Unhappy

[B_Cruz05]

I live very unhappy and unsatisfied with m.s. I want my life back.

[jimeka]

Don't we all B_cruz, but unfortunately, we have to make the most of what we have. Some of us are better than others, but you have come to the right place if you want to vente, hello and welcome

[Royjr]

Let's talk it out B Cruz05. That's what we're here for. I think we all have felt or feel the same as you do. Stay strong.

[Sukie427]

Welcome, B_Cruz, to the place nobody wants to be. We all want our lives back, but there is no getting around that you will now be living in a "new normal." It is not unusual to have the feelings you have. The day that I had my worst relapse and woke up lying flat on back and was totally unable to move, all I did was lie there and cry. But it didn't help. Stay strong and get help if you need to. None of us asked for this or expected it. It's just one of those things that smacks you straight in the face and changes your world in a split second. You will adjust. And everyone here on this site is so nice and helpful, and we've all been through it. The only thing that you can do is to keep on keeping on. Good luck, and remember, there are lots of us on the same journey.

[Hidden]

B Cruz05, hello I am MSFighter and I am so very glad you have found our chat room and the family that revolves around it. You're okay, take a deep breath and realize that having MS does not mean your life is over. Your reaction is pretty typical of most of the people I've met that have been diagnosed with MS. At first there was just such a total shock it's hard to look past tomorrow. I'm sure you're experiencing a lot of fear, anxiety, and uncertainty. I know because that was my exact reaction .... after I cried a river from my tears!

Now, down to business. Find a good Neurologists. Your family doctor should be able to help you out here. Make lists, this will help you to make sure you ask all your questions and not forget things you wish to discuss with your Neurologist. Take care of yourself and make sure you do not over exhaust yourself. It's very important to test your limits carefully so you do not do yourself any harm. Get all the information you can from your doctor and from any sources available about Ms and the various therapies that are currently available. Then read everything front to back. Information is your friend.

Finally realized that you still have your life. What you are challenged now to do is to alter it to keep you safe but to make sure you still keep it full of the joys that you love. Do not let MS rob you of anything. Find a way to make it work safely for you. Your life can ybe as full as your heart wants it to be. So take heart, be stubborn, fight, and get your life back. It might be in MS style, but get it back! It is up to you to do so! I'd like you to stay in touch with us please. We will be happy to make suggestions or just discuss things with you, anything it takes to help you. I want you to realize we are stronger together! I invite you to become our newest Ms Warrior and as an MS Warrior you must realize we never give up and we never give in, we fight on! So fight on Ms Warrior fight on!

[AmN1n0]

I know exactly how you feel,

[erash]

I will echo all of the above replies and tell you yes, we all feel like we've hit bottom sometimes and then when we adapt to that new normal we have new challenges emerge that require another adjustment. On my bulletin board is a reminder quote by John Wooten: "Don't let what you cannot do interfere with what you can do." The other reminder quote I have on my bulletin board is actually from Scott Hamiton (the skater who I believe was just found to have a new brain tumor): "The only disability in life is a bad attitude." I know these sound cliche but they do help me...and I hope they can help you too.

[1RiskyRich]

I felt the same way! Every so called professional only offered to slow the progression down. I bite the bullet and did HSCT. Best decision of my 44 years on this planet. It didn't give me back the material things I lost, but it gave me back my quality of life & the option of getting those material things back.

[WAshingtongirl]

MS certainly changes our physical world, and often our mental and emotional one as well. I'm a control freak and, even after 25yrs with MS, I still struggle to accept the fact that I can't will my leg to work, my brain to fire properly, or my bladder/bowels to function. MS affects many facets of my life, but I won't give it the power to rule my TODAY (I take it one day at a time.) I love Erash's quotes. Very inspiring! I also love this line from one of my favorite hymns: "Even so, it is well with my soul." Reading about the songwriter (Horatio Spafford) and his loss at the time he penned that, makes my loss seem so insignificant next to his. But still, some days I have to sing it over and over and over again. But depression makes it even harder to see the positive in the midst of pain, fear, and loss. If this is just a bad day or week, vent on. We've been there, are there now, and are here to listen. But if this continues, and you plunge deeper into sadness, please see your doctor. We're happy you're here. Not happy you have MS.

[lightweaving]

I want to be well and healthy. After decades my body is not able to work well.I hate being housebound but

I count the good seconds and the good minutes. Hours are too long plus I forget. Hang in there we do "get it"

[CalfeeChick CommunityAmbassador]

I hear you. It's only been a short time for me, and I miss all of my freedoms independence lifestyle all of it. I admire those on here that have it and have had it for a long time but remain optimistic and upbeat. Hang in there, have a good time whenever you can😀 Life is not over it's just changed.