Hi everyone just wanted a bit of advice my OH is sleeping for most of the time always seems tired can anyone enlighten me as to at what point in the disease do yo think he may be at. He is also becoming very difficult to hoist it is a standing one and he is becoming very stiff tia
sleeping : Hi everyone just wanted a... - Multiple System A...
sleeping
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MF31
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2 Replies
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Hi
You will find with this condition that everyone has differing symptoms and levels of severity so giving you an idea of timescales is just not possible.
My wife has been tired, sleepy and using a hoist for near 4 years now. It is a challenge but we have carers coming in daily to help as it is too much for one person.
All I say to people is limit risk of danger as injury usually causes further changes in the condition.
paul and
thankyou x
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