Posts - ITP Support Association | HealthUnlocked

ITP Support Association

4,135 members•2,109 posts

All posts for August 2013

Husband was diagnosis with ITP and they want to do Splenectomy?

They have just done a couple things to help him (iv antibiotic treatment, lyphectomy and IV globulin) I am very confused and not sure if the splencecomy is...

They have just done a couple things to help him (iv antibiotic treatment, lyphec...

jillpark

•11 years ago

18 Replies

Rituximab

Starting my first Rituximab treatment this morning. Hope it works? Not looking forward to any side affects?

Starting my first Rituximab treatment this morning. Hope it works? Not looking ...

lmc167

•11 years ago

3 Replies

Hi, I've just been diagnosed with ITP platelet count 2 and a mouth full of huge blood blisters and a rash every where plus bruising.

I'm on prednisolone and tranexamic acid. Any way to ease my sore mouth would be welcomed. Still in shock at the diagnosis and being self employed, worried...

I'm on prednisolone and tranexamic acid. Any way to ease my sore mouth would be ...

johnw1952

•11 years ago

24 Replies

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what are the tests to confirm ITP

sivajigade

•11 years ago

4 Replies

Mycophenalate

Hi have been taken of romoplostim 3weeks ago due to side effects my count has dropped down to 19 this week my consultant wants to start me on mycophenalate...

Hi have been taken of romoplostim 3weeks ago due to side effects my count has d...

salmagal

•11 years ago

17 Replies

Anyone know about South African bush teas, like redbush/rooibosch increasing autoimmune diseases?

Was told on diagnosis of ITP to avoid them, but have never heard that again and would like to drink less caffeine.

Was told on diagnosis of ITP to avoid them, but have never heard that again and ...

LHine

•11 years ago

2 Replies

MMF withdrawal side effects

Has anyone experienced side effects while getting off MMF? I have a few quite distinct ones: very dry nose, crust inside; hair loss more than normal; general...

Has anyone experienced side effects while getting off MMF? I have a few quite d...

lc12345

•11 years ago

8 Replies

ITP & Eltrombopag to be called Revolade in the UK, Promacta in the USA

Has anyone had any experience with promacta? I am deciding if to take it or not?

dp1204

•11 years ago

13 Replies

Any opinion on the use of Rituximab and the risk of (PML) Progressive multifocal leukoencephalopathy which is said can be lethal.

For the past 2 years I've been on 15mg prednisolone + 100mg Azathioprine, and my platelet level is around 20 thousand. Thanks to TCM, traditional chinese...

For the past 2 years I've been on 15mg prednisolone + 100mg Azathioprine, and m...

gordontardio

•11 years ago

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Posts - ITP Support Association | HealthUnlocked

ITP Support Association

All posts for August 2013

Husband was diagnosis with ITP and they want to do Splenectomy?

Rituximab

Hi, I've just been diagnosed with ITP platelet count 2 and a mouth full of huge blood blisters and a rash every where plus bruising.

what are the tests to confirm ITP

Mycophenalate

Anyone know about South African bush teas, like redbush/rooibosch increasing autoimmune diseases?

MMF withdrawal side effects

ITP & Eltrombopag to be called Revolade in the UK, Promacta in the USA

Any opinion on the use of Rituximab and the risk of (PML) Progressive multifocal leukoencephalopathy which is said can be lethal.

Search posts

Pinned Posts

Latest poll

ITP TREATMENTS - Which ITP treatment has given you the best outcome in terms of the longest period of remission ?

Topics

Archive