hope but ACT

[RoyceNewton]

Hope for great treatment, but act like there is going to be a need to be eligible for that treatment. It is okay to hope but in reality are “YOU” actually going to be deserving and eligible for that great treatment, when it arrives one day. Seriously, stop look at yourself and your behaviors. Would an insurance company, a government, anybody spend the amounts of treasure on “YOU” to treat “YOU”? That is a serious question, in our modern day and age with limited resources and huge need, are “YOU” worth large amounts of money being spent on? Are “YOU” worth the investment is how people will look upon “YOU” In my case I am pretty sure the answer is no. I am a fifty year old man with very few skills these days, so no. I am not sure I would spend the money on myself, if I even had it. Which I do not.

So it all boils down to, are “YOU” making yourself as good as “YOU” can everyday, so that one day when that great treatment arrives “YOU” can start on it as soon as possible? Even if “YOU” are never eligible for the newest miracle treatment just keeping yourself as healthy as “YOU” can in the circumstances is a very good idea. I do not take the most effective medicine, but I am comfortable with that. I would suggest if “YOU” were younger or earlier in our illness that “YOU” might look into the most powerful medicine available. Why ever would “YOU” start on a Copaxone when there is an Ocrevus in existence. Start at the strongest medicine and work your way down if need be. Do not start near the bottom and work your way up. Our disease is never resting, it is in us and no matter what we do or do not notice damage is being done in our bodies. Do yourself the favor that “YOU” deserve and “YOU” do serve it if nothing else but your family and their pleasure of experiencing “YOU”.

Having said all that I might leave “YOU”with another thought for the day. “YOU” are worthwhile, “YOU” are valuable. Just because”YOU” are afflicted by this condition it does not make “YOU” worthless. There is value in “YOU” it may not seem it now, “YOU” may not see or feel it everyday but there is value in “YOU” Remember that fire burning in “YOU”? How small it once was, how as each moment passes, each obstacle is conquered, how your fire burns a little brighter in “YOU”. That is your worth, your value, your strength. Feed that fire with positivity. Our illness tries to break us down to crush us. Be like bamboo. Bend, bend, bend, then when “YOU” can bounce back. Maybe slowly at first, maybe never as tall and straight as “YOU” once were, but never totally crushed. This illness requires an effort from “YOU” every moment of everyday, but “YOU” my friend are up to the challenge. Keep moving, be smart and be resilient. Relapsing Remitting ms (RRms) wants “YOU” to give up. It wants “YOU to in that dark corner forever, just quivering and crying. There is no need to. This is a doable condition so why do “YOU” not take a step and start doing it?

Royce

One step at a time, one after the other

[carolek572 CommunityAmbassador]

Be good to yourself, Royce. Excellent post, as always.