ITP & Prednisone

[Frank_Will]

Has anyone experienced heavy palpitations due to taking prednisone?

[Robert1959]

I can't say that I had any palpitations however my pulse rate increased substantially when I was on my highest dose (100mg)

[Frank_Will in reply to Robert1959]

Thanks, lately when I’m working out my pulse goes through the roof. Was 150 this week. My hematologist has changed my dosage. I’m beyond ready to get off prednisone and take a different approach. Thanks for the response Robert.

[magone7]

Yes, I have. I have used prednisone for 13 years in different doses. In Latvia doctors don't offer alternative medicine. Though thanks GOD I can live and work.

[Michael48 in reply to magone7]

I have been on Prednisone for nearly 10 years. What is your average dosage? My average has been 15mg I am also on Warfarin.

[magone7 in reply to Michael48]

Thanks for your reply. My average dosage is from 12,5 to 20mg. It depends on platelets level. Sure it has causes some side effects.

[jjjamesholder]

Prednisone worked some for me, but had side effects. I was more talkative and more aggressive when I was talking. I was saying things that were much better off not being said. I did not like prednisone so I had my spleen removed. Spleen removal is a big deal. You lose some infection protection for your entire life.

[Frank_Will in reply to jjjamesholder]

Hope all has been well since your spleen removal. Thanks for the response.

[jjjamesholder in reply to Frank_Will]

Yes, but, on the spleen removal. It is a big major deal having your spleen removed. The doc accidentally cut my intestine while doing it. I was in the hospital a few days longer. I got partial help from my spleen removal. My platelets now stay at 35K with an occasional dive lower. My life is normal. I am always looking for bruises on my body. I get a blood test if I see a big bruise. I am trying treatments in a hyperbaric chamber to fix my problem. It is an off label medical procedure. Insurance does not pay. I am the first person I know that has tried this approach to fixing ITP. If it works I will tell those on this site.

[NickyD]

Prednisolone made me aggressive, moody and unpleasant to be with. I learnt how to apologise quickly and sincerely. I put on over 5 stone in under 6 months and suffered sleep deprivation from only having 2 hours sleep a night. Had spleen out and it made no difference so now open to getting more infections that last longer, not helped by the immunosuppressant drug i take twice daily to level out my platelet count. However, i am very grateful that my platelet count is now stable and i can get on with my life. Always look for the silver lining