Always look on the bright side of lif... - Multiple System A...

Multiple System Atrophy Trust

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Always look on the bright side of life : de dumm de dumdy de dum de dum

Polesden11 profile image
9 Replies

Ś 🎵look it cld have been worseand worse....I cld have sung it to you🎶After my disastrous attempt to get out of bed on Friday I was determined to do it today as I really didn't want to be hoisted onto the scales. Well thanks to following the NHS diet I've lost another 1.5st inn just under a month! Naturally I'm secretly delighted but a bit worried as that is too much given the battle we're fighting OR iis it going to make moving aroundd easier?

Answers on a postcard plss!!!!

Sue x

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Polesden11 profile image
Polesden11
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9 Replies
FredaE profile image
FredaE

easier? look at it this way -if you put 1.5 stone of bags of sugar in your pockets - ten bags- would you expect it to be harder to get about? Congratulations!!!

ReverendBadger profile image
ReverendBadger

It's a numbers game innit ? i won't be so indiscreet as to ask where your starting point was but as long as your end point is within the green of that crude measure known as BMI then no worries.

My journey in the kg world is going the other way and my 3000 cal/day high fat,high salt diet has stalled as I have run out of eggs (Cadbury,creme) and have had to eat 10 MrK.ipling mini battenburgs today.

58kg

Polesden11 profile image
Polesden11 in reply to ReverendBadger

Oh I feel for you I really do!!

Diane831 profile image
Diane831

so that’s the answer! A month at the mercy of the NHS food provision!

I hope that you had that much weight to lose, otherwise I hope someone looking at the scales is concerned to look into it. As you say, if less weight means better mobility then that is a real positive bonus!

Happy mealtimes today!

Polesden11 profile image
Polesden11 in reply to Diane831

Hi Diane, yes I had the weight to lose. I've been on Diet or about to join another slimming club every blinking day for the last 50 years! Still, I'll make a lovely slim corpse and will be able to haunt a lot more people per day Sue x😬

Fatwallet profile image
Fatwallet

I know we are always pleased when we have lost weight but my husband’s dietician warned him that losing too much muscle can be worrying as this will prevent him from doing general tasks as he will be losing his strength. Just be careful 😁

Polesden11 profile image
Polesden11 in reply to Fatwallet

At the moment I'm fiighting a losing battle with the hospital dietician take me off this easy chew diet coz of the danger of choking and the nurses just don't have time to go to the shop to get my approved diet augmentation , giant chocolate buttons!! Bit horrified to find when using toes as well as fingers that I've actually lost 2st 2lbs and that's definitely not good Suex

Derkie54 profile image
Derkie54

Hello,You're definitely a glass half full person

Can only admire your spirit as you ( like my wife ) have a lot to contend with having this dreadful MSA.

Suffers and carers have no choice but to get on with it and put up with whatever changes come, normally without notice.

My wife fell out of her wheelchair the weekend, that's a new one for us. Luckily our son was with us, I couldn't have got her back in on my own.

Keep going & smiling, I'm sure you cheer up many that read your interesting posts.

Take care

Derek

Polesden11 profile image
Polesden11 in reply to Derkie54

A tip for your wife ---- never ever put gin on your breakfast cereal 😉 I hope she was unhurt. I find that any fall erodes my confidence that little bit more and requires more effort on my part to repeat the process.

I don't know how all you carers keep going... I suspect an awful lot of attention is paid to the sufferer and not nearly enough to the carers without whom we'd be lost. I guess that vow about "in sickness and in health " so many years ago has something to do with it.

Take care both of you

Sue x

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