Hair loss: How many girls have had there... - My MSAA Community

My MSAA Community

9,656 members21,544 posts

Hair loss

Horse714 profile image
9 Replies

How many girls have had there hair falling out, I called my neurologist and spoke to her nurse and she stated it’s from the steroids they give before the Ocrevus I’m having a little hard time believeing this. How about you guys what do you think??? And I like to know will my hair come back I’m not into wigs at all!!! I’ve been using rogaine and biotin from gnc hearing you can get cancer and now my hair falling out wtf

Written by
Horse714 profile image
Horse714
To view profiles and participate in discussions please or .
Read more about...
9 Replies
RoseySawyer profile image
RoseySawyer

I'm not on Ocrevus but I have been hearing about hair lost from some that had started on that infusion that experience hair lost but I haven't heard if it's from the infusion. ❤🌷

jimeka profile image
jimeka

I have never heard that you get hair loss from the steroids but others have stated that they do get hair loss from Ocrevus. You should take it up with your neurologist and doctor and see what they have to say. Let us know please how you get on, Blessings Jimeka 🦋

TonyiaR7 profile image
TonyiaR7 in reply tojimeka

I never had hair loss from steroids actually had an increase in hair before menopause. I have hair loss from menopause. I am not on Ocrevus. But my neurologist told me I should not get hair loss. I guess it in an individual occurrence.

Horse714 profile image
Horse714 in reply toTonyiaR7

My daughters a pharmacist in Colorado she told me it’s from the steroids so I looked up solumedrol and it does say hair loss, but I’ve been on it when I first had my first m.s symptoms and that was in 94 I don’t remember losing this much hair and it coming back in all frizzy. I wish the doctors would tell me/is the truth, I don’t want to disclaim the doctors/neurologist but come on now they’ve got to know what’s causing it.

Horse714 profile image
Horse714 in reply toHorse714

Also I was on Avonex for 15+ years and one of the side effects was hair loss I hardly had any hair loss on that med but at least they warned you.

rjoneslaw profile image
rjoneslaw

can u let me know what u find out Lord know I don't want 2 loss my hair. I will start Ocrevus in June

greaterexp profile image
greaterexp

webmd.com/skin-problems-and...

I have read of others using Ocrevus having some hair loss, but was it due to that or the steroids? I'm not thrilled about the hair loss possibility, as I'm starting Ocrevus (if insurance approves it) in the next few months, and I seem to have this as a side effect of some medications. Hmmm... wig, or MS? Maybe the wig isn't such a bad idea.

rjoneslaw profile image
rjoneslaw in reply togreaterexp

good point. If insurance doesn't pay they have a program that u can check out on their site

MSsongstress profile image
MSsongstress

Honey all you need is good old fashioned Castor oil. Try the mango and lime one. Few drops in center of scalp daily, honey your hair will be full, shiny and thick.

Take care

Not what you're looking for?

You may also like...

Should Ocrevus Begin Listing Hair Loss as a Potential Side Effect?

As I understand, Ocrevus is fairly new drug for the treatment of MS — a little over a year approved...
TMasonMckee profile image

OCrevus and hair loss

I’m so upset that I with no warning am now in position of losing my hair. This is aweful. I don’t...

hair shedding/breaking

I know this is an old post but have anyone suffering with this hair shedding/breaking found a...
Plantmom15 profile image

Vaccines when on Ocrevus and side effect of hair loss

So I just attended a Genetech webinar on Ocrevus. The neurologist answered my questions: 1. When...
erash profile image

Aubagio side effects

I just started Aubagio at the end of February. Near the end of March my finger tips went numb. The...

Moderation team

See all
johnMSAA profile image
johnMSAAPartner
DanaMSAA profile image
DanaMSAAPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.