Well just got results of last week's MRI. Got 4 new lesions since April. Not what I was hoping to hear but only started Pelegridy 3 week's ago so have another MRI in 6 months and see how Well it's working. He sent a new prescription to pharmacy to help with fatigue but I can't even remember what it was. Of course I just got notification they insurance has to have further paperwork from my Dr to see if my condition warrants them to pay for it. But feel free to pay for it if I want it bad enough. Why would I be getting it if my condition didn't warrant it. Seems like everything to treat anything to do with MS requires pre authorization. But I'll patiently wait. When your fatigue is this bad you don't have enough energy to do anything else. Lol.

17 Replies

  • On top of the symptoms and tests the insurance companies have to act like they know more than our doctors!😤

  • I know that's right. If I didn't need it Why would the Dr write it to begin with. I wish no one had to experience fatigue of this degree but it's so frustrating to have to wait on jumping thru hoops to get medicine that I could scream. If it would help I would. Please Lord let a cure for this monster called ms be in our near future. In Jesus name. Amen.

  • Doubled51 I am sorry that you have new lesions and the insurance is giving you issues. My aunt used to work for one of the large prescription drug companies. She used to tell us horror stories of unscrupulous doctors who would give a prescription for anything for a fee. They would have over 1000 cases a year of this type of fraud. Those few doctors and patients have made it much more difficult to get our medications. Then you have the FDA rules that they have to follow or they can be put out of business. Then there are the lawyers that help a person sue the company if they haven't followed the rules and you are injured by the medication.

    It's a nightmare for them as well. It doesn't make it any easier for us but it does, at least for me, make it a bit more understandable.

    It's really too bad a few people can ruin it for the rest of us.

    Here's hoping your fatigue gets better and your next MRI is stellar!

  • Thanks. My wife work for an insurance company as a customer service agent so I know it's not the insurance company's fault. All they can do is what your particular plan dictates. But when you're frustrated the first is to blame is the insurance. Believe me I hear horror stories about blame being put on insurance companies every day. Everyday. Lol. I shouldn't blame insurance but when your in need they're the first that comes to mind. I understand it But you're right the few ruin it for the majority. Sadly that's what this country are going thru. Thanks again and God bless.

  • Sorry to hear about the progression on your MRI, but praying the next one shows Pelegridy is helping. 💕

  • What tutu says and stay strong 🙏 🦋 🌈

  • Thanks.

  • Doubled51 I am so sorry you are having to go through all this and that you have new lesions. I know how you feel with the fatigue. That and never ending pain are my main symptoms. I spend a lot of time in bed feeling like life is passing me by, but am too tired to do anything about it. We are both on Plegridy. I do my first full dose injection next Wednesday. I am praying for you to feel better. Love, Kelly

  • Neuro said it might take 2 or 3 months for the Pelegridy to reach it full strength. I've finished the starter kit and will give first full injection on the 27 so praying it takes hold soon. It progressed this much from April til now so praying foe relief. Thanks for the encouragement.

  • Doubled51, I wish the MRI report had been better, but thank you for the update. We will be praying for great results on the next one and that this DMT puts a stop to any more lesions. I hope the insurance hurdle is taken care of quickly, too.

  • Thanks. Hurdle is the right term. Express scripts handles my prescription plan and everything associated with ms has been a problem. Its frustrating because I've got to move regardless how I feel.

  • I don't know what to think about these insurance companies. Do they really think we want to get these drugs and everything else.

    Also Double 51 hang it will say a prayer for you.

  • All prayers are appreciated.

  • Doubled51 Praying for some relief for your fatigue and that the insurance will pay for the rx. I wish there was a way for MSAA or the MS society to take unused meds and give them out free to others with an rx and having trouble with the insurance. Many meds that I have tried over the years that didn't work for me remain unused.

  • Aww Doubled51 ~hugs~ 💕 I'm so sorry, did he say or not it they were active? Yeah, I'm the noisy one😁 I prefer curious tho.😄

    As far as the med for fatigue? Did you find out yet? I'm on modafinil, generic for provigial and it took about 2wks to kick in.

    They should have it fixed in no time for you! (Thinking positive here!)

    J 🌠

  • Yeah they active. Helping to compound my fatigue and drunk spells. Especially my walking. I seriously stagger like a drunk and haven't had a drink in 20 years. Modafinil is what I'm waiting on. He prescribed it to go with the amantadine. I want this fatigue to lighten up so bad. Its absolutely sucking the life out of me. I complain but I'm so blessed to be able to walk and do things even if a little at a time. My God will provide. Sometimes not as fast as I think he should but he will provide. Lol.

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