Greetings everyone!
As with most everyone else, Walking is Still A negative issue for me. I had my first infusion of ocrevus on March 20th, so it has almost been a month. My body is still working hard. I have recently decided to take it easier with myself.
positiveness Good to hear from you. Have you seen any positive changes with your walking? Gait? Balance?
Keep Smiling.
Carole 
Hi! So far, I seem to feel less stiff at times, which is great, but my gait and balance are about the same at this time.
Good idea 🐣
June 11th will be my 3rd Ocrevus treatment and I show small improvements over the course from 1 year ago. Takes awhile and yes - beating yourself up, doesn't help. I hope the best for you!!
As much as I would like to say Ocrevus is a cure but it isn't. It's not even made to make you feel better. It's main function is to slow future exacerbations.
Has any physical therapy been beneficial to you? If that doesn't help than maybe Occupational therapy could help.
I've had to slow down my daily routine. My doctor said I'm at the best I'm going to be and I have still had to hold back on doing common things.
I wish I would of heard more people like you on my Facebook Ocrevus group. I heard a lot of people saying I can’t even tell I have MS. So of course when I started I was praying for a miracle. I’ve had MS for 21 years for 20 years I was very blessed MS had been very kind to me then 1 year ago MS showed it’s cruel side. When I went to my neurologist he said I believe this is your life for now on. I have sever nerve pain and MS hugs and spasticity. So far he has been right. I am not enjoying the new me. I do still have my sense of humor my kindness and my love for laughter so MS has taken a lot from me but thank God I still have that part of me
Wow! Thank you so much for your reply.
positiveness Patience is king with MS. My symptoms are quiet mild but visible improvements really happened 4-5 months after Ocrevus. Ocrevus should stop further damage, but your body still needs to repair from all past damage - Ocrevus does not do anything about that.
I strongly believe that your body can repair a bit on its on, but you can to help it a lot with diet and exercise. Help your brain build pathways around what's been damaged.
Thank you for that information, because I was wondering if it would take three or four months to see a difference or feel a difference. My wife says it took 16 years to get this way and that I should at least give the medication more time than 30 days.
Taking it easy is the key to keeping the energy level - level. I know at times when I actually have the energy I want to do everything that I wasn't able to do when I was tired. But that just makes things even harder when the energy runs out! Take things slow and enjoy the slow pace. You might find that you will notice a lot of interesting things along the way.
So true + thank you so much for your reply.
I like hearing others experience since I will start taking it in June
Please read my post about this and, more importantly, greaterexp's reply:
healthunlocked.com/mymsaa/p...
Thank you so much. It has been very informative reading the comments.
follow up on my 4th ocrevus
Convo with my neurologist about Ocrevus.
My First Ocrevus Dose
