Posts - ITP Support Association | HealthUnlocked

ITP Support Association

4,135 members•2,109 posts

All posts for February 2018

Newly diagnosed and searching for answers.

My daughter was diagnosed on 2-16-18 with ITP, she was medevaced to a children’s hospital. She tested positive for direct Coombs prior to her first IVIG. Her...

My daughter was diagnosed on 2-16-18 with ITP, she was medevaced to a children’s...

amberlbrown2

•7 years ago

18 Replies

promacta achy joints

I have ITP since July 2017. My lowest count was 16. The dr. put me on prednisone and It made me go bat ---- crazy!!! They started me on Promacta 25 mg, I...

I have ITP since July 2017. My lowest count was 16. The dr. put me on prednison...

Seafood

•7 years ago

24 Replies

My ITP

I have ITP since 2009 and its a frustrating journey to say the least. My platelets do good for awhile and then bottom out like down to 30,000. I have a had a...

I have ITP since 2009 and its a frustrating journey to say the least. My platele...

Jan2010

•7 years ago

9 Replies

Want to take advantage of all our features? Just log in!

Itp nose bleeds

What platelet count were you when you had nose bleeds, gum bleeds or in stool? What count were you when you started treatment? What treatment did you have?...

What platelet count were you when you had nose bleeds, gum bleeds or in stool? ...

Shoni89

•7 years ago

18 Replies

Itp and vitamin D deficiency

Hi all Hope you're all getting on well 😊 Has anyone looked into itp and vitamin D deficiency? Im wondering if theres a link..

Hi all Hope you're all getting on well 😊 Has anyone looked into itp and vitam...

Hidden

•7 years ago

13 Replies

Tranexamic acid

Has anyone had tranexamic acid to treat nosebleeds. My son had been prescribed it for if he has a bad spell but am always a bit anxious about giving medicines....

Has anyone had tranexamic acid to treat nosebleeds. My son had been prescribed i...

Ab36

•7 years ago

10 Replies

Has anyone known or heard of ITP that began at 3 years old and healed after years?

Hello has anyone known or heard of ITP that began at 3 years old and healed after years? My daughter has had ITP for the past 3 years she’s 6 now and I’m...

Hello has anyone known or heard of ITP that began at 3 years old and healed afte...

Kifah90

•7 years ago

4 Replies

Recurring colds

3rd cold in 3 months worked at my present employment 10 years I took days off as I had to take to my bed felt ill never been of sick in 9 years till diagnosed...

3rd cold in 3 months worked at my present employment 10 years I took days off as...

Topography52_-

•7 years ago

5 Replies

Tamiflu - WORKING!!!!! :) :)

I have been using nplate for ITP for 2 years, giving myself weekly injections. I was sick with the flu last week. This made my numbers drop even with my...

I have been using nplate for ITP for 2 years, giving myself weekly injections. ...

ITP_September_2014

•7 years ago

6 Replies

Itp in children

Hi all Has anyone had a child with itp and recovered? How long did it take?

Hidden

•7 years ago

5 Replies

Is ITP causes stroke/brain hemorrhage

I had itp since 5 years came when I was conceived. normally my platelet hangs around 1 k to 35 k. Occasionally it shoots to 60 or 70 k also for some days...

I had itp since 5 years came when I was conceived. normally my platelet hangs ar...

khair

•7 years ago

10 Replies

I’m new on here, recently diagnosed with ITP, I’m also type2 diabetic

Hi, as my title states I’m new to all this ITP stuff, only diagnosed December 2017, I have diabetes type2 and as such was only put on a short course of...

Hi, as my title states I’m new to all this ITP stuff, only diagnosed December 20...

LindaAnne53

•7 years ago

14 Replies

ITP

I started noticing bruises on my then 18 month old baby after his immunisation. After his immunisation I kept taking him to Dr with worry about petechia rash....

I started noticing bruises on my then 18 month old baby after his immunisation. ...

Shoni89

•7 years ago

11 Replies

Lymph nodes swollen in neck

Me I’m very worried as I have a large swollen lymph node ( submandular) plus sourtounding lymph nodes can be felt in neck and face, just in front of my left...

Me I’m very worried as I have a large swollen lymph node ( submandular) plus sou...

Sarah-Ambam

•7 years ago

9 Replies

About her bmb

My 83 year old father needs another bmb. The last one he had the doctor promised sedation and denied it when we got ready for procedure. My father said the...

My 83 year old father needs another bmb. The last one he had the doctor promised...

dadisgirl

•7 years ago

2 Replies

Hyperbaric chamber treatments have raised my platelet count.

I had 20 HYBOT treatments at 2.5 ATA and 100% oxygen. My platelets have been stable at 35K for three years prior to the treatments. A week after treatments my...

I had 20 HYBOT treatments at 2.5 ATA and 100% oxygen. My platelets have been sta...

jjjamesholder

•7 years ago

13 Replies

Watery eyes and ITP

Anyone have watery eyes? My 10 year old daughter with ITP has had watery eyes for a couple of weeks now. I tried giving an antihistermibe but it didn't seem to...

Anyone have watery eyes? My 10 year old daughter with ITP has had watery eyes fo...

grasshopper2000

•7 years ago

5 Replies

Travel Insurance

Where is the best place to get travel insurance with ITP Thanks

Monty55555

•7 years ago

5 Replies

Does anyone have any good news?

Even the remission news for ITP is only temporary. Can anyone say it was cured? And how did that happen? I am not a fan of any solution removing organs god...

Even the remission news for ITP is only temporary. Can anyone say it was cured?...

technogeek

•7 years ago

10 Replies

Remission?

Hi all Can you share your thoughts as to what constitutes being “in remission” for someone who has ITP? I’ve read different perspectives ranging from it...

Hi all Can you share your thoughts as to what constitutes being “in remission” f...

Bellazac1971

•7 years ago

7 Replies

ITP for 23 years - I’m now 40.

Hi everyone, I’m very new to this as I haven’t needed anything like this in all my life, as selfish as that sounds. I’ve had itp since I was 17 with a brain...

Hi everyone, I’m very new to this as I haven’t needed anything like this in all ...

Jamesheather1

•7 years ago

31 Replies

MMf and Haemorrhage

Hi all, I have a couple of questions and would welcome your contributions. Thanks. Firstly anyone on MMF - what is your experience with this treatment for ITP,...

Hi all, I have a couple of questions and would welcome your contributions. Thank...

Rafiq

•7 years ago

9 Replies

Flu shot???

Anyone develop ITP after flu shot?

carnes555US

•7 years ago

9 Replies

Colds

Does anyone experience platelet drops when you have a cold?

Bm939

•7 years ago

20 Replies

Search posts

Pinned Posts

See all

Shedding some light on ITP - where to get information

Latest poll

See all polls

ITP TREATMENTS - Which ITP treatment has given you the best outcome in terms of the longest period of remission ?

Vote

Topics

All posts(58)

All things ITP Support Association(58)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - ITP Support Association | HealthUnlocked

ITP Support Association

All posts for February 2018

Newly diagnosed and searching for answers.

promacta achy joints

My ITP

Itp nose bleeds

Itp and vitamin D deficiency

Tranexamic acid

Has anyone known or heard of ITP that began at 3 years old and healed after years?

Recurring colds

Tamiflu - WORKING!!!!! :) :)

Itp in children

Is ITP causes stroke/brain hemorrhage

I’m new on here, recently diagnosed with ITP, I’m also type2 diabetic

ITP

Lymph nodes swollen in neck

About her bmb

Hyperbaric chamber treatments have raised my platelet count.

Watery eyes and ITP

Travel Insurance

Does anyone have any good news?

Remission?

ITP for 23 years - I’m now 40.

MMf and Haemorrhage

Flu shot???

Colds

Search posts

Pinned Posts

Latest poll

ITP TREATMENTS - Which ITP treatment has given you the best outcome in terms of the longest period of remission ?

Topics

Archive