Registered UK charity supporting sufferers of the auto immune bleeding disorder Immune Thrombocytopenia. Views expressed are those of individuals...Read more
Any ITP patient , living without medication?
AWSAR23 days agoPOPULAR
Hello every one...
41 Replies1 Like
Steroids & IVig only works briefly, anybody experienced this?
Thewakey312 days ago
Hello, my husband recently was diagnosed with ITP & given Steriods which took his count from 6 to 60 within a week or two then dropped back ...
6 Replies1 Like
First results after steroids....
Bellazac19713 days ago
My 13 year old daughter had a platelet count of 19 and after a week of steroids we got her first results just 30 mins ago......208!!!!! Is t...
mcewan1234519 days ago
I suffer from fatigue do any other itp sufferers have this symptom and if so any advice on how to combat, some days at work are very hard to...
Platelet count of 4
jwk424 days ago
I am sooooo scared of this being leukemia.all my other blood counts are normal. I see a hemotologist in 2 days. I'm so worried. Any insight
SHOULD FLU SHOTS BE GIVEN TO ITP PATIENTS
jose19468 days ago
i received a flu shot and within a week my platllets went from 39,soon 4 then 46. now im on 125 daily on prednizone(ugg). i was hospitalized...
Itp treatment with steroid causing cronic insomnia
Avantidave198818 days ago
Does itp treatment with steroid causes insomnia . .Currently after 3 and half month now tapered to 5mg still able to sleep for less than 4 h...
Deborah51674 days ago
Hello All, I was diagnosed with acute ITP in October . I was in alot of pain with my joints , but I was told it was from the bruising and ...
Can pregnancy cause ITP
Avantidave198816 days ago
At present I am responding well to steroid but my doctors are saying pregnancy can trigger ITP..very scared with this thought
Pain in muscles and joints
Davy9 days ago
From time to time I hear about people with ITP, having pain in muscles and joints. I have also experienced it myself
Eliminating other diseases
jwk414 days ago
I am very new to all this😞 at what point where you guys confident it was itp and not cancer or something? I'm scared to death
dede7a month ago
Has anyone encountered more eye redness or in general more susceptible to viruses ? Been to the eye doctor three times now on my eye redness...
10 Replies1 Like
how Platelet count get normal
SARazak6 days ago
Hi,My sister having ITP Her platelet count an an averagete 30k Every 15 days it 20k and in other days 15 its 50k up and down please suggest...
Bellazac197114 days ago
Chelley07512 days ago
Good news for me atm...
No symptoms! frustrating!!
Ironspur1419 days ago
Hi, just an update really, had this bout of ITP since start of September with a count of 10. Only symptom I had then was a 3 hour nose bleed...
Is it normal to have decrease platelet count with steroid tapering
Avantidave19888 days ago
Mine was 90 then 1 lakh then 150 then 136 and now with alternate days 5mg does its 107
Davy6 days ago
We have a boy in the Danish group. I do not know his age, but I would think he is about eight years old. He has ITP with a low platelet coun...
STEROID TREATMENT RESPONSIVE BUT WITH SERIOUS INSOMNIA SIDE EFFECT
Avantidave198824 days ago
I have been under going treatment for itp.So far have responded well to steroid count have reached normal with tapering of 7.5 mg as of now ...
Joint pain while on predisolone
Avantidave19885 days ago
I am experiencing terrible join pain though now dose is reduced to 5mg alternate days still..along with bad insomia..don't know if this is h...
Have you ever had CLUMPING PLATELETS when you have had a blood test ?
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