Introduction.

[ReverendBadger]

Good day everyone. I'm new here so still learning how this forum work so please be patient if I mess it up.

My name is Ken and it has been 49 days, 20 hours and 18 minutes since my first MSA diagnosis. I thought I had conquered some hard challenges in my personal life and career to date but coping with being told you have a rare, incurable, life-limiting brain disease rather takes the biscuit.

Unfortunately I can no longer takes biscuits, or any other dry crumbly food, due to dysphasia Hobnobs MUST now be dunked.

It only took me 2 weeks to cope with the shocking news thanks to my best friend Jack, that's Jack Daniel's , maybe you know him. Seriously though, please don't drink alcohol to excess as it will make your speech slurred, make you walk very wobbly and you will be prone to falling over.

For those who want to know where my username comes from please come along next Sunday, the sermon will be relatively short and we will be singing Labi Siffre's "Something inside so strong". You can find it on Youtube if you want to learn the words.

Hasta luego.

[FredaE]

welcome tothe club no one wants to join. We are NEVER impatient - got more than enough to cope with without making it harder for anyone

😀

[FredaE]

couldnt get rid of the smilies so start again. We always reckon the beginning is the with the shock and the uncertainty. as you get used to managing this horrible disease igets less hard

[Paul_and_Sue_Wood]

Rev

Not a pleasure to meet you as we don't want people to get this horrible condition.

On the good side, you now get to meet lots of people who are on the same journey and have lots of experience and willingness to help each other.

Your best friend Jack sounds like a great chap, although mine is called Glen... Glen Morange.

On the serious side slurred speech and falling over could well be a sign of your condition, so take care.

If you haven't yet get in touch with MSA trust as they have a wealth of knowledge and professionals who can advise and help you out.

Use this site to ask away, should, babble or rant we are great at listening.

Regards

Paul, Sue's husband carer and pain in the but.