Long term, let me say that again. Long term. Your entire life, at least the rest of your long life. Until the day “YOU” are pronounced dead. Your heart stops beating and there is no brain activity. That long term. Do I make myself clear? Have these words shaken your core, resonated with “YOU” or rung like bells in your ears? When “YOU” do nothing Relapsing Remitting ms (RRms) has a free ride, it has the ability to run amok through your Central Nervous System (CNS). It gets to cause whatever havoc that it wants to, and “YOU” my friend get to suffer, not anybody else, just “YOU”. That is why everyday I politely shove down your throat, take a disease Modifying Therapy (DMT) This is not a game, this is not a wait and see how it turns out situation. This requires ACTION and action NOW. These medicines are long term treatments, they slow the progression of your disease. Slow it, NOT stop it, slow it. That means that “YOU” can walk down your child's wedding aisle in twenty years, not sit in a wheelchair in the front row saying, IF ONLY, IF ONLY. This disease in all its forms is progressive, some more active than others, but it never stops doing damage. Get yourself on the strongest treatment that “YOU” possibly can. Yes, there are side effects, there is with most medicines and your DMT is a very strong drug. Find ways to get used to the side effects and take the medicine for as long as “YOU” possibly can.
I understand that some treatments do hurt and your body rejects them. I switched from Beta to Rebif a few years back and I could not cope with Rebif. It just hurt too much, so I went back to Beta. I did not stop DMT altogether, I just changed back. When Tecfidera became available I started that. My bony body was very tired of every other day injections. I still have the hard lumps from years of needles, and have a nice scar from a screwed up injection, but I never stopped taking a DMT. I never forget or brushed it off, and it has been over twenty years. I am thinking that they will put a tablet in my mouth just as I die. If I die at six am or six pm. It is that serious and it is that much a part of my life. When I was taking Beta, I had to be home by five forty-five pm to get things ready with absolutely no exceptions. I tell an untruth, as I remember international air travel did mess me up a little. Now I just set my watch to twelve hours and I take my tablet. When I get where I am going, back on the six am six pm schedule. I may be a little early or late but never more than an hour or two. Yes, I guess my life revolves around my RRms. This is not good or bad, it just IS. It just IS and I accept that. I take it into account in most everything I do. There are somethings that I will not do, like drive a car or have hours of hot sweaty sex, cook over a hot stove or have really hot showers. These are things that I cope with and accept. Not everything in life is how I planned it or how I imagined it was going to be. Life is still very good, I am happy and so can “YOU” be. Take your DMT and live your life with ms with no regrets or what ifs. Do not wait and see, feel good now and keep yourself feeling that way. It is harder to climb out of the depths than to never to have gone there in the first place.
Royce
On top of the hill, taking my DMT and living, just living
