ITP Support Association | HealthUnlocked

ITP Support Association

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Unexpected remission - Maybe it will help (even one person)

Hi all, I was diagnosed with ITP in March 2021 with a count of 3, however it beg...

ITP Paediatric Virtual Meeting

ITP Paediatric Virtual Meeting The ITP Support Association is pleased to announ...

9% of patients say.......... ITP Patient Perception Survey 2022

ITP Patient Perception Survey 2022 9% of patients say they are not given time t...
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Read this before you get your spleen removed

https://www.pdsa.org/products-a-publications/e-news/2018-enews/item/1613-pdsa-en...

Global ITP Awareness Week takes place from 26th to 30th September.

Global ITP Awareness Week takes place from 26th to 30th September. We are pleas...
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ITP Patient Perception Survey 2022

Over the years the ITP Support Association has carried out many surveys covering...
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Doxycycline affecting platelets

Hi all have had to take doxycycline for 3 weeks as a precaution after oral surge...

2022 ITP Support Association Patient Convention - All videos now live.

As part of our 2022 ITP Support Association Patient Convention, we held a Sympos...
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Greta Burroughs – An ITP Patients take on Fatigue

Greta Burroughs – An ITP Patients take on Fatigue As part of our 2022 ITP Suppor...
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ITPSA UK Convention – Fatigue Symposium 2022

ITPSA UK Convention – Fatigue Symposium 2022 As part of our 2022 ITP Support As...
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Working with ITP

I do a manual job as a painter and decorator but my levels are extremely low in ...

TAVALISSE FOR ITP

Has any one taken TAVALISSE for ITP? I have just started the medication June 16...

ITP Tamiflu experiment (Oseltemivir)

Has any member tried Tamiflu (Oseltemivir) for ITP. My haematologist has tried e...

Testing positive for Covid on Ritux

Has anyone on Rituximab had Covid and if so how did it go for you?

Homeopathy

Hello, just wondering if anyone in the UK has had any success with homeopathy fo...

LDN

Anyone familiar with LDN Low Dose Naltrexone? https://ldnresearchtrust.org/what-...

Does acupuncture works on ITP?

Hello everyone! I had a drop of platelets 3K because of an inspiratory infection...

Post Splenectomy

I have tried many medications for my ITP to which none of them have worked. Pr...

CBD drops

Is anyone use CBD drops to help the sleep? Is it going to impact the platelets c...

Anyone need revolade

Anyone need revolade 25mg tablets (we bought it for my mother in law and she pas...

Long term prednisone use

I have been on various doses of prednisone for one year now to help control my I...

Nplate hair loos

Hello everyone, I have started nplate and I am losing hair and thinning hair so...

Glutathione

Has anyone tried Glutathione for itp?

Pins and needles-Folate deficiency

Hi all I have had pins and needles in my hands and occasionally in my feet when ...

can a ITP patient work as home care assistance?

can ITP patient work as a Home care assistance? I'm new

Red stretch marks getting worse

Hi all! I’ve got ITP and it appears that my PLT is holding around the 50 mark. ...

Does Revolade has a negative impact on the organs or any other part of the body?

I am in Revolade 4 months now 75mg every day. I was wondering in which organ Rev...

First Rituximab Infusion Day Tomorrow

So I’m in what I think might be quite a unique position right now in the UK whic...

RARE DISEASE DAY 2022

RARE DISEASE DAY 2022 - MONDAY 28th February This coming Monday February 28th ma...

COVID-19 Vaccines and Boosters

This is the recording of the ITP Support Group Meeting covering Covid-19 Vaccine...
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About us

Registered UK charity supporting sufferers of the auto immune bleeding disorder Immune Thrombocytopenia. Views...

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