Posts - ITP Support Association | HealthUnlocked

ITP Support Association

4,135 members•2,109 posts

All posts for April 2019

Petechiae

Good morning I had Itp 6 years ago platelet count has been great ever since . However this last week if I scratch my skin I get Petechiae but no other symptoms...

Good morning I had Itp 6 years ago platelet count has been great ever since . Ho...

healthissue

•6 years ago

6 Replies

Need consultation

Hi me patient of essentialthrmbocythemia and on hydrea medication want to consult in london

Hi me patient of essentialthrmbocythemia and on hydrea medication want to consul...

Murshad

•6 years ago

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We have an ongoing romiplostim clinical trial in pune India.

This trial constitutes checking bioavailability of Romiplostim, in comparison with Innovator molecule. The drug provided will be free of cost. If you are not...

This trial constitutes checking bioavailability of Romiplostim, in comparison wi...

romiplostimtrial

•6 years ago

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Hope to improve ITP

I m a Homeopathic Doctor my name is Dr. Saleem Hamid and have more than 50yrs experience in homeopathy field and treated more than 150 cases o ITP, now a days...

I m a Homeopathic Doctor my name is Dr. Saleem Hamid and have more than 50yrs ex...

Itph

•6 years ago

15 Replies

Do steroid bursts work and do they have the dreaded side effects?

I react very badly to dexamethasone (apparently 4x stronger than prednisone) and wonder if 2 to 3 week 'bursts' of dex has worked for others who have extreme...

I react very badly to dexamethasone (apparently 4x stronger than prednisone) and...

sharroN42

•6 years ago

6 Replies

Mycophenolate Mofetil (MMF) - How is it for you ?

I have been on Mycophenolate Mofetil (MMF) since Feb 2016 at a dosage of 2 times 500 mg's per day, and it has kept my platelet count steady at around 100 to...

I have been on Mycophenolate Mofetil (MMF) since Feb 2016 at a dosage of 2 times...

AnthonyHeard

Administrator•6 years ago

17 Replies

Anyone have their speen out?

My doctor has decided I need a spleenectomy...who has had this and does it work to make more platelets?

My doctor has decided I need a spleenectomy...who has had this and does it work ...

dunn258

•6 years ago

19 Replies

Fluctuating Counts? Can we increase counts?

My son, 25, a basketball athlete, was diagnosed with ITP, post a viral attack, we don't know if platelets were low, earlier, no records of him being sick...

My son, 25, a basketball athlete, was diagnosed with ITP, post a viral attack...

ramkya

•6 years ago

7 Replies

vitamin c for I t p treatment ???

looking for a miracle and came across VITAMIN C for I t p treatment ?? anyone know anything about this ?? also what is refractory I t p ?? sure hope they can...

looking for a miracle and came across VITAMIN C for I t p treatment ?? anyone kn...

exxxon

•6 years ago

5 Replies

Nplate clots

Jazzbo77 I was wondering how many Itp suffers took Nplate but developed blood clots at 55-75k platelets? I did in Oct-Dec 2014 and the more shots I took the...

Jazzbo77 I was wondering how many Itp suffers took Nplate but developed blood cl...

Jazzbo77

•6 years ago

5 Replies

ITP patient Platelets stabilization thru Rhogam injection? Anyone had success? Side effects? Please share details.

Does anyone had success with Rogham injections?? Doctor is advising Rogham injection. My sister is scheduled to get the injection within next 12 hrs. My sister...

Does anyone had success with Rogham injections?? Doctor is advising Rogham injec...

ITPResearch2019

•6 years ago

1 Reply

Labs and EBV results part 2

Got my labs back minus the Hair analysis test and results show that I still have reactivated EBV. Not sure what to make of this exactly but most likely...

Got my labs back minus the Hair analysis test and results show that I still have...

JennaShi

•6 years ago

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MS

Hi, I was diagnosed with multiple sclerosis 5 years back. Currently i am facing arthritis symptoms. I am facing issue while walking. I took 2 dosage of...

Hi, I was diagnosed with multiple sclerosis 5 years back. Currently i am facing...

Rinku_

•6 years ago

1 Reply

Can this fix my ITP

I was diagnosed with ITP when I was 14 and I haven’t smoked any nicotine, only thing I have ever touched was weed. But that was after I was diagnosed... now...

I was diagnosed with ITP when I was 14 and I haven’t smoked any nicotine, only t...

CureForITP

•6 years ago

2 Replies

anyone know the odds of spleen removal ??

seems removing the spleen can cure I t p but odds not good ??? especially if its not the spleen killing off the platelets ?? there is a scan to identify which...

seems removing the spleen can cure I t p but odds not good ??? especially if its...

exxxon

•6 years ago

8 Replies

dropped 5k yesterday to 55 k ??

a little disappointed but 55k is ok … I think with my reduction of the prednisone to 15mg. brought it down ?? going completely off the prednisone and...

a little disappointed but 55k is ok … I think with my reduction of the predn...

exxxon

•6 years ago

5 Replies

Imuran for Itp

Did any one took imuran to increase the platelets count?

Entelaela

•6 years ago

7 Replies

Remission

My platelet count has always been around 27 to 35. I got pneumonia and my platelet count was 99 and 156. It is amazing? I wonder if it will go down again....

My platelet count has always been around 27 to 35. I got pneumonia and my plate...

dunn258

•6 years ago

4 Replies

remission possible after 1 year .. pray !!

from everything thing I have read during the 1st year after diagnosis .. there ia a possibility to go into remission .. anyone go into remission ?? jimmy

from everything thing I have read during the 1st year after diagnosis .. there i...

exxxon

•6 years ago

9 Replies

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Posts - ITP Support Association | HealthUnlocked

ITP Support Association

All posts for April 2019

Petechiae

Need consultation

We have an ongoing romiplostim clinical trial in pune India.

Hope to improve ITP

Do steroid bursts work and do they have the dreaded side effects?

Mycophenolate Mofetil (MMF) - How is it for you ?

Anyone have their speen out?

Fluctuating Counts? Can we increase counts?

vitamin c for I t p treatment ???

Nplate clots

ITP patient Platelets stabilization thru Rhogam injection? Anyone had success? Side effects? Please share details.

Labs and EBV results part 2

MS

Can this fix my ITP

anyone know the odds of spleen removal ??

dropped 5k yesterday to 55 k ??

Imuran for Itp

Remission

remission possible after 1 year .. pray !!

Search posts

Pinned Posts

Latest poll

ITP TREATMENTS - Which ITP treatment has given you the best outcome in terms of the longest period of remission ?

Topics

Archive