Posts - MPN Voice | HealthUnlocked

MPN Voice

10,445 members • 14,398 posts

All posts for January 2023

Hydroxy and hoarseness

I suffer from Jak2 ET and have been on 500 mg Hydroxycarbamide daily since May 2021 which I seem to tolerate pretty well apart from extreme tiredness. In the...

I suffer from Jak2 ET and have been on 500 mg Hydroxycarbamide daily since May 2...

•1 year ago

THANK YOU FOR ALL FLU REPLIES

I would just like to thank all of you for your replies to my post. It helps so much to know you are not alone with this suffering, just as we can compare notes...

I would just like to thank all of you for your replies to my post. It helps so m...

•1 year ago

Biddy Platelets

I started on pegasys in October low dose 45mgmy Platelets are going up at each appointment. I went onto 90mg.last appointment they are up again so increases...

I started on pegasys in October low dose 45mgmy Platelets are going up at each ...

•1 year ago

Want to take advantage of all our features? Just log in!

or

Prof Harrison discussing significance of reducing % JAK2 AB

Many of us believe that using interferons to reduce JAK2 AB can yield a significant prognostic benefit for some. However it appears that this may also apply to...

Many of us believe that using interferons to reduce JAK2 AB can yield a signific...

•1 year ago

Ulcerative Colitis and ET, CALR+

Anybody out there have both of these rare diseases together like I have. Diagnosed with UC in 1993 and ET in 2012. UC in remission almost all the time (on...

Anybody out there have both of these rare diseases together like I have. Diag...

•1 year ago

What does remission look like?

Had to stop Pegasys 4 months ago because of liver issues. This is after being on it 8 years. Since then my platelets have remained at around 550. Liver...

Had to stop Pegasys 4 months ago because of liver issues. This is after being o...

Mountainbiker12

•1 year ago

Happy New Year

Wishing everyone a happy new year, may 2023 bring good news for all, and thanks to everyone here for sharing their journey.

Wishing everyone a happy new year, may 2023 bring good news for all, and thanks ...

•1 year ago

Happy New Year

Thank you for standing by my side this year. Sending the warmest wishes to all of you for a wonderful new year. Have a sparkling New Year!

Thank you for standing by my side this year. Sending the warmest wishes to all ...

•1 year ago

1
...
4
5