Posts - ITP Support Association | HealthUnlocked

ITP Support Association

4,091 members • 2,077 posts

All posts for September 2015

Splenectomy surgery and itp

Can any tell me if they know of someone with a platelet count of 2 and survived a splenectomy. I am 70 and had a liver transplant 3 years ago , now I have itp...

Can any tell me if they know of someone with a platelet count of 2 and survived ...

ancientadolescent

•9 years ago

5 Replies

Feeling confused and overwhelmed......or should I say 'sorry for my self'

So I was diagnosed with ITP in May this year as part of a blood test in another hospital dept. My count was 13 and I was sent to haematology immediately and...

So I was diagnosed with ITP in May this year as part of a blood test in another ...

QT200QT600

•9 years ago

14 Replies

Living with itp

Hi there, I was diagnosed with itp Sept last year and have been on prednisolone on and off since then I also found out I have hiv and needed to take meds...

Hi there, I was diagnosed with itp Sept last year and have been on prednisolone ...

greenwood78

•9 years ago

3 Replies

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Work

Have you found you have had to miss a lot of work. I'm a waitress and find I'm off a lot because of being lightheaded and so tired.

Have you found you have had to miss a lot of work. I'm a waitress and find I'm o...

Whitespot

•9 years ago

20 Replies

Fostamatinib Trials

Hi I was diagnosed a year ago with ITP and not responded to Steriods, MMF and Rituxamab, only treatment that raises my plaltelets is IVIG temporarily. I have...

Hi I was diagnosed a year ago with ITP and not responded to Steriods, MMF and Ri...

Sachmo16

•9 years ago

9 Replies

Travel insurance

I was diagnosed with ITP December last year twice hospitalised my platelets went down to two.I was on 60mg steroids.My platelets are now 219 and now on 1 mg a...

I was diagnosed with ITP December last year twice hospitalised my platelets went...

HelenButler

•9 years ago

10 Replies

Treatment

After taking steroids and then IVIG I was wondering what everyone's next step was. Neither of those seem to keep my numbers up for very long?

After taking steroids and then IVIG I was wondering what everyone's next step wa...

Whitespot

•9 years ago

14 Replies

Drop in platelet count

Hi my daughter has had itp since 2012. She had lived quite safely on a very good count due to taking mycophenolate and eltrombopag. Unfortunately over the last...

Hi my daughter has had itp since 2012. She had lived quite safely on a very good...

Lindylou86

•9 years ago

5 Replies

Living with ITP

I have had ITP for around 20 years. I was being tested for other things when I was diagnosed. (Count of 20) I have had a hysterectomy an a couple of smaller...

I have had ITP for around 20 years. I was being tested for other things when I ...

Dawnwarry

•9 years ago

4 Replies

ITP Disease

Hi All, My name is vikas Kakkar, I am from India. I am a software engineer. In 2009 i found that i was suffering from ITP. In 2009 my platelet count was...

Hi All, My name is vikas Kakkar, I am from India. I am a software engineer. In...

kakkar_vikas87

•9 years ago

4 Replies

Tiredness

I know when my platelet count is dropping as I become extremely tired and weary after the gentlest of tasks. Not sure whether I've noted lightheadedness as...

I know when my platelet count is dropping as I become extremely tired and weary ...

Dawnwarry

•9 years ago

1 Reply

Lightheaded

I was wondering if anyone experiences lightheadedness and no energy when there platlets are low?

I was wondering if anyone experiences lightheadedness and no energy when there p...

Whitespot

•9 years ago

6 Replies

Hot sweats

Hi everyone, I have AITP and have had several platelet drops over the years where I am hospitalised. I am always started on the high dose prednisolone which...

Hi everyone, I have AITP and have had several platelet drops over the years wher...

Ann-ie62

•9 years ago

5 Replies

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Posts - ITP Support Association | HealthUnlocked

ITP Support Association

All posts for September 2015

Splenectomy surgery and itp

Feeling confused and overwhelmed......or should I say 'sorry for my self'

Living with itp

Work

Fostamatinib Trials

Travel insurance

Treatment

Drop in platelet count

Living with ITP

ITP Disease

Tiredness

Lightheaded

Hot sweats

Search posts

Pinned Posts

Latest poll

ITP TREATMENTS - Which ITP treatment has given you the best outcome in terms of the longest period of remission ?

Topics

Archive