Siponimod for SPMS : I just read an email... - My MSAA Community

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Siponimod for SPMS

Lisacpa profile image
7 Replies

I just read an email about encouraging results with this drug. It was from the MSAA so you can go find the information.

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Lisacpa profile image
Lisacpa
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7 Replies
Fancy1959 profile image
Fancy1959

Lisapca, it's Fancy1959,

I, too. received the same info from MSAA yesterday! I too thought it looked very encouraging since this is one of the first drugs showing promising results in our fight against SPMS. I believe this is one of several new therapies that are in the works! Stay strong MS Warriors, stay strong! Let us help each other to keep faith even when MS stomps all over our dreams. We never know when the next new therapy is the one that beats this fire-breathing monster we call MS! Together we are stronger! Fight on MS Warriors fight on!

Cwacker profile image
Cwacker

Yes, I was on the double blind study for 18 months for spms and while I didn't know for sure if I had it I Did feel better. They finished that part of the trial in March and I was not chosen for the long term part of the trial and I'm having relapse issues :( can't tell if it's because of the phoenix summers or not but plugging along!!

Kj9681 profile image
Kj9681 in reply toCwacker

Bless your heart for enduring that Phx sun! I had to move for my health...can't take it!! I pray the new med continues to show promising results!!

johnMSAA profile image
johnMSAAPartner

Happy to put out the latest info to everyone in the My MSAA Community! For anyone who did not receive our email on Friday on the Phase III drug siponimod, here is our complete article including thoughts from MSAA's Chief Medical Consultant:

"Experimental SPMS Medication Shows Positive Results"

mymsaa.org/experimental-spm...

3jaysmom profile image
3jaysmom

thanks, John..I'm def. gonna follow that drug thru!

CherieMSCN profile image
CherieMSCN

It is going to be another 3-5 years in research before being released.

Mannibal profile image
Mannibal

Siponimod...when will it be available for use?

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