Registered UK charity supporting sufferers of the auto immune bleeding disorder Immune Thrombocytopenia. Views expressed are those of individuals...Read more
Where did they go???
Pollyangel3 days ago
So much for my count of 109
13 Replies2 Likes
Vacation / Sick Days
ITP_September_20144 days ago
All my vacation and sick days go to Dr visits, colds and naps. I hate feeling like i'll never get my life back if I don't find a cure. How d...
Cigarettes and ITP
Pollyangela day ago
I was a smoker... stopped on 6 July this year... just wondering if this could be causing my platelet count to drop
4 Replies1 Like
5mg maintennance dose Prednisolone
holcotts10 days ago
ITP – Need more options
In September 2014 I was diagnosed with ITP. I found out due to a cold and routine check up. I have tried, Prednisone, IVIG, Rituxan, MMF, Np...
2 Replies1 Like
Low platelet count of 5
joviblues7 days ago
I have been doing so much reading online about my mums case of low platelet count but because her situation is unique I dont really have any...
ITP_September_20143 days ago
Today I'm taking another vacation day for a dr. visit. I haven't had my Nplate shot in two weeks. I'm starting to feel sluggish, developing ...
Herkules5625 days ago
Since it is so rare to being diagnosed with this desiese I wonder it it's what I really got. Last Friday I noticed little small red dots on ...
I've got how many?
Pollyangel16 days ago
Had a blood count on Wednesday... I have 109 platelets... the most I've had since January this year
7 Replies5 Likes
Trying out different vitamins
Lynwoodley16 days ago
My original count was 33 when o found out I had ITP about 9 weeks ago I looked up many items on ITP and some said diet and vitamins helped....
7 Replies7 Likes
Does mmf always improve count slowly?
crazydoglady4 days ago
Hi, have been on mmf (myfenax) for just over 3 weeks, on a dose of 500mg twice a day. Went to haematology clinic on Monday and my platelet c...
3 year old diagnosed with ITP
lynsey163024 days ago
Hi, this is all so new to me. I suppose I am joining this group to hopefully get a further understanding of this blood disorder...
Evak5724 days ago
Hi,my daughter was diagnosed at age 17 (she is 24 now) with ITP. She was admitted to hospital with platelets counts 6 . The doctor tried dif...
5 Replies5 Likes
My Purple Patch - ITP Blog
AnthonyHeard25 days ago
Please do check out my weekly ITP blog entitled My Purple Patch . I hope that recording my ITP story will help other ITP sufferers and their...
5 Replies3 Likes
kaya1217 days ago
Hi I have a platelet count of 66 but am on no treatment just wanted some advice as to whether I should be concerned or on any treatment
Hidden24 days ago
After a year of testing, I finally got the diagnosis cmml-1, a type of chronic leukemia which is very difficult to diagnose. Hence the long ...
ITP Symptoms after 30 years
30yrremission25 days ago
When I was 22 years in 1986 I had ITP and had a spleenactamy. Now 30 years later I'm worried my ITP may be coming back. My symptoms before w...
Hidden6 days ago
Hi .. I'm on 60mg prezolone and I've got an acne burst on shoulders and chest . Should I take oral antibiotics cause body wash and lotions d...
Have you ever had CLUMPING PLATELETS when you have had a blood test ?
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