New to the Community

[Angelique67]

I was diagnosed in 2014 and I'm so glad to have a place to ask questions. I currently have been diagnosed with SPMS and I went from RRMS to SPMS in 5 months. Now neuro believes I have devics. Does anyone know what devics is?

[WAshingtongirl]

Good morning, Angelique67 . Welcome to what I think is the best place to ask questions, share, vent and encourage. We all need someone else who really understands what we are going through. As for your question, Maybe this will help:

newsnetwork.mayoclinic.org/...

There are a number of diseases that mimic or overlap MS. Again, welcome! 💕

[melack01]

mayoclinic.org/diseases-con... I only know what I can look. This is a link to the Mayo clinic, apparently quite a few people with Devic's r NMO are misdiagnosed with Multiple Sclerosis. Probably one f the reasons my neurologist sent me to an optometrist.

[Iona60]

Hi Angelique67 . They thought I had devics. I live near the Mayo clinic in Jacksonville, FL. In 2006, this was one of the only places that did the testing for it. I didn't have it. I have MS.

[Iona60]

Angelique67 I just read the Mayo link posted below, but it didn't mention that the test I referred to in my other post was just a blood test. I think they were looking for a specific antibody.

[kdali]

my.clevelandclinic.org/heal...

[Juleigh21]

My neuro thought I had NMO. I was tested twice by blood work and he did a LP. MS was diagnosed twice now. Are most of your lesions in your spine?

[Angelique67]

Yes they are.

[Fancy1959]

Hello AMR67 and welcome to this amazing chat from Fancy1959. We are always glad when we are joined by new members. Is Jafrum is a very safe place full of caring and compassionate people. You can come and ask questions comma voice concerns, or simply speak to others you truly understand what you are going through.

The best place to find out about what devics is, is your neurologist. Next time you visit or set up a new visit make up a list of what you need to go over before you get into the office. Do not leave the office until the neurologist has answered all your questions in terms you understand. If that becomes problematic with your neurologist, find a new neurologist. You are the best advocate for your health and remember they work for you. Now it is always good to build a relationship with your neurologist and to certainly take their advice, but they owe you! explanations you can understand.

It is my guess and only my guess since I am not a doctor that you had MS more than 5 months and your MS from relapsing and remitting to secondary Progressive over a longer periods in 5 months. The Links everyone supplied, both the Mayo Clinic and the Cleveland Clinic, are awesome resources for you to check out. Knowledge is power and if you go into your neurologist office with a base of knowledge you can ask more direct question and understand better what your neurologist is talking about.

Welcome aboard remember you are not part of our extended family. On a secondary note please Supply us with your birthday so we can find you up the birthday Club I started. That way on your special day you will get bombarded with happy birthday wish our family. Please let us know what you find out we are neurologist and what your prognosis is. Until we speak again member together we are stronger!