Wait and see : ): I have not posted for... - ITP Support Assoc...

ITP Support Association

4,091 members2,077 posts

Wait and see : )

Topography52_- profile image
6 Replies

I have not posted for a while I am adapting a wait and see approach well I waited no change platelets between 30/50 and I see I am still bruising : ) all in all no change strange illness ITP.

Written by
Topography52_- profile image
Topography52_-
To view profiles and participate in discussions please or .
6 Replies
wjoyful profile image
wjoyful

I can see what your talking about. I get my tests and my counts never change. I chose the wait and see approach to and I can’t figure out why they always stay at 26. They tell me that that my platelets stick together so the count could be more. I have no symptoms in fact if they didn’t tell me I had ITP I would have no idea I had it.

Topography52_- profile image
Topography52_- in reply to wjoyful

Previously mentioned I suffer with fatigue ,sore joints, not sure if it is due to ITP my hematologist has done lots of other tests due to the fact I am coming out in little brown dots and some red dots this may be petchulie ( may not be correct spelling ) mentioned it may be auto immune so many to choose from : ) i am actaully thinking of joining them all up see what appears and post.

heather1966 profile image
heather1966

PLEASE PLEASE try vitamin D I have had ITP for twenty years with a steady 30 ish except for pregnancy it dropped 3 thousand. I had a vitamin D deficiency so I started taking 1000ui daily next year numbers are up 63 so now I up it to 2000 ui daily next draw up again 96. Next time you see your doctor ask him to check your D levels it can't hurt

Topography52_- profile image
Topography52_- in reply to heather1966

Rollercoaster of ITP : ) I will do .

wjoyful profile image
wjoyful in reply to heather1966

I think each person reacts to different stuff I’ve been on 2000 hi for years and I still only have a count of 26. I used to spend hours researching online and my mind would be going in circles. I stopped doing that cause I got nowhere. I just eat healthy and live my life. No point stressing. It never hurts to try things though, who never know what might work.

Topography52_- profile image
Topography52_- in reply to wjoyful

Stress what's that : ) I feel the January blues do not help why I am enjoying some much needed comedy films on this dreary day.

You may also like...

Seeing a consultant

weeks ago) have had immunoglobulin- my levels have gone up to 36 as of last week i have another...

Did anyone else see this in the Daily Mail today? Raises the ITP profile.

http://www.dailymail.co.uk/health/article-2291796/ITP-Liz-blamed-sons-rash-washing-powder--fact-risk

ITP and feeling the Cold

thought I'd throw out a topic to see what responses other folk have had to - ITP and feeling the...

Info on Dexamethasone Side Effects Anyone Please

a holistic approach. My hematologist convinced me to try Dexamethasone since my platelets were at 17

Just diagnosed 4 days ago with thrombocytopenia

dexamethasone 40mg/day. I didn't see this steroid in other posts. I did have a platelet...