First full dose of Ocrevus: Yesterday I... - My MSAA Community

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First full dose of Ocrevus

hairbrain4 profile image
6 Replies

Yesterday I had my first full dose of Ocrevus. The only thing different was a slight headache that evening & feeling like my heart was beating hard which I'm sure was the steroids since that's what used to happen when I had to get those infusions. But so far so good, no site or other reactions. One of the welcome side effects from the steroids is the back pain relief. I have stinosis on several vertebrae in my lower back & the pain relief is so welcomed! To get out of bed with no pain is so wonderful & such a blessing!

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hairbrain4
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greaterexp profile image
greaterexp

That's thrilling news! I hope Ocrevus works wonders for you!

hairbrain4 profile image
hairbrain4 in reply to greaterexp

So far so good! After the 1st 2 half doses, I have been able to get off of baclofen and modafinil. So now the only other meds I have to take are for thyroid and back pain unrelated to MS.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

I'm so glad that you are doing so well!! And hear ya about back pain! Enjoy it! 🤗💕

J🦈

jimeka profile image
jimeka

That’s good news, enjoy while it lasts, the steroids that is, Blessings Jimeka 🐣

hairbrain4 profile image
hairbrain4 in reply to jimeka

No kidding!

rjoneslaw profile image
rjoneslaw

I can wait to start my 1st infusion in June

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