iVGI for platelets

[Jodi289l]

How long did it take for ivgi to work for you? How were your results? Did your platelets go up and down while on the ivgi? Thank you

[Heath21]

Hi, I have had IVig three times. The first twice I had 2 infusions and I was also on high dose steroids to which I wasn’t responding. Platelets went up to a safe level immediately and continued to improve. The third time I was not on steroids because of awful side effects and I only had one longer infusion. Platelets went up immediately but only stayed up a week.

At least I know I respond quickly to IVig if I need an operation.

Now on eltrombopag which seems to work for me.

Hope this helps. Good luck.

[Jenfa131]

Hi jodi289 I have had ivig several times my platelets went up to safe levels but the more I have ivig my platelets don’t stay up for long. Ivig is a short term thing. Hope all goes well for you x

[peruvian in reply to Jenfa131]

Yes, that's true. It's only to get oyu ot of emergency. Bt after that it's important to get a treatment from hematologist

[bruiser2017]

Hi Jodi, have you had an IVIG (not iVGI) infusion? Are you on any other meds - steriods? What are your current platelet counts?

As provided elsewhere IVIG is a short term fix, not something that will have any long term beneficial effects on ITP. I had 3 rounds of IVIG - Jan, Feb, March 2017 and then was provided with Rituximab in April; thus far the rituximab is maintaining a count of 105 - 139, not a 'cure' but seems to be a route to a long term remission of symptoms and I can live with that.

Best

Ray