Posts - ITP Support Association | HealthUnlocked

ITP Support Association

4,090 members • 2,077 posts

All posts for November 2017

Is it safe to just take Promacta 50mg every other day since my platelets are high and I don't have a lower dose.

Hi All, I am at 311,000 platelets on 50mg promacta since 11/23 before that on 75mg Promacta. I am tapering slowly off prednisone. I am down to 4.5mg today...

Hi All, I am at 311,000 platelets on 50mg promacta since 11/23 before that on 75...

•6 years ago

Behaviour links

Hi I'm new here. So Thursday morning my 3yr old came out with sores and blood blisters in her mouth by the evening she was covered in the tiny rash like...

Hi I'm new here. So Thursday morning my 3yr old came out with sores and blood bl...

•6 years ago

Travelling abroad

Do any of you still fly and go on holiday with ITP?

Do any of you still fly and go on holiday with ITP?

•6 years ago

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ITP and hair loss (alopecia)

Has anyone else with ITP also suffered from hair loss ? I'm 60 years old, have been suffering from ITP for several years and was put on Eltrombopag (revolade,...

Has anyone else with ITP also suffered from hair loss ? I'm 60 years old, have b...

•6 years ago

ITP & SURGERY

Hello everyone, my husband has been considering having Gastric Weight Loss Surgery using the key hole method. Has anybody had experience with having surgery...

Hello everyone, my husband has been considering having Gastric Weight Loss Surge...

•6 years ago

New to ITP and kind of weary

I am 65...just got diagnosed with ITP about 6 months ago. Platelets went from 100 to 41....goes up and down about 7 increments each time... I am nervous when...

I am 65...just got diagnosed with ITP about 6 months ago. Platelets went from 1...

•6 years ago

No need to afraid from ITP

My son,13 now was diagnosed with ITP in 2016, since then lots of steroids,so many IVIG and lots of costly medication, ...... A long period of trauma,...

My son,13 now was diagnosed with ITP in 2016, since then lots of steroids,so man...

•6 years ago

Reaching out

Just recently diagnosed with Chronic ITP Been dealing with off and on aches and numbness on legs and arms chest area and back

Just recently diagnosed with Chronic ITP Been dealing with off and on aches and...

•6 years ago

Canibis oil. Has anyone tried for platelet increase.

https://www.ncbi.nlm.nih.gov/m/pubmed/18647220/?i=4&from=/25427281/related I came across this article about 2-ag that is extracted and it helps to stimulate...

https://www.ncbi.nlm.nih.gov/m/pubmed/18647220/?i=4&from=/25427281/related I ca...

•6 years ago

Gluten free

Hi guys. Diagnosed 2 years ago at 47 years old. Went GF at 58 for six months and went up to 71. Went off GF and dropped to 41. Went back on GF yesterday....

Hi guys. Diagnosed 2 years ago at 47 years old. Went GF at 58 for six months a...

•6 years ago

i am new here.

Hi everyone, my name is fatah, i have low platelets since 2012 and i get IVIG every month 750 ml ,and it goes as low as 19 i was told , if i remove the spleen...

Hi everyone, my name is fatah, i have low platelets since 2012 and i get IVIG ev...

•6 years ago

Vaginal Bleeding between periods with ITP?

Hello all, I was diagnosed with ITP in August 2017, and have been on a slowly reducing dosage of prednisolone since. my platelets went from 2K to 209K and...

Hello all, I was diagnosed with ITP in August 2017, and have been on a slowly re...

•6 years ago

Generalised cortical atrophy

Hi guys, I’ve had ITP for over 20 years. I was diagnosed at 7 years old after a severe cold. I’m now just about to turn 28 and I have recently been told I have...

Hi guys, I’ve had ITP for over 20 years. I was diagnosed at 7 years old after a ...

•6 years ago

Bleeding

Hi I had my menopause about 3 yrs ago it has been confirmed by a doctor. But I'm experiencing some bleeding my count is 35 any ideas thanks

Hi I had my menopause about 3 yrs ago it has been confirmed by a doctor. But I'...

•6 years ago

Itp

Hey guys, my names Isabelle, I'm 14 and I have ITP, I'm in 9th grade now when I first found out I had ITP I was in grade 1.. I fell of my bike and instantly...

Hey guys, my names Isabelle, I'm 14 and I have ITP, I'm in 9th grade now when I ...

•6 years ago

48 year old male just diagnosed with ITP 4 weeks ago

Hi everyone. Thought I would register myself with the ITP Support Association and tell my story here. I am a 48 year old male who was up until the 4th October...

Hi everyone. Thought I would register myself with the ITP Support Association an...

•6 years ago

complete recovery from itp but worried about relapse in pregnancy platelet count healthy 280000 so far n 5 month pregnant

Did anyone face relapse in third trimester after complete recovery from itp..I m worried looking over some statistics ..I response well by steroid n have...

Did anyone face relapse in third trimester after complete recovery from itp..I m...

•6 years ago

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New ITP Patient Coming to the UK :) Help Please

Hi all, I'm pretty new to ITP (2 stormy months since diagnosis with 1000 platelets). High dose prednisone, IVIG did nothing good (just bad). On Revolade now,...

Hi all, I'm pretty new to ITP (2 stormy months since diagnosis with 1000 platele...

•6 years ago

Prednesone

I am currently tapering off prednesone. I started with 75mg on August 15. I'm now on 30mg. My platelets took a slight dip from 101 to 92 this week. I'm trying...

I am currently tapering off prednesone. I started with 75mg on August 15. I'm no...

•6 years ago

5 yr old daughter

My 5 year old has had Itp for the past year, the doctors have just started her on promactra. What is everyone's experience who are or have been on this...

My 5 year old has had Itp for the past year, the doctors have just started her o...

•6 years ago

Romoplostin, 're n,plate . Us there any one in South Wales injectingin their own home . Instead of hospital.

Hi folks ,is there any one in South Wales Injecting them selves with N-plate, romoplostim. At home in gheirvown home ..

Hi folks ,is there any one in South Wales Injecting them selves with N-plate, ...

•6 years ago

Hope to learn more about platelet problems

I'm New Here! My GP has just told me my blood test showed a borderline level for blood platelets. (139 instead of the minimum 140.) The second test may confirm...

I'm New Here! My GP has just told me my blood test showed a borderline level for...

•6 years ago

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