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All posts for September 2018

Vaccines when on Ocrevus and side effect of hair loss

So I just attended a Genetech webinar on Ocrevus. The neurologist answered my questions: 1. When can you get a vaccine once on Ocrevus? Vaccines (not live or...

So I just attended a Genetech webinar on Ocrevus. The neurologist answered my qu...

erash

•6 years ago

22 Replies

Ok ladies

Do you sleep with your bra on or off??

tiffie07

•6 years ago

22 Replies

Ibudilast? Anyone familiar?

I ran across this this morning and wondered if anyone knew more about this drug? My neuro is on the fence on whether I'm RRMS or SPMS with relapses....

I ran across this this morning and wondered if anyone knew more about this drug?...

Doxytoo

•6 years ago

2 Replies

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Tailbone Pain

The past 2 days ive been experincing sereve tailbone pain/dull soreness. I havent had any injuries and im worried it could be a new MS sx. Has anyone ever...

The past 2 days ive been experincing sereve tailbone pain/dull soreness. I haven...

Eveliz

•6 years ago

15 Replies

Don't worry about a thing

' cause everything is going to be alright. Bob Marley. It really will be, believe me. I have a large book I have to read, but if "YOU" are scared write me I...

' cause everything is going to be alright. Bob Marley. It really will be, believ...

RoyceNewton

•6 years ago

7 Replies

Quilt for a struggling young gentleman

I met this young man a couple of months ago who has had nothing but struggles all of his short life just to stay alive. His sweet parents take such wonderful...

I met this young man a couple of months ago who has had nothing but struggles al...

greaterexp

•6 years ago

19 Replies

Finally got my appoint for Ocrevus Infusion!

It took forever but I finally got an appointment for my first Ocrevus infusion! Sept. 10 at 9:30 am. I had to jump through hoops to get approvals from...

It took forever but I finally got an appointment for my first Ocrevus infusion! ...

hairbrain4

•6 years ago

13 Replies

Memorial Day Thankfulness....

I am grateful to all who have or will protect and serve us...I pray for peace also. I seem to pray for a lot....and yes, answers do come...sometimes in small...

I am grateful to all who have or will protect and serve us...I pray for peace al...

jackiesj

•6 years ago

4 Replies

Siponimod for SPMS

This is a drug recently in phase III clinical trials where it showed great promise for SPMS. I can't find whether or not it is available to the public. Has...

This is a drug recently in phase III clinical trials where it showed great promi...

Ikeeptrying

•6 years ago

7 Replies

Copaxone and hair

Anyone who has been on Copaxone have hair loss/thinning due to drug? My neurologist & Shared Solutions staff say “it was not reported in clinical trials.” If...

Anyone who has been on Copaxone have hair loss/thinning due to drug? My neurolog...

Rileymom

•6 years ago

25 Replies

Difficulties in life

rjoneslaw

•6 years ago

6 Replies

Who do you let win your mind or body?

Monday -Friday my mind wins Saturday and Sunday my body wins

rjoneslaw

•6 years ago

7 Replies

When we to just go for it when we can

Just do it

rjoneslaw

•6 years ago

5 Replies

POST #2 I WAS HAVING A BETTER DAY UNTIL I FELL:(

The day started out better until I went to take my shower and I was half in the tub and half out. I was on my tub chair when all hell broke loose I fell out...

The day started out better until I went to take my shower and I was half in the ...

ssdw1958

•6 years ago

30 Replies

We all struggle in life

We all struggle

rjoneslaw

•6 years ago

2 Replies

Chest tightness hard to breathe

Has anyone else found it hard to catch a breath because of chest tightness? I've never had any trouble breathing before except when I go out in the freezing...

Has anyone else found it hard to catch a breath because of chest tightness? I'v...

Hidden

•6 years ago

12 Replies

John McCain

As I have given you my opinion about Trump, I will do the same for one of your other politicians.... John McCain. What a remarkable man HE was! Captured in...

As I have given you my opinion about Trump, I will do the same for one of your o...

knokkebok

•6 years ago

7 Replies

They weren’t kidding about Ocrevus and respiratory illness risk!

I was on Tysabri for 5+ years and rarely got sick. I only got a couple of minor colds in that time. Since Tysabri is imminosuppresant, I was careful. Now that...

I was on Tysabri for 5+ years and rarely got sick. I only got a couple of minor ...

Raingrrl

•6 years ago

26 Replies

It's been two months since I've been here!

Two months ago I posted that I was hoping to be discharged from the hospital after surgery for a Trimalleolar Fracture of my left ankle. Well, I got my cast...

Two months ago I posted that I was hoping to be discharged from the hospital aft...

MaggieT1

•6 years ago

9 Replies

Head/ear buzzing - any suggestions to help?

Always looking for the everyday, simple tricks that can make our lives easier as MSers... Does anybody have suggestions to deal with the constant buzzing in...

Always looking for the everyday, simple tricks that can make our lives easier as...

anaishunter

•6 years ago

8 Replies

NOT A GOOD WAY TO WELCOME SEPTEMBER

Well all I did not have a good day on the 1st. Now it was so bad. You all know when your asked ona Scale of 1-10 and 10 being the worst, how you feel, well my...

Well all I did not have a good day on the 1st. Now it was so bad. You all know w...

ssdw1958

•6 years ago

13 Replies

New issue

Hi everyone new symtom does anyone have their feet just hurting out of the blue and what do u do for it

Hi everyone new symtom does anyone have their feet just hurting out of the blue ...

luvhair

•6 years ago

40 Replies

Good

Hugs everyone, hope all have save labor day!

luvhair

•6 years ago

4 Replies

Just give it a little time

users, here is a lesson for “YOU” Take it easy on yourself. It is never the end of the universe if something does not get done exactly on time. Perhaps missing...

users, here is a lesson for “YOU” Take it easy on yourself. It is never the end ...

RoyceNewton

•6 years ago

10 Replies

Who has appointments this month?

It's nice to let each other know about upcoming appointments. We can update one another and keep the encouragement going! Do you have an appointment you'd...

It's nice to let each other know about upcoming appointments. We can update one...

greaterexp

•6 years ago

67 Replies

MSAA Artist of the Month --nice!

https://mymsaa.org/artshowcase2018/aom/

erash

•6 years ago

5 Replies

Ugh

I still have not got my 2nd half of ocrevus yet ugh

Jackjosh

•6 years ago

5 Replies

Open letter to those who had a rough and tough week

Hoping next week is better than this past week for you

rjoneslaw

•6 years ago

3 Replies

Happy Saturday Day

@fancy1959 this is for you. Hope you feel better

rjoneslaw

•6 years ago

1 Reply

Getting n staying asleep

@roycenewton this is for you 😁

rjoneslaw

•6 years ago

2 Replies

Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for September 2018

Vaccines when on Ocrevus and side effect of hair loss

Ok ladies

Ibudilast? Anyone familiar?

Tailbone Pain

Don't worry about a thing

Quilt for a struggling young gentleman

Finally got my appoint for Ocrevus Infusion!

Memorial Day Thankfulness....

Siponimod for SPMS

Copaxone and hair

Difficulties in life

Who do you let win your mind or body?

When we to just go for it when we can

POST #2 I WAS HAVING A BETTER DAY UNTIL I FELL:(

We all struggle in life

Chest tightness hard to breathe

John McCain

They weren’t kidding about Ocrevus and respiratory illness risk!

It's been two months since I've been here!

Head/ear buzzing - any suggestions to help?

NOT A GOOD WAY TO WELCOME SEPTEMBER

New issue

Good

Just give it a little time

Who has appointments this month?

MSAA Artist of the Month --nice!

Ugh

Open letter to those who had a rough and tough week

Happy Saturday Day

Getting n staying asleep

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