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My MSAA Community

9,019 members • 20,711 posts

All posts for June 2017

Trying again

Not a close up, and of course it would be side ways like my life now a days. Maybe I will try again!

Not a close up, and of course it would be side ways like my life now a days. May...

agapepilgrim

•7 years ago

7 Replies

Good news...I guess

As I had told you all I have been seeina an actual M.S. specialist. He is a great neurologist and requested my records from every doctor I could think of....

As I had told you all I have been seeina an actual M.S. specialist. He is a grea...

Fee09

•7 years ago

25 Replies

Surgery

On my way to surgery. Bye bye boobies! Wish me luck 💜💜😁😁

Midgey_Midge06

•7 years ago

30 Replies

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Brain Food

Not specifically about MS, but a good article about diet & brain health -...

BillD999

•7 years ago

4 Replies

Thank you MSAA

Just wanted to give MSAA a huge thank you. Applied for my cooling vest on Monday and it arrived today. They must have heard about our heatwave. Thank you...

Just wanted to give MSAA a huge thank you. Applied for my cooling vest on Monday...

CalfeeChick

CommunityAmbassador•7 years ago

14 Replies

Physical Therapy

Does anyone go to PT? If so, does it cause more pain. They work my ass off then I hurt even more!!!!!!! it's starting to making me crazy! I am there for manual...

Does anyone go to PT? If so, does it cause more pain. They work my ass off then ...

rlh1974

•7 years ago

29 Replies

My story

Hello everyone! I have MS along with heart disease, brain tumor, degenerative disc disease, COPD plus a few more things. I am currently waiting to go on the...

Hello everyone! I have MS along with heart disease, brain tumor, degenerative d...

SlmHarris

•7 years ago

13 Replies

Hoping this won't be me!

Settlement today. Moving in tomorrow. Had my Tysabri infusion yesterday. Felt totally wiped out all day yesterday.

Settlement today. Moving in tomorrow. Had my Tysabri infusion yesterday. Felt t...

Juleigh21

•7 years ago

9 Replies

Aubagio

Hello I have been on Aubagio for about 5 months and have a tried having weird issues with I think my breathing. I breath fine but about 8-10 times a day it...

Hello I have been on Aubagio for about 5 months and have a tried having weird is...

jkdavid99

•7 years ago

4 Replies

Ocrevus - Tomorrow's the Day

Well, tomorrow morning (Thursday) I go in for my first infusion of Ocrevus. I am very nervous, but I think ready - this will be my first MS treatment. I'm...

Well, tomorrow morning (Thursday) I go in for my first infusion of Ocrevus. I am...

dianekjs

•7 years ago

38 Replies

Therapy garden in progress

I hope it looks better next year!

agapepilgrim

•7 years ago

5 Replies

Gilenya

I'm looking for experience stories with Gilenya. I'm considering it for my next treatment plan, but I'm terrified of the side effects. My reactions to...

I'm looking for experience stories with Gilenya. I'm considering it for my next...

kyaro123

•7 years ago

6 Replies

Prescription approved.

Wow. I'm impressed. Just got a call from Express scripts and my Prescription had been approved. I apologize for everything I said about them in my frustration....

Wow. I'm impressed. Just got a call from Express scripts and my Prescription had...

Doubled51

•7 years ago

10 Replies

medicare and DMT

I will be getting Medicare shortly. I am concerned about the price of MS meds. I am on Tecfidera and it appears that it will cost me about $8000/year. OMG -...

I will be getting Medicare shortly. I am concerned about the price of MS meds. ...

Vinagirl

•7 years ago

12 Replies

Welcome KimChat to our extended family!

KimChat it's Fancy1959. I saw you sneek in a reply to Tutu's post. And I know I haven't welcomed to you yet to be part of our extended family in this awesome...

KimChat it's Fancy1959. I saw you sneek in a reply to Tutu's post. And I know I ...

Fancy1959

•7 years ago

2 Replies

MRIResults

Well just got results of last week's MRI. Got 4 new lesions since April. Not what I was hoping to hear but only started Pelegridy 3 week's ago so have another...

Well just got results of last week's MRI. Got 4 new lesions since April. Not wha...

Doubled51

•7 years ago

17 Replies

Introducing myself

I just downloaded this app in hopes of understanding my ever evolving, ambiguous ms symptoms. I thank everyone for their helpful posts & informative...

I just downloaded this app in hopes of understanding my ever evolving, ambiguous...

Cwilkiss

•7 years ago

19 Replies

TRYING TO KEEP SMILING

hello everyone. pray you all is doing well. cause no matter how we feel if your alive and reading this your BLESSED. just found out I need new floor in my...

hello everyone. pray you all is doing well. cause no matter how we feel if your ...

redman44

•7 years ago

10 Replies

Dropsy Doodle Thwarted

Here's a simple way to make your 16 oz. bottles of liquid safer for us droppers (even my Sistour thought this was cleaver): Save the tops of your dish soap...

Here's a simple way to make your 16 oz. bottles of liquid safer for us droppers ...

ddeadred

•7 years ago

8 Replies

Assisted Living for Long Term Care

Hello- Can anyone recommend a Long term Care facility that is specifically dedicated to care for individuals with MS or ALS in northern new jersey or new York...

Hello- Can anyone recommend a Long term Care facility that is specifically dedic...

amyshein

•7 years ago

5 Replies

New to the Community

I was diagnosed in 2014 and I'm so glad to have a place to ask questions. I currently have been diagnosed with SPMS and I went from RRMS to SPMS in 5 months....

I was diagnosed in 2014 and I'm so glad to have a place to ask questions. I cur...

Angelique67

•7 years ago

8 Replies

Eyes

I feel like i have a scratch or cut on my eye but everything looks ok. Anyone else have this happen?

I feel like i have a scratch or cut on my eye but everything looks ok. Anyone e...

Midgey_Midge06

•7 years ago

19 Replies

Pule

Yes I am one that has Primary Progressive Multiple Sclerosis. I have had this now since 1999. So I have now had this for 18 years. It really has been a very...

Yes I am one that has Primary Progressive Multiple Sclerosis. I have had this no...

Pule

•7 years ago

6 Replies

The science of falling?

😅

erash

•7 years ago

9 Replies

Prayer Warriors

Looking for some prayer warriors! I have my social security disability hearing tomorrow!

Looking for some prayer warriors! I have my social security disability hearing t...

Karen-x

•7 years ago

29 Replies

Fidget Spinner

Ok, SO this sounds stupid. But my wife got me a fidget spinner for Father's Day. I am addicted to it. But get this. I get stressed. I pick it up and play with...

Ok, SO this sounds stupid. But my wife got me a fidget spinner for Father's Day....

rlh1974

•7 years ago

12 Replies

RRMS to Secondary

For those who have moved into SPMS from RRMS, what was the time interval between the two? I realize many of us found out we'd had MS for a long time before...

For those who have moved into SPMS from RRMS, what was the time interval between...

greaterexp

•7 years ago

40 Replies

Hand Controls for the car

Hi, I need to get hand controls for my car (my right leg has thrown in the towel). I am hoping to get some recommendations about what to get and any possible...

Hi, I need to get hand controls for my car (my right leg has thrown in the towel...

cheilke

•7 years ago

7 Replies

Sensory Overload

Hello everyone. Im Danielle. I was diagnosed with RRMS in 2013. For the most part it didn't bother me, plus I was alway very stubborn so I pushed myself...

Hello everyone. Im Danielle. I was diagnosed with RRMS in 2013. For the most par...

Danielle2311

•7 years ago

18 Replies

My weird right hand

I'm not sure what to think at the moment. I was really hoping to vent here and see if anyone can share their experience with anything similar. I guess the...

I'm not sure what to think at the moment. I was really hoping to vent here and s...

juli_SC

•7 years ago

13 Replies

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Posts - My MSAA Community | HealthUnlocked

My MSAA Community

All posts for June 2017

Trying again

Good news...I guess

Surgery

Brain Food

Thank you MSAA

Physical Therapy

My story

Hoping this won't be me!

Aubagio

Ocrevus - Tomorrow's the Day

Therapy garden in progress

Gilenya

Prescription approved.

medicare and DMT

Welcome KimChat to our extended family!

MRIResults

Introducing myself

TRYING TO KEEP SMILING

Dropsy Doodle Thwarted

Assisted Living for Long Term Care

New to the Community

Eyes

Pule

The science of falling?

Prayer Warriors

Fidget Spinner

RRMS to Secondary

Hand Controls for the car

Sensory Overload

My weird right hand

Search posts

Pinned Posts

Latest poll

Have you ever attended a webinar hosted by MSAA?

Topics

Archive