My story: Hello everyone! I have MS along... - My MSAA Community

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My story

SlmHarris profile image
13 Replies

Hello everyone! I have MS along with heart disease, brain tumor, degenerative disc disease, COPD plus a few more things.

I am currently waiting to go on the new medication Ocruvis. I did all my blood work to find out my thyroid is wako!

Started meds for the thyroid and hopeful to start meds in 3 weeks.

I have taken multiple medications that have helped for a while then stop.

I am in SPMS gradually sliding towards PPMS. So we are going to be aggressive to stop further progression.

I have a wonderful Dr that I have been with since 2003. Find a great Dr that specializes in MS. Don't give up. Fight!!

I have MS but MS will not gave me!!

(I Live near Shreveport Louisiana)

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SlmHarris profile image
SlmHarris
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13 Replies
melack01 profile image
melack01

I don't know if you have hypo or hyperthyroidism. I have hypothyroidism. Once they find the right dosage for you, that will be probably your easiest issue. But, oh my, you're facing a lot. I wish you the best. I always wonder how people with multiple issues know what symptoms to blame which disease with.

SlmHarris profile image
SlmHarris in reply to melack01

We just have to eliminate. I start with my family Dr. Some symptoms are obvious some are not.

melack01 profile image
melack01

@SimHarris I forgot.... Welcome!

Doubled51 profile image
Doubled51

Welcome.

SlmHarris profile image
SlmHarris

Everyone has been so nice! Thank you!

jimeka profile image
jimeka

SlmHarris welcome. You sure are being tested, what a great witness of strength and courage you are to us all. I hope and pray the new medication works well for you. Blessings Jimeka 🦋 🌈 🙏

SlmHarris profile image
SlmHarris in reply to jimeka

Thank you so much! Prayers to our good Lord for strength and guidance gets me thru!

Best if luck to you!

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Hi SlmHarris Welcome to the roller coaster ride.😐 Although sounds like you have been on plenty of them!😨

We have a few that are taking Ocrevus😊 and sharing there experiences with all of us!

I hope you find this room friendly, informative, nuts, but most of all ALWAYS Supportive💕 We are all in this together after all.😊

Jes 🌠

greaterexp profile image
greaterexp

SlmHarris ,

I can hardly take in all the difficulties you deal with! I'm sorry you have such a load, but you're obviously an incredible person. God bless you for your faith and great attitude. Many prayers for successful treatment.

Erin

WAshingtongirl profile image
WAshingtongirl

Welcome @SimHarris. My, you have a number of serious health issues, but remain so upbeat. I applaud you for your positive attitude. I will pray your thyroid gets regulated quickly and that the Ocrevus works for you. Thank you for the introduction. We're happy to meet you.💕

ssdw1958 profile image
ssdw1958

Keep fighting.

gatorman15 profile image
gatorman15

Welcome SlmHarris. You have a great attitude.

SlmHarris profile image
SlmHarris in reply to gatorman15

Thank you! There are some days I find myself feeling sorry for me. I just pray pray pray!

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