Posts - ITP Support Association | HealthUnlocked

ITP Support Association

4,088 members • 2,077 posts

All posts for January 2017

ITP for 2 months now..

Hello! Just want to know how you guys deal with ITP? My hematologist prescribed me decilone 4mg daily for a week now and my face is getting puffier with an...

Hello! Just want to know how you guys deal with ITP? My hematologist prescribed ...

nicoleeeeeeeeeeeee

•7 years ago

Get tested for H-pylori!!!

I've been to hell and back with constant single digit platelets, all the symptoms, all the treatments and a splenectomy, none of which worked. My specialist...

I've been to hell and back with constant single digit platelets, all the symptom...

•7 years ago

Treatment options and coping with very low platelets

My daughter has been diagnosed for about 2 years. Her platelets plummeted following immunisation & starting college. She is not coping with everyday life at...

My daughter has been diagnosed for about 2 years. Her platelets plummeted follo...

•7 years ago

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Chronic ITP

hi iam suffering from chronic itp from past 3 yrs doctor has suggested me to go for slpeen people has suggested me not to do spleen.please help me guys but...

hi iam suffering from chronic itp from past 3 yrs doctor has suggested me to g...

srikrishnakarthik87

•7 years ago

Vaccination

I would be really grateful for opinions on vaccination here. I must do one unfortunately. Would be great to know if anyone had vaccinations and whether it was...

I would be really grateful for opinions on vaccination here. I must do one unfor...

•7 years ago

Itching in legs below calf

I have been an itp patient since 7 years and fairly recovered well with ayurvedic medicines. I still jave itching in my legs and the skin seems to have blood...

I have been an itp patient since 7 years and fairly recovered well with ayurvedi...

•7 years ago

Children with ITP

Is anybody else the parent or cater of a child with ITP? Would really appreciate being able to talk to others on the same position but more importantly link...

Is anybody else the parent or cater of a child with ITP? Would really appreciate...

•7 years ago

Tpo receptor agonists

I was on steroids for 5 months and now been taking mycophenolate for 4 months with no results I'm just about to start injections of Nplate, has anyone had...

I was on steroids for 5 months and now been taking mycophenolate for 4 months wi...

•7 years ago

Rituximab

Hi all Our 13 year old daughter starts with Rituximab on Tuesday. For the regular contributors to the forum you may recall that she had an incredible response...

Hi all Our 13 year old daughter starts with Rituximab on Tuesday. For the regula...

•7 years ago

Itching

Have been diagnosed with itp for the last 3 or so yrs, what do we do when the itching gets really bad? It's driving me nuts thanks.

Have been diagnosed with itp for the last 3 or so yrs, what do we do when the i...

•7 years ago

How long does normally steroid induced insomnia last after coming of steroid. .

nearly 6 week off steriod though I can say previously I couldnt sleep without takING sleep medicine but now I can at least sleep 4 or 4 and half hours or...

nearly 6 week off steriod though I can say previously I couldnt sleep without ta...

•7 years ago

Worst Side Effects Ever

Have been tapering off of 120 mg of Prednisone over the last 3 weeks for an asthma exacerbation. It's the highest dose I've ever taken. My last day of 20 mg...

Have been tapering off of 120 mg of Prednisone over the last 3 weeks for an asth...

•7 years ago

Low platelet count & air travel

Old man, 70 years, immunocompromised because of chemotherapy, can he travel via aeroplane for 1:20 hour only? Or there is a risk of bleeding??

Old man, 70 years, immunocompromised because of chemotherapy, can he travel via ...

•7 years ago

Prednisone

I'm new on here but just wondering if anyone can please help me out. My doctor has just put me on a short course of Prednisone (taking 15mg a day for 5 days...

I'm new on here but just wondering if anyone can please help me out. My doctor h...

•7 years ago

Itp and MGUS

I have suffered with itp for 7 years now I have had lots of tests done now I have MGUS with itp does anyone else suffer with itp and MGUS much appreciated...

I have suffered with itp for 7 years now I have had lots of tests done now I hav...

•7 years ago

Considering splenectomy to treat ITP

Hi - I have ITP and have been treated with Prednisone, Dapsone and IVIG intermittently for the past 3 years with no real success at getting my platelets above...

Hi - I have ITP and have been treated with Prednisone, Dapsone and IVIG intermit...

•7 years ago

1 month off steroid still facing insomia

I was diagnosed with it in august since then started from high dose of 50mg to 5mg alternate day..But it has already been month off steroid still facing...

I was diagnosed with it in august since then started from high dose of 50mg to 5...

•7 years ago

ITP and insurance

Hi, just wondering if anyone on here has had any success getting critical illness or income protection insurance? If so you could you tell me who you're with?...

Hi, just wondering if anyone on here has had any success getting critical illnes...

•7 years ago

Rituximab how long before it starts to work?

My husband had his last (4th) treatment on the 23rd December but still no change in his platelets. We've read it can take up to 12 weeks to hopefully work but...

My husband had his last (4th) treatment on the 23rd December but still no change...

•7 years ago

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