in the hospital since then that was the...

4 days ago I was hospitalized by 102.6 temperature when that happens my body shu...

mhansenm1

•5 years ago

17 Replies

Bless everyone in our group of MSers 👍

Hope everyone has a wonderful day 👍🙏😉 Ken 🐾🐾

Kenu

•5 years ago

3 Replies

Happy Easter!

I hear people say Jesus is the reason for the season but my happy easter to goes to all who believe and dont.To those who believe in spring, new beginnings,...

I hear people say Jesus is the reason for the season but my happy easter to goes...

jackiesj

•5 years ago

5 Replies

Infections

I recently shaved my legs and I may have brought an infection on they turned really red and there is a red line that’s diminishing but I’m terrified I may have...

I recently shaved my legs and I may have brought an infection on they turned rea...

Horse714

•5 years ago

11 Replies

It is so beautiful outside today!

Spring is here and I love being outside. We live in our own little forest here in Arkansas and like I have said before it is like my own little piece of...

Spring is here and I love being outside. We live in our own little forest here ...

hairbrain4

•5 years ago

17 Replies

Thought this was fitting 👍

😜😂🤣😆 Ken 🐾🐾

Kenu

•5 years ago

10 Replies

Food for thought

Good read

dailygrump40

•5 years ago

13 Replies

Happy Holidays

Happy Easter and Passover, to all my MS Warrior friends.

mrsmike

•5 years ago

7 Replies

My Mom

I had the RARE opportunity to go shopping today for a new Easter dress. Kohl’s had emailed me coupons and I haven’t shopped for myself in years. The problem...

I had the RARE opportunity to go shopping today for a new Easter dress. Kohl’s h...

TracyBelle

•5 years ago

11 Replies

Easter and Passover Blessings to Everyone!

Whatever you do, enjoy it with friends and family. :). Peace and Love NeeC

stepsforNeeC

•5 years ago

9 Replies

Potential Mylin Repair!

Researchers at OHSU have developed a compound that stimulates repair of the protective sheath that covers nerve cells in the brain and spinal cord. This...

Researchers at OHSU have developed a compound that stimulates repair of the prot...

Raingrrl

•5 years ago

26 Replies

Confused!!! Hahaha

I don't know what is going on. This morning when I got up. I knew I had 2 loads of laundry to do, so started with jeans and put the load that was washed last...

I don't know what is going on. This morning when I got up. I knew I had 2 loads ...

dailygrump40

•5 years ago

7 Replies

Every single day

Every single day “YOU” are a little different than “YOU” were the day before. It is not just this condition, it is life. “YOU” lived twenty-four hours...

Every single day “YOU” are a little different than “YOU” were the day before. ...

RoyceNewton

•5 years ago

4 Replies

My ocrevus experience

Greetings everyone! As with most everyone else, Walking is Still A negative issue for me. I had my first infusion of ocrevus on March 20th, so it has almost...

Greetings everyone! As with most everyone else, Walking is Still A negative issu...

positiveness

•5 years ago

14 Replies

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Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for April 2019

New focus group on the MyMSAA community!

tell people everyday you care

what if?

Cynical old me

In a hurry got podiatrist appointment

I Feel So Isolated

Changing to Ocrevus.

Swelling

Hair loss

Hi all this post is not to scare anyone ❤️🙏 I know my mums ms was a bad case

hope but ACT

Hi all this post is not to scare anyone ❤️🙏 I know my mums as was a bad case

Cough/Resp Infection

Back on site

Ocrevus Issue?

OHSU doctors part of 'breakthrough' research on treating multiple sclerosis

Hospitalized

Bless everyone in our group of MSers 👍

Happy Easter!

Infections

It is so beautiful outside today!

Thought this was fitting 👍

Food for thought

Happy Holidays

My Mom

Easter and Passover Blessings to Everyone!

Potential Mylin Repair!

Confused!!! Hahaha

Every single day

My ocrevus experience

Search posts

Pinned Posts

Latest poll

Have you ever attended a webinar hosted by MSAA?

Topics

Archive