My MSAA Community

Pule

Yes I am one that has Primary Progressive Multiple Sclerosis. I have had this now since 1999. So I have now had this for 18 years. It really has been a very hard to take illness. I have my Neurologist telling me that he is going to put me on this medication, Ocrevus. I was told it will not heal anything, but at least I will not get any worse. I am just happy with that. I do not want to get so bad that I would need to be bed ridden. I would like to get into some of the reading that I did read little on.

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I am switching from .Rituxan to .Ocrevus on the 29th, Rituxan has been awesome. Stopped my progression.

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Welcome, Pule. We hope you feel at home here.

We have others who have started Ocrevus here. I hope it works for you and cnichols, too. Anything to slow down progression! 💕

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I'm so glad you found us. I'm sorry you've dealt with MS for so long, but will be praying that your new DMT works well. Do let us know here how you are doing.

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@Pule

I will be very interested to hear how you get on with this new drug. I have PPMS but it hasn't yet been approved in the uk. Please keep in touch and share your experiences, good and not so good. Much appreciated. Blessings Jimeka 🦋 🌈 🙏

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Wish you the best Pule 🎈

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Welcome Pule :) I enjoy this group very much. The comments here giving me hope!

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