painful toes

[Trudy2020]

hi, I was diagnosed with Parkinson’s in2020. This changed to MSA-P in 2022 . My main problem is no balance and unsteady walking.I use a walker.I have very painful toes with pins and needles. Does anyone suffer from that ? Any other remedies you’ve tried that work ? TIA

[Epace]

my hwp since 2016 going into hospital for possible msa diagnosis’s / suffers from very sore legs now takes 2 tramadol- does the trick. Anything for peace.

I hope this might help you too / good luck 🤞

[Trudy2020 in reply to Epace]

thanks . I’ll try that

[Hidden]

Sounds like nerve pain, you need to chat to Parkinson nurse as they can advise which medication would work best. They also have ways of contacting your neurologist and are probably better than the GP. As the GP usually will refer back to them anyway. Xx

[Trudy2020 in reply to Hidden]

thanks, I’ll do that

[LadyLins]

hello I suffer with sore feet and pins and needdles as well as being unsteady. I have found exercise does help and you can do sitting down pilates which is great for balance and as you can break pilates down you only need to do 10 minutes a day. It really helps. Also exercising in water is fantastic if you can such as a hydro pool or just the local swimming pool. As for the pins and needles ita weird but you actually get used to them but I also take Gabapentin which helps. The best person to talk to is your PD nurse or you MSA nurse specialist. I have Katie Rigg and she is fantastic to talk to and to get advice from. There is also fact sheets on the MSA Trust webpage which may help.

[Trudy2020 in reply to LadyLins]

thanks

[Paul_and_Sue_Wood]

Hi

That's how my wife's condition started nearly 14 years ago...

She was prescribed a nerve pain inhibitor such as Gabapentin and we are still using the tablets today.

Chat with the consultant and pain team to see if that is suitable fro yourself.

Paul

[Trudy2020 in reply to Paul_and_Sue_Wood]

thanks Paul , I’ll do that but gabapentin has bad side effects, no?

[Paul_and_Sue_Wood]

All drugs have side effects. And they all effect people differently.

Sue had no side effects.