Posts - ITP Support Association | HealthUnlocked

ITP Support Association

4,140 members•2,114 posts

All posts for March 2014

ITP AGAIN!

Hello all :) Im 19 and had ITP from 8months old until i was 10. Now im 19 and its BACK :S My platelet count dropped rapidly down to 3 (yes only 3 ) and i was...

Hello all :) Im 19 and had ITP from 8months old until i was 10. Now im 19 and it...

RebeccaM

•11 years ago

6 Replies

Sorry another question lol, has anyone had success with anti D immunoglobin or WinRHo?

High pulse dexamethasone is losing its efficacy so my next emergency treatment is anti d immunoglobin. Has anyone tried it, what are the side effects and has...

High pulse dexamethasone is losing its efficacy so my next emergency treatment i...

123katylocke

•11 years ago

9 Replies

Travelling by plane and low platelets? Does a menstrual cycle lower platelets?

After three pulses of high dose dexamethasone, my platelets have crashed once again, down to 20. However my petechiae is looking a bit redder and spreading a...

After three pulses of high dose dexamethasone, my platelets have crashed once ag...

123katylocke

•11 years ago

6 Replies

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Warning of very upsetting scam email

Hi everyone, this morning I received an email, supposedly from 'National Institute for Health and care Excellence' headed 'blood test results' stating that...

Hi everyone, this morning I received an email, supposedly from 'National Institu...

Hidden

•11 years ago

7 Replies

Is ITP now over?

My 2 yr old was diagnosed with ITP 21/01/14. His scores have been mainly at the beginning under 10 (1at diagnosis) they lifted to the following 63, 147, 62, 32...

My 2 yr old was diagnosed with ITP 21/01/14. His scores have been mainly at the ...

ITPmummy

•11 years ago

6 Replies

Itp accute or chronic ?

Hi my daughter is having her 2nd bout of itp in 5 months we were just starting to think it was a one off , can someone tell me if this means it's chronic or...

Hi my daughter is having her 2nd bout of itp in 5 months we were just starting t...

Mentalmads

•11 years ago

10 Replies

Does long term dapsone therapy has any major side effects becoz i m on dapsone for many long time

grishma

•11 years ago

2 Replies

How to live nrml life with itp?????

grishma

•11 years ago

2 Replies

Hi i have been diagnosed itp 6 yera back nd i am 23 yr old. I have been underfone spleenectomy, steroid, azathioprine and now i am on dapson

My count swings from 7000 to 100000 on the same treatment. I have problem of easy bruising and purpura. Can anyone let me know permanent treatment of itp or...

My count swings from 7000 to 100000 on the same treatment. I have problem of eas...

grishma

•11 years ago

2 Replies

How to get rid off dis steroidal side effects please tell me

sjpriya

•11 years ago

4 Replies

Does anyone no of a specialist on itp in the Midwest we live in Iowa??? Our 32 old daughter is at 14,000 and nplate is not working,

She was told she had itp last August 2013. She has never gotten over 160,00 with steroids. She is being seen by a Doctor who wants to take her spleen out...

She was told she had itp last August 2013. She has never gotten over 160,00 with...

cjoh

•11 years ago

6 Replies

Does antihistamine medicines affect 3yrs old Itp child???

Rimmmmm

•11 years ago

Be the first to reply

My 3 yrs old daughter was diagnosed Itp last nov . Her last platelets count was 60 3weeks ago before we get her 2 hamsters .... Yesterday 48

Does it have any thing to do with hamsters ? Or the flea she got a week ago and bit her everywhere

Does it have any thing to do with hamsters ? Or the flea she got a week ago and ...

Rimmmmm

•11 years ago

5 Replies

Hi probably a really silly question but do other Itp sufferes think it will be ok to use Vicks Vaporub

My daughter has a nasal viral infection and I thought if she rubbed vicks on her chest and let her inhale it would help her breathing and nasal congestion. She...

My daughter has a nasal viral infection and I thought if she rubbed vicks on her...

Lindylou86

•11 years ago

5 Replies

ITP in children and behavior

My daughter has had ITP since she was 2 yo. She is now 6yo and we have been dealing with awful moodiness and emotional outburst when her plt count is <50. I am...

My daughter has had ITP since she was 2 yo. She is now 6yo and we have been deal...

JJMcLaren

•11 years ago

5 Replies

Thinning hair

I have been on quite a combination of drugs, fighting last relapse, since November: rituximab, two 4-day pulses of dexamethasone 40mg 1st and 3rd week, IVIG,...

I have been on quite a combination of drugs, fighting last relapse, since Novemb...

lc12345

•11 years ago

12 Replies

Hi have had a steady count between 45 x55 since July 2013

Hi have had steady fairly steady count 45 x55 since July 2013 have been really tired past couple of days also couple if blood blisters on my tongue and some...

Hi have had steady fairly steady count 45 x55 since July 2013 have been really t...

salmagal

•11 years ago

5 Replies

ITP SUPPORT ASSOCIATION ANNUAL CONVENTION

The ITP Support Association Annual Convention is this year being held on Saturday April 5th and tickets are still available, albeit they are selling quickly....

The ITP Support Association Annual Convention is this year being held on Saturda...

AnthonyHeard

Administrator•11 years ago

Be the first to reply

2 year old with ITP. Is it normal for count to go up and down?

Not sure if it my son has medicated induced ITP (He was prescribed Trimethoprim friday before diagnosis on Tuesday), or if he has viral induced ITP either way,...

Not sure if it my son has medicated induced ITP (He was prescribed Trimethoprim ...

ITPmummy

•11 years ago

3 Replies

What do you itp'ers do to get rid of the bruises? From my mid-calf down I have bruises that refuse to leave.

Also a very tender area and feel burning sensation. Anyone experience this problem? I get minimal bruising in any other area. Looks great with skirts or...

Also a very tender area and feel burning sensation. Anyone experience this probl...

22-patience

•11 years ago

3 Replies

DLA

I have been on DLA for past 2 years, the payment was coming to an end & they sent me a new application form for DLA not PIP which was supposed to replace DLA....

I have been on DLA for past 2 years, the payment was coming to an end & they sen...

longbank123

•11 years ago

1 Reply

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Posts - ITP Support Association | HealthUnlocked

ITP Support Association

All posts for March 2014

ITP AGAIN!

Sorry another question lol, has anyone had success with anti D immunoglobin or WinRHo?

Travelling by plane and low platelets? Does a menstrual cycle lower platelets?

Warning of very upsetting scam email

Is ITP now over?

Itp accute or chronic ?

Does long term dapsone therapy has any major side effects becoz i m on dapsone for many long time

How to live nrml life with itp?????

Hi i have been diagnosed itp 6 yera back nd i am 23 yr old. I have been underfone spleenectomy, steroid, azathioprine and now i am on dapson

How to get rid off dis steroidal side effects please tell me

Does anyone no of a specialist on itp in the Midwest we live in Iowa??? Our 32 old daughter is at 14,000 and nplate is not working,

Does antihistamine medicines affect 3yrs old Itp child???

My 3 yrs old daughter was diagnosed Itp last nov . Her last platelets count was 60 3weeks ago before we get her 2 hamsters .... Yesterday 48

Hi probably a really silly question but do other Itp sufferes think it will be ok to use Vicks Vaporub

ITP in children and behavior

Thinning hair

Hi have had a steady count between 45 x55 since July 2013

ITP SUPPORT ASSOCIATION ANNUAL CONVENTION

2 year old with ITP. Is it normal for count to go up and down?

What do you itp'ers do to get rid of the bruises? From my mid-calf down I have bruises that refuse to leave.

DLA

Search posts

Pinned Posts

Latest poll

ITP TREATMENTS - Which ITP treatment has given you the best outcome in terms of the longest period of remission ?

Topics

Archive