Posts - ITP Support Association | HealthUnlocked

ITP Support Association

4,165 members•2,131 posts

All posts for September 2017

Update

Me7 minutes ago Hope you're all ok, I haven't been on for a while. Been really struggling with my itp. I was on high dose predisolone which made me feel awful...

Me7 minutes ago Hope you're all ok, I haven't been on for a while. Been really ...

•8 years ago

Had to share

I have been taking papya leaf extract and black seed oil everyday since last Friday when my platelets were 26. Got my bloods done today and they were 50. I'm...

I have been taking papya leaf extract and black seed oil everyday since last Fri...

•8 years ago

I cured myself of ITP!

I was diagnosed with ITP (Idiopathic Thrombocytopenia Purpura) back in 1990 after not being able to shake the flu. My platelet count hung around 40 but my...

I was diagnosed with ITP (Idiopathic Thrombocytopenia Purpura) back in 1990 afte...

•8 years ago

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Looking for good Heamotologist in Johannesburg South Africa

Hi I have ITP. Doctors appear to be baffled on how to cure me. Does anyone living in Johannesburg South Africa know of a good heamotologist please? Thank you...

Hi I have ITP. Doctors appear to be baffled on how to cure me. Does anyone livin...

•8 years ago

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Went to the itp patient day!

Hi everyone! Well I went to the itp patient day last Friday at Hammersmith hospital. My daughter came with me as my husband was working. I found it quite...

Hi everyone! Well I went to the itp patient day last Friday at Hammersmith hospi...

•8 years ago

Pains

Do anybody else get pains in their joints and muscles of your legs when ye get fatigue and platelets are low? Do any of ye guys think that a lack of sleep...

Do anybody else get pains in their joints and muscles of your legs when ye get f...

•8 years ago

Splenosis anyone?

This is for all those who have had splenectomies.......have you ever heard of this? Splenosis is a benign condition where nodules or...

This is for all those who have had splenectomies.......have you ever heard of th...

•8 years ago

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Bruising .

My legs are popping up in bruises I was due to go to the hospital this week ( last appointment 4 weeks ago platelets 82 as I had had a bacterial infection they...

My legs are popping up in bruises I was due to go to the hospital this week ( la...

•8 years ago

Child ITP reoccured after self-cured

I am from China and my son was diagnosed with ITP in Nov 20th, 2015 when he was 10 months old (PLT count : 24). He was treated with steroids for four days and...

I am from China and my son was diagnosed with ITP in Nov 20th, 2015 when he was ...

•8 years ago

ITP association for Australian/ Sydney

Hi every one I am from Sydney/ Australia I was diagnosed with ITP few months before I spent most of my time in hospital than in home!! Any way we are thinking...

Hi every one I am from Sydney/ Australia I was diagnosed with ITP few months be...

•8 years ago

Special

My hematologist told me I am special and I want to pass it on to everyone who struggles with itp and the symptoms it brings and tell you all we are very...

My hematologist told me I am special and I want to pass it on to everyone who st...

•8 years ago

Headaches

I have been having painful headaches they last up,to a week , sometimes iam in bed up to 2 days in pain so bad I can't move my head, and I feel like vomiting,...

I have been having painful headaches they last up,to a week , sometimes iam in b...

•8 years ago

Lupus Symptoms

Can anyone tell me the symptoms of Lupus I do not want to research on the internet : ( I was diagnosed with ITP 12 months ago and my symptoms do feel related...

Can anyone tell me the symptoms of Lupus I do not want to research on the intern...

•8 years ago

Renovade

Hi forum buddies , I know Renovade raises your platelets but does it help with fatigue ? I am going on a trial period, as always thoughts needed .

Hi forum buddies , I know Renovade raises your platelets but does it help with...

•8 years ago

My Journey of ITP So Far...

Dear all purpose of sharing my journey is to help or guide others (specially new patients of ITP). I am sharing this to give a ray of hope to ITP Patients....

Dear all purpose of sharing my journey is to help or guide others (specially new...

•8 years ago

Curious

So I'm wondering if you have to have a bone marrow biopsy before you try nplate? My platelets are at 26 and I'm going off steroids cause the platelets weren't...

So I'm wondering if you have to have a bone marrow biopsy before you try nplate?...

•8 years ago

Low platelet

How long have you had low platelets, what did it drop to for them to decide to remove your spleen? Did they give you s bone marrow biopsy?

How long have you had low platelets, what did it drop to for them to decide to r...

•8 years ago

Low platelet

I have lymphoma and my platelets are dropping each month, it is now down to 74, is it safe to drink alcohol once a week on nights out ? Has anyone else got...

I have lymphoma and my platelets are dropping each month, it is now down to 74, ...

•8 years ago

Patience

It's so hard to be patient. My dr keeps making a mistake when she fills out my blood requisition wrong ( no special tube so platelets don't stick together)...

It's so hard to be patient. My dr keeps making a mistake when she fills out my b...

•8 years ago

RACHANA PANDEY

Hi I'm ABHISHEK from India. My wife RACHANA is suffering from ITP, this was diagnosed in 2014 since than I'm looking for a health insurance for her. Plz help...

Hi I'm ABHISHEK from India. My wife RACHANA is suffering from ITP, this was dia...

•8 years ago

Lupus? ITP?

I was diagnosed with ITP on August 4th. I was given 3 dosages of IVIG through August. I started steroids yesterday, 150 mg/4 days. I got tested for lupus...

I was diagnosed with ITP on August 4th. I was given 3 dosages of IVIG through Au...

•8 years ago

ITP: How Does It Feel?

Immune Thrombocytopenic Purpura (ITP) -How does it feel to be told that you will likely live for the rest of your years with a rare, mostly unpredictable and...

Immune Thrombocytopenic Purpura (ITP) -How does it feel to be told that you will...

•8 years ago

Good news

It's so nice to for once have some good news For the last 4 was I've been drinking more green drinks and mixing pomegranate juice with aloevera juice and...

It's so nice to for once have some good news For the last 4 was I've been drinki...

•8 years ago

Travel Insurance

Has anyone in the UK been able to get a good deal on Travel Insurance? Several companies have declined me!

Has anyone in the UK been able to get a good deal on Travel Insurance? Several c...

•8 years ago

15 month old with ITP

A week ago my 15 month old baby girl was diagnosed with ITP. This shocked us and rocked us to the core. We had never heard of it and our families all lead very...

A week ago my 15 month old baby girl was diagnosed with ITP. This shocked us and...

•8 years ago

Helpless

As i mentioned before my daughter in law drops her platelets from 15 to 3. What is the very best foods to eat? Or a fruits sonit will be goes to even little...

As i mentioned before my daughter in law drops her platelets from 15 to 3. What ...

•8 years ago

Worried

I'm new to this ITP thing. New to being sick at all actually. I'm finding it very hard not being in control of my body. My platelets dropped to 6 three weeks...

I'm new to this ITP thing. New to being sick at all actually. I'm finding it ver...

•8 years ago

ITP

Well I am new to this ITP thing. Just diagnosed last week. Any advice would be helpful.

Well I am new to this ITP thing. Just diagnosed last week. Any advice would be ...

•8 years ago

Recent Diagnosis

I am currently 16 years old. I got diagnosed with ITP on August 4th, a day after my 16th birthday on August 3rd. Though, I knew something was wrong for months...

I am currently 16 years old. I got diagnosed with ITP on August 4th, a day after...

•8 years ago

Have my platelets increased with steroid treatment?

Back to the Marsden tomorrow after 2 weeks of being diagnosed with ITP to see if 60mg steroids per day have brought my platelets up from 35. Fingers crossed.

Back to the Marsden tomorrow after 2 weeks of being diagnosed with ITP to see if...

•8 years ago

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