Posts - ITP Support Association | HealthUnlocked

ITP Support Association

4,135 members•2,109 posts

All posts for January 2018

Second Outbrake in a Week ( mouth ulcers )

I am on my second outbreak of mouth ulcers something I have never suffered before is it worth mentioning on my next visit to my hematologist ??? ITP is a...

I am on my second outbreak of mouth ulcers something I have never suffered befor...

•7 years ago

Itp

Stay strong 💪 people my itp has gone into full remission hopefully yours will also

Stay strong 💪 people my itp has gone into full remission hopefully yours will a...

•7 years ago

Itp

Stay strong 💪 people my itp has gone into full remission hopefully yours will also

Stay strong 💪 people my itp has gone into full remission hopefully yours will a...

•7 years ago

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ITP in children after viral illness?

Hi all :) Just wondering did your LOs get diagnosed with ITP just after viral illness?

Hi all :) Just wondering did your LOs get diagnosed with ITP just after viral i...

•7 years ago

ITP & Prednisone

Has anyone experienced heavy palpitations due to taking prednisone?

Has anyone experienced heavy palpitations due to taking prednisone?

•7 years ago

Any issues with other blood counts aside from platelets?

My son, 7 yo, was diagnosed with ITP last Jan 6.. do you have any other issues with neutrophils, lymphocytes and other blood counts aside from platelets? Just...

My son, 7 yo, was diagnosed with ITP last Jan 6.. do you have any other issues w...

•7 years ago

2 year old recently diagnosed. Help!

Hi all :) My 2.5yr old daughter was diagnosed 4weeks ago. Her count was 9,6 now 5. Her hemo wants to go with the wait and watch approach. Im struggling with...

Hi all :) My 2.5yr old daughter was diagnosed 4weeks ago. Her count was 9,6 now...

•7 years ago

What is the right dosage of papaya seed or papaya leaf for 7 yo ITP patient?

Hello,, I'm a newbie here and my son was diagnosed with ITP at 7 yo 3 weeks ago. I am from the Philippines I have read many times that papaya seeds and papaya...

Hello,, I'm a newbie here and my son was diagnosed with ITP at 7 yo 3 weeks ago....

•7 years ago

Hyperbaric Oxygen Therapy

I am taking 20 Hyperbaric Treatments in an effort to increase my body's ability to make blood platelets. Hyperbaric increases the number of stem cells in a...

I am taking 20 Hyperbaric Treatments in an effort to increase my body's ability ...

•7 years ago

Going Crazy!

My 11yr old was diagnosed with ITP Nov 29 with a count of 0. Was admitted into All Childrens hospital and given 2 IVIG treatments that brought numbers up to...

My 11yr old was diagnosed with ITP Nov 29 with a count of 0. Was admitted into A...

•7 years ago

Next line of treatment for chronic ITP - Revolade being considered. Sorry for long post.

I'm nearly 49 and was first diagnosed with ITP in summer 2014 following routine blood tests for my rheumatologist, which showed a platelet count below 20. I...

I'm nearly 49 and was first diagnosed with ITP in summer 2014 following routine ...

•7 years ago

Toddler - acute? Chronic? Slow progress

My 13 month old was dx with itp with platelets at just 1k about 6 weeks ago. Ivig x2 was not successful and we have been on a steroid for about 5 weeks now....

My 13 month old was dx with itp with platelets at just 1k about 6 weeks ago. Ivi...

•7 years ago

Platlets

Can you go from 60,000 to 152,000 platlets in less than 50 hours without treatment. Or could my first test been incorrect.

Can you go from 60,000 to 152,000 platlets in less than 50 hours without treatme...

•7 years ago

can platlets increase without treatment in less than 50 hours

Can your platlet count go from 60,000 to 152,000 in less than 50 hours without and treatment.

Can your platlet count go from 60,000 to 152,000 in less than 50 hours without a...

•7 years ago

Revolade is going ineffective in ITP

My sister has been on Revolade for 2 months approx, my count goes up and down so much. The highest I had was 3025 15 days ago but now its 75000 with * sign ,...

My sister has been on Revolade for 2 months approx, my count goes up and down s...

•7 years ago

When do you start to feel on the up

After having ITP for 13 months I am asking when does it start to get any better : ) I am finding my upbeat mood is starting to wear me down every day i tell...

After having ITP for 13 months I am asking when does it start to get any better ...

•7 years ago

Looking For Advice

Sorry in advance the long post. I was diagnosed with ITP on Nov 9th. This all started with what I thought was a sinus infection which turned out to be a failed...

Sorry in advance the long post. I was diagnosed with ITP on Nov 9th. This all st...

•7 years ago

Wait and see : )

I have not posted for a while I am adapting a wait and see approach well I waited no change platelets between 30/50 and I see I am still bruising : ) all in...

I have not posted for a while I am adapting a wait and see approach well I waite...

•7 years ago

Suffering with mouth sores

Hi Itp people. This darn disease or disorder whatever has really got me in it’s grip and won’t seem to let go and into my 8th week today. Besides all the rest...

Hi Itp people. This darn disease or disorder whatever has really got me in it’s ...

•7 years ago

Has anyone out there gotten a tattoo with a platelet count of 57?

My platelet count is 57 and I want a tattoo the doctor said it would be ok...what do you think and are there any out there that has gotten a tattoo lately?

My platelet count is 57 and I want a tattoo the doctor said it would be ok...wha...

•7 years ago

iVGI for platelets

How long did it take for ivgi to work for you? How were your results? Did your platelets go up and down while on the ivgi? Thank you

How long did it take for ivgi to work for you? How were your results? Did your...

•7 years ago

Pregnancy And ITP

Any body Taken Eltrombopag or Rituximab during Pregnancy any stage, please share any experiance. My wife having Plt count 10K 20week pregnancy with chronic...

Any body Taken Eltrombopag or Rituximab during Pregnancy any stage, please share...

•7 years ago

Pregnancy And ITP

Any body Taken Eltrombopag or Rituximab during Pregnancy any stage, please share any experiance. My wife having Plt count 10K 20week pregnancy with chronic...

Any body Taken Eltrombopag or Rituximab during Pregnancy any stage, please share...

•7 years ago

Chronic ITP

My wife suffering from ITP since Mar 2012. Plt count below 50000 with steroide. She stoped all medicines in Jan 2015 to Apr 2017 till that we not had any...

My wife suffering from ITP since Mar 2012. Plt count below 50000 with steroide. ...

•7 years ago

Post Splenectomy

I thought I would just do a quick post, I had tried all drugs going and none of them worked for me, last hope was a splenectomy I’m 2 months after the...

I thought I would just do a quick post, I had tried all drugs going and none of ...

•7 years ago

ITP and bacterias

Hi, everyone. I wanted to ask you how kids with itp can be treated from bacterias. I mean that my 14yrs brother has on its throat streptococcus pyogenes. Does...

Hi, everyone. I wanted to ask you how kids with itp can be treated from bacteria...

•7 years ago

Mum to itp sufferer

Hi , my 9 year old son was diagnosed with ITP back in May.After an emotional rollercoaster of endless appointments and tests we are all learning to accept this...

Hi , my 9 year old son was diagnosed with ITP back in May.After an emotional rol...

•7 years ago

Leg pain with low counts?

Does anyone have leg aches with low counts? I was diagnosed about 18 months ago. My counts were averaging about 40-60. But the last 3 months they have been in...

Does anyone have leg aches with low counts? I was diagnosed about 18 months ago...

•7 years ago

Spleenectomy

Hi everyone, It's Kasra, a few weeks ago I talked to you about my spleenectomy. I had my spleenectomy 17 days ago, it was a laparoscopic surgery and only the...

Hi everyone, It's Kasra, a few weeks ago I talked to you about my spleenectomy. ...

•7 years ago

4 months post splenectomy

I wrote a post 5 months ago on any information regarding Splenectomy. It has been 4 months since my brother ( age 10 ) has the splenectomy done. It was the...

I wrote a post 5 months ago on any information regarding Splenectomy. It has bee...

•7 years ago

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