Leg exhaustion : I’ve noticed that when I... - My MSAA Community

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Leg exhaustion

Eveliz profile image
13 Replies

I’ve noticed that when I over do it or push myself to much I end up with my legs feeling very exhausted. I am able to walk but at a very slow (very slow) pace. Does anyone ever experience this?

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Eveliz profile image
Eveliz
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13 Replies
rjoneslaw profile image
rjoneslaw

when that happens I immediately sit down for a few min til my legs recover. If I don't I'm dropping down to the floor and I'm not getting up til my legs recover or someone helps me up

jimeka profile image
jimeka

I know the feeling. I have to stop and rest and wait for the legs to recover. 😊

anaishunter profile image
anaishunter

same here. My body tells me that I'm reaching the line of too much by slowing down. It's like walking in slow motion. If I take a break then it gets back to normal, then repeat until it gets to a point where it's not worth it.

Also when I do it too much, I get sharp pain in my legs about 3-4 hours after exercise, nothing to do with muscle soreness with I get the next day.

CalfeeChick profile image
CalfeeChickCommunityAmbassador

When I really over-do it, my les go berserk! Super tingling, burning sensation on calves like the worse sunburn ever.

kdali profile image
kdali

Every day

Bodega1939 profile image
Bodega1939

My legs were and are my worst problem (except for fatigue and incoordination). Because of my age ("People your age don't get MS!") it took the longest time before my docs at at the VA listened. While I have never had tingling and burning, all the other symptoms of leg weakness are mine also. I have found even getting off a stool can leave me unable to move. But the worst is getting up after having fallen. Turning over and sort of swimming across the floor to where I can reach up and grab an edge is the only way except to turn over and gather my knees up to chest then pushing up with my arms. Sometimes that works. Otherwise, it is a case of wait and see.

KelliJ profile image
KelliJ in reply toBodega1939

I heard that too, “People your age don’t get MS!” Like MS know the cutoff age.

goatgal profile image
goatgal

Eveliz Me too. At the end of a long day, working in the garden, or an hour or so of walking, leg fatigue is an issue. On hot days, it takes a lot of effort to move them, like pushing myself through a vat of molasses.

DIsneyQueen profile image
DIsneyQueen

When I overdue I can barely walk and my footdrop is very pronounced. I have to sit down and rest. If I know I am doing something in the evening I pace myself during the day and limit my exercise. The warmer it is the worse it is. I don’t let it stop me, I just have to adjust like all of us with MS do

RoyceNewton profile image
RoyceNewton

great feeling is it not? I am just plain wobbly without doing anything, to get tired now that is good

Bodega1939 profile image
Bodega1939

Yes, you are right. Legs are a problem for many of us. Mine are unreliable anymore. I am not sure there is much we can do about it except try the newer medications that may enhance walking. I take Ampyra and I know within a couple of hours when I am late. It helps me so much. The other thing I do is quit doing whatever is making me so uncoordinated, spastic and tired. Sometimes it takes two days to get "over it". It seems like MS puts us in a constant state of "learning".

Raingrrl profile image
Raingrrl

Leg fatigue is one of my most frustrating symptoms. I’ve slowly improved the distance I can walk before that annoying leg muscle fatigue sets in and I have to rest a bit before continuing. The fatigue causes me to walk like a drunken sailor! Then when I continue, the fatigue sets in again at a shorter distance than the first time. I’ve improved a lot but can’t seem to improve beyond the distance where the fatigue sets in now no matter what I try.

I’ve tried Ampyra because it works for lots of people. It doesn’t work for me. It caused me to have horrible vertigo after just one dose.

Bodega1939 profile image
Bodega1939

My neurologist was really skeptical about Ampyra. He warned me that only 30% of the patients find taking Ampyra is effective for walking. I was skeptical, too, but I took it in the morning and literally an hour or hour and a half later I was walking. I couldn't believe it. And I am grateful.

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