Hi! My name is Jacqui. I am 52 yrs old for another month. I was diagnosed with MS in 2012 but we figure I had my first episode in the late 80's. I always knew I would get MS. I mother was diagnosed in the late 70's or early 80's.
When my folks told me she had MS there was this little voice that told me I would have it too. IN the late 80's I took my mom to one of her neuro appointments. The doctor asked me to leave the room and at that time he told my mom I had MS even though he didn't have any tests to back him up (I had no insurance and couldn't afford to go to the doctor. ( I had aged out of my parents' ins). My mom chose not to tell me at that time and about a year later I started showing a lot of the same symptoms she had plus others.
Fast forward to the late 90's. I finally had insurance and wanted to have some tests run to see if I had MS like I suspected. The doctors said it was all in my head. It was not possible for me to have MS because my mom had it so no one else in the family would have it. It took till 2012 before I could get a doctor to take me seriously and do an MRI on me. Low and behold I had about 20 lesions in my brain and 4 in my spine. They also ran a boat load of tests to rule out other issues.
I was put on the daily Copaxone injects and did well for about 2 years then started having major rashes and hives from the injections.
So I switched to Tecfidera thinking that would be better. It wasn't. I was on Tecfidera for almost 2 years and the side effects of intestinal distress, upset stomach, extreme itching, and always feeling fluish I decided to stop Tecfidera. Now I am back on Copaxone but it is the 40 mg 3 daysa week uinstead of the 20 mg 7 days a week and my body is so far tolerating it well.
My biggest issues are strength on the left side of my body, Foot drop on the left when I get tired, and bladder issues.
I broke my right leg in on Halloween last year when I fell for the 3rd time that day. I exercise everyday and the strength and flexibility have not come back. I have had to resort to using a walker and a scooter to get around. On really bad days I use a wheelchair.
I look forward to talking with others here. Sorry for the long novel.