Keep your fingers crossed for me!! - Multiple System A...

Multiple System Atrophy Trust

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Keep your fingers crossed for me!!

Westcott profile image
9 Replies

Ambulance on its way again! I said I wasn't going back again but I can't just lie here and bleed to dèath. This is following abdo surgery x2 in 2020. Been in a lot of pain today as well. I'm getting a bit fed up with this don't think I want to play any mòre, maybe I'll take my ball and go home.

Sorry ignore me.. Sleep tight xx

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Westcott profile image
Westcott
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9 Replies
Hightidelowtide profile image
Hightidelowtide

Hello Wescott - I’m so sorry to read your post. I hope you are now safe and comfortable. Is it worth contacting the MSA nurse to see if they can advocate for you with the hospital team? It must be exhausting having to explain everything each time - especially if you are in pain. I hope you have a better day and can let us know how you are doing Xxx

It feels slightly wrong that I always enjoy the lively expressiveness of your posts and your sense of humour. even when you are describing challenging circumstances!❤️

Patxx profile image
Patxx

Good luck , I hope they get it sorted for you and you’re home again soon .

Hellebelle profile image
Hellebelle

Hi Westcott,I hope that when you read this you are safe and being looked after well. I think October65's suggestion of contacting the MSA nurse to advocate for you is a good idea. It must be exhausting for you. Keeping my fingers crossed that all is well. Please let us know how you are.

Helen xx

Helenhooter profile image
Helenhooter

Hi Westcott, I hope, as others have said already, that by the time you read this you are more comfortable. Sending hugs and positive thoughts, Helen xoxo 😘🤗😘🤗

Westcott profile image
Westcott

Many thanks everyone fòŕ yr responses and I'm really pleased to know KayR11 that I can bring a smilè to someone's face, albeit briefly! The paramedics were wonderful, been here befoŕe: it's a dead giveaway when the front door òpens and the next sound is a yell 'Barney, you been a ģood boy'. Barney's the dog not mý husband by the way!!! There were 3 of them so it wàs the usual division of labour.....one to make the tea, one to take said dog for a walk around the block oh yes and one to check on me!!Fortunately the GP who came out èarlier had been very thorough as well as being drop dead gorgeous (wot d'ya know there's life in the old girl yet!!) so the paramedics knew that I didn't want to go to hospital if it could be avoiďèd, so thèy passed the buck to the GP to call this morning. It wasn't bleeding enough in my totally ùnmedicàl opinion to warrant 4hrs spent ìn A&E so i was able to stay put.

Mìñd you 2 hrs later when I finally got off the phone from the robotic çustomer svce asst at the bank I did wonder if I'd màde the right choice! Does añyone remember those things that sat behind a counter and used to give ýou, can't quite remember but I think it wàs called à smile? Do you remember, various shaped mìddle bit, a 'stick' at each corner ànd a soŕt of football like shaped thing on top. Think they were called humàñ being

⁉️Honestly I was beginning to lose the will to live

🔫 . Den and I are always sayìñg we're so pleased that they we're ñot 30 yrs younger. Can you imaģine having to ģo thru òñe's entire ĺife never coming across a real persònSorry I'm rabbiting on again I'll go.

Hope you're all keeping well, yes you are we'll have nòne of that defeatìst nònseñse hèŕe.

Sue xx

😅

Derkie54 profile image
Derkie54 in reply toWestcott

Keep going Sue and keep posting they're always a good read.

Spike Milligan had this to say about smiling.

"Smiling is infectious, you catch it like the flu, When someone smiled at me today, I started smiling too. ... A single smile, just like mine could travel round the earth. So, if you feel a smile begin, don't leave it undetected. Let's start an epidemic quick, and get the world infected "

Take Care

Derek and Lynn

Niknak74 profile image
Niknak74 in reply toWestcott

Sue, I'm so happy and relieved to hear your okay after reading your post...sorry I'm late to the party on this one!

Your attitude is bloody brilliant and your an absolute inspiration (not meant in any condescending manner I promise, I suspect you'd knack me if you thought that!)

So glad your okay, keep the positivity flowing and look after yourself...and a drop dead gorgeous doctor is always going to make a bad experience slightly better 😇

Nicci xx

FredaE profile image
FredaE

I was told that oneway of speaking to a human is to listen in silence to all the options and then there will be a person on the line as a last resort. I have used it for years but as artifial intetllgence " improves" they are sure to get rid of it.

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