Posts - ITP Support Association | HealthUnlocked

ITP Support Association

4,090 members • 2,077 posts

All posts for March 2013

would love to get a little drunk does any other itp people drink

im in need and deserve a good night out to let my hair down. would love to get drunk is this possible having itp. mine is undercontrol with romoplostin count...

im in need and deserve a good night out to let my hair down. would love to get d...

healthissue

•11 years ago

11 Replies

anyone from ireland

i currently attending my nearest hospital but i am at this point very fed up with their communication methods or lack of. i was wonderimg if anyone from...

i currently attending my nearest hospital but i am at this point very fed up wit...

trinag

•11 years ago

14 Replies

Constant infections

Have had itp for 2 years now and have constantly got 2 or 3 infections at a time this is making me fatigued and feel as though I'm running on half a tank all...

Have had itp for 2 years now and have constantly got 2 or 3 infections at a time...

forbes84

•11 years ago

3 Replies

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severe knee joint pain after 1 month on steroids in ITP, is it normal?

My steroids dose started with 80 mg last month when diagnoised with almost nil platelets count ( started with excessive mensturation bleeding, petetchia and...

My steroids dose started with 80 mg last month when diagnoised with almost nil p...

tarakeswani

•11 years ago

25 Replies

has anyone tried papaya leaf??

im here lying in a hospital bed with a count of 4 hooked up to ivig and after being put back on predisolone 75 mg yet again. i have been looking up alternative...

im here lying in a hospital bed with a count of 4 hooked up to ivig and after be...

trinag

•11 years ago

26 Replies

in itp children effected chickenpox is danger

prasadyarra

•11 years ago

1 Reply

Antibiotics and the platelet count

Hi I have had ITP for the past 16 years. I had my spleen removed 14 years ago, my platelets are always around the same number, but when i went today for it...

Hi I have had ITP for the past 16 years. I had my spleen removed 14 years ago, m...

lmc167

•11 years ago

7 Replies

Did anyone else see this in the Daily Mail today? Raises the ITP profile.

http://www.dailymail.co.uk/health/article-2291796/ITP-Liz-blamed-sons-rash-washing-powder--fact-risk-bleeding-death.html

http://www.dailymail.co.uk/health/article-2291796/ITP-Liz-blamed-sons-rash-washi...

scaryteacher

•11 years ago

15 Replies

help?how can my sons count change from 7 to 16 without meds, always been under 10 for past 6 months,then after short break went up down now.

Hi everyone,my son who has itp for past 6 months, has had counts always below 10,until last week first time in 6 months risen to16,the only thing differentlty...

Hi everyone,my son who has itp for past 6 months, has had counts always below 10...

iccle

•11 years ago

7 Replies

Romoplostim dose

Hi attend ITP clinic every second week get blood count done every week I'm given enough romoplostim home so that I can phone for result on alternate weeks...

Hi attend ITP clinic every second week get blood count done every week I'm given...

salmagal

•11 years ago

13 Replies

My daughter aged 7 had her check up yesterday at hospital. Her platelets were 230 which is normal.

She will be called for anther check up in 6 months or so. She can't play any contact sports like camoige, soccer etc. I will still have keep an eye on her...

She will be called for anther check up in 6 months or so. She can't play any co...

beibhinn

•11 years ago

4 Replies

has anyone had indium labeling, then splenectomy, and are you itp remission?

Hidden

•11 years ago

3 Replies

hair loss from itp or n plate

just wondered anyone taking nplate(rompoplostin) or from itp it self has anyone noticed continuous hair loss. mine wont stop falling out.

just wondered anyone taking nplate(rompoplostin) or from itp it self has anyone ...

healthissue

•11 years ago

11 Replies

My daughter is 4yo has had ITP for a year and is due for immunizations needle. Is it advisable to have her immunized?

Hi we are from Australia my daughter who is now 4 was diagnosed with ITP a year ago her lowest count has been 2 and her highest 89 (she had been on a course of...

Hi we are from Australia my daughter who is now 4 was diagnosed with ITP a year ...

Tessa07

•11 years ago

4 Replies

20 mo old diagnosed with ITP

My 20 month old son was diagnosed with ITP a few weeks ago. He had IVIG treatment and we were told this is a common disease and would resolve on its own. Here...

My 20 month old son was diagnosed with ITP a few weeks ago. He had IVIG treatmen...

Arwen

•11 years ago

15 Replies

How do we know we have ITP?

For us ITP'ers who don't bleed or bruise, how do we know we have ITP particularly as in my case the "standard" drugs for ITP don't work? As far as I...

For us ITP'ers who don't bleed or bruise, how do we know we have ITP particularl...

mags4743

•11 years ago

4 Replies

Anyone has used alternate mediactaion for ITP in children

my 3.5 yr old got diagnosed with ITP day before. Count fell to 3K and is currently on steroids and under observation in the hospital. Can anyone advice if they...

my 3.5 yr old got diagnosed with ITP day before. Count fell to 3K and is current...

Godly

•11 years ago

4 Replies

after a child splenectomy

my 10 year old son had a splenectomy on tuesday cause of chronic I.T.P his counts were 0 , he had 8 bottles of ivig on sunday and monday before his op which...

my 10 year old son had a splenectomy on tuesday cause of chronic I.T.P his count...

blue2901

•11 years ago

11 Replies

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Posts - ITP Support Association | HealthUnlocked

ITP Support Association

All posts for March 2013

would love to get a little drunk does any other itp people drink

anyone from ireland

Constant infections

severe knee joint pain after 1 month on steroids in ITP, is it normal?

has anyone tried papaya leaf??

in itp children effected chickenpox is danger

Antibiotics and the platelet count

Did anyone else see this in the Daily Mail today? Raises the ITP profile.

help?how can my sons count change from 7 to 16 without meds, always been under 10 for past 6 months,then after short break went up down now.

Romoplostim dose

My daughter aged 7 had her check up yesterday at hospital. Her platelets were 230 which is normal.

has anyone had indium labeling, then splenectomy, and are you itp remission?

hair loss from itp or n plate

My daughter is 4yo has had ITP for a year and is due for immunizations needle. Is it advisable to have her immunized?

20 mo old diagnosed with ITP

How do we know we have ITP?

Anyone has used alternate mediactaion for ITP in children

after a child splenectomy

Search posts

Pinned Posts

Latest poll

ITP TREATMENTS - Which ITP treatment has given you the best outcome in terms of the longest period of remission ?

Topics

Archive